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Topic: some succeess in treatment of non-ch ha (Read 342 times) |
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Charlotte
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some succeess in treatment of non-ch ha
« on: Aug 15th, 2006, 1:45pm » |
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Thank you for everyone who has been so supportive.
I am starting to have some success in the treatment plan of kudzu, neurontin, and Indocin. I have actually made it through several of the time slots for my every 2 hour ha with only a shadow and not the pain. The Indocin alone did not help, but combined with the kudzu & neurontin, it is helping.
I am very hopeful.
Charlotte
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| « Last Edit: Aug 15th, 2006, 1:48pm by Charlotte » |
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Margi
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Re: some succeess in treatment of non-ch ha
« Reply #1 on: Aug 15th, 2006, 3:49pm » |
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I'm hopeful for you too, Charlotte. I'm not all that sure that your docs are right that you're not going through cluster. I've just skimmed some of your posts and I know I don't have all the details, but...I dunno, sure could be cluster IMHO.
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kathy copelin, ch.com 8/8/06
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kcopelin
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good grief
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Re: some succeess in treatment of non-ch ha
« Reply #2 on: Aug 15th, 2006, 10:23pm » |
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Charlotte,
I don't care what kind of headaches you have-you are still my friend and I pray for pain free days for you! I'm glad to hear this combo is helping-but I'm with Margi on this-still think you mught be a clusterhead.
Love ya anyway... 
kathy
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Words count, chose carefully.
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Charlotte
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Re: some succeess in treatment of non-ch ha
« Reply #3 on: Aug 15th, 2006, 11:55pm » |
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It is kind of wierd and it is a struggle, but this is day 5 of week 2 on my neurontin escalation, and day 3 using Indocin.
Some of my friends at work discussed the meds today and told me they can see it is working. I am very fortunate in my support system. Love at home, love at work, and love here.
Charlotte
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| « Last Edit: Aug 15th, 2006, 11:56pm by Charlotte » |
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E-Double
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Re: some succeess in treatment of non-ch ha
« Reply #4 on: Aug 16th, 2006, 5:01am » |
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on Aug 15th, 2006, 11:55pm, Charlotte wrote:It is kind of wierd and it is a struggle, but this is day 5 of week 2 on my neurontin escalation, and day 3 using Indocin.
Some of my friends at work discussed the meds today and told me they can see it is working. I am very fortunate in my support system. Love at home, love at work, and love here.
Charlotte
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If a HA type is going tobe responsive to indocin you are right on path withwhat the literature suggests. You can consider this effective.
It may just be the indocin
Like everyone siad.......don't care what you have!
Glad you are finding relief
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Charlotte
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Re: some succeess in treatment of non-ch ha
« Reply #5 on: Aug 16th, 2006, 9:48am » |
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the instructions in 2000 were 1 indocin every 8 hours and that did not work any better than over the counter stuff. The new directions are 1 or 2 every 8 hours. The Kaiser pharmacy is out of Indocin (lol) so I am using the 2000 Indocin. 2 works, 1 does not work.
New doc was going to phone in a time release version & see if that was in stock.
My understanding is that Indocin is the only drug in that family. Is that correct?
Charlotte
ps whew, the time release version is in stock & I will get it after work.
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| « Last Edit: Aug 16th, 2006, 1:33pm by Charlotte » |
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E-Double
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Re: some succeess in treatment of non-ch ha
« Reply #6 on: Aug 16th, 2006, 9:53am » |
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It is stilla NSAID yet for some reason it is the only one that works with many of these damn headaches
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Charlotte
CH.com Alumnus
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I love YaBB 1G - SP1!
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Posts: 1932
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Re: some succeess in treatment of non-ch ha
« Reply #7 on: Aug 17th, 2006, 9:05am » |
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I just wanted to share this. I just had 12 good hours.
Charlotte
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pattik
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Re: some succeess in treatment of non-ch ha
« Reply #8 on: Aug 17th, 2006, 9:16am » |
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That's wonderful news, Charlotte. 
Pat
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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