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Topic: TOPIRAMATE (Read 873 times) |
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Elecourt
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Hi Folks
Have anyone already tried/heard about Topiramate as medication agains CH ?
I started with it about a month ago at dosage of 25mg/day then went two weeks after to 50 mg/days and even if I get some side effects (bad mood mostly) I'm free of CH for now.
My doctor (neurologist) would like me to go all the way to 100mg/day but I'm a bit afraid of all side effects.
If anyone has experience bad or good please let me know.
Also I'm interesting to know about all possible side effects.
Eric
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| « Last Edit: May 31st, 2006, 10:54am by Elecourt » |
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Eric
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LeLimey
CH.com Alumnus
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OUCH-US - Less "ME" and more "WE"
 
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Re: TOPIRAMATE
« Reply #1 on: May 30th, 2006, 4:20am » |
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If you're free of being hit why does he want you to increase the dose? 
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Jack_of_Diamonds
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Ignorance is bliss
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Re: TOPIRAMATE
« Reply #2 on: May 30th, 2006, 5:09am » |
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try to stay at your dosge,
if a medication is working for you at that level then it dosn't make sence to increase it (logic overpowers M.D.s)
but since i'm not a doctor, tell your doctor this idea and hopfuly he won't force the pills on you
Good luck,
-Kyle
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Karla
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Re: TOPIRAMATE
« Reply #3 on: May 30th, 2006, 7:40am » |
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That drug is also called topamax. You can do a search on it and find many have tried it. And only a few have had success with it. Many have had terrible side effects from it thus the lable dopamax. It makes you dummer than a doornail. I tried up to 600mg of it and it still didn't do anything for my ch. You are on a very very low dose. I am surprised it does anything for you. 200mg is considered theraputic. But hey if it works at that low of a dose for you I would aguee storngly against raising it for fear of side effects. Like stupididity, kidney stones, etc.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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marlinsfan
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Re: TOPIRAMATE
« Reply #4 on: May 30th, 2006, 4:22pm » |
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I'm with Karla. I stopped the dopeymax after only a few days.
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CUE
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Re: TOPIRAMATE
« Reply #5 on: May 30th, 2006, 6:28pm » |
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Hey,
I am currently dabbling in the "dopeymax," as some have come to call it, as well. I have only just begun though, so I can't offer much in the way of experience so far. My "schedule" is as follows:
Week 1 - 25mg/day
Week 2 - 50mg/day
Week 3 - 75mg/day
Week 4 - 100mg/day
For the first 2 days that I took the pills, I was PF (if by coincidence). By day 3, the beast had come back to visit. I am on day 4, and the beast has visited again today. While the dosage is still very low by any means, I will say that I am not very optimistic about this particular drug for a number of reasons. I have read much about others' experiences and information about the drug as being used for CH, and it seems that a great deal of those whom have tried it stop using it either because it does not help or due to the side effects caused by it.
So far, it isn't doing much for me, especially at this initially small dosage. Hell, even the full dosage that the doctor has me ramping up to pales in comparison to most of what I have read others as having tried. So, it has yet to be seen what, if anything, it will do for me.
My plan is essentially this: to keep on with the "schedule" til either it works, the pills run out (and it didn't work), or the side effects start to kick in. Whichever comes first. In the meantime, thank heavens for the Trex!
Anyway, I hope it continues to work out for you, and I wish you the best.
Anthony
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There's no pain like our pain.
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unsolved1
Guest
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A peice of advice for those of you taking this nasty drug:
Drink plenty of water ( or lemonade w/ real lemon juice)
LOTS OF IT !!
If you don't, You might wish you had later 
Goodluck
UNsolved
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