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Topic: Saw neuro again today (Read 467 times) |
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I Cant Dance
CH.com Alumnus
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Kicking "Fat Bastard" to the curb!
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Saw neuro again today
« on: Apr 27th, 2006, 4:10pm » |
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Been playing phone tag with the neuro office since my last visit a few weeks ago, but finally went in and saw him again today. He was very receptive to many of the suggestions I had given him (things I learned her at CH.com), but was very concernred about a few of the suggestions.
I have used soooooo many things with no relief, and am now going back through things I haven't tried in a few years (things that had no effect other than those on the side...lol). He prescribed Topomax and Zomig nasal spray. I see him again in two weeks.
I am getting hit everyday with a 1.5-2.5 hour death march followed by a 3hr break with shadows before another 1 hour butt kicking followed by heavey shadows and a 2 hr k4-5. Then, after about two hours sleep I am woken by another ripper. I am tired and tired of this. Have now missed almost two months of work.
Sorry for the rant, just needed to vent. The shadows be here and I am just a short while away from a two hour battle with the bastardly beast.
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"I can endure more pain than anyone you've ever met. That's why I can beat anyone I've ever met."
-Steve Prefontaine, "Without Limits"----Yeah Right! "I got yer pain right hiya."
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jhammer
New Board Veteran
This is pure AGONY!!!
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Re: Saw neuro again today
« Reply #1 on: Apr 27th, 2006, 4:18pm » |
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Hang in there man...it's those brief periods of relief that I look forward to everyday.
Treasure them and know that there will be another one coming soon!
~Jake
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Kris_in_SJ
New Board Hall of Famer
There's no place like home.
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Re: Saw neuro again today
« Reply #2 on: Apr 27th, 2006, 8:02pm » |
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I'm so sorry you're suffering, my friend.
Have you asked about EE's Zyprexa? He sure swears by it as a good abortive. Just a thought .... At one time, he was suffering in a similar way.
If all else fails, please remember our friends at clusterbusters.com.
Hugs,
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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Garys_Girl
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Kill the Beast!
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Re: Saw neuro again today
« Reply #3 on: Apr 28th, 2006, 11:08am » |
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I Can't Dance:
I know well the "I can't take this anymore" chant/rant. Fortunately for hubby, Kudzu has helped, at least a bit. I'm sorry it didn't for you.
I don't know if you've searched the archives on this site for those who've tried psilocybin or seeds (LSA), or if you've spent any time over at clusterbusters.com. At this point, I agree with Kris - it's worth at least putting a bit of time into the research.
Here's a link to an article that discusses some of the background on current research being done in psychedlics:
http://www.wired.com/news/medtech/0,65025-0.html?tw=wn_story_page_prev2
Please read both pages. It's quite interesting.
Dr. Halpern at Harvard hired one of a few people in the country that specialized in both neurology and psychiatry, Dr. Sewell. The two of them, in association with MAPS, have been pulling together information since 2004 on the use of LSD and psilocybin in the treatment of CH. The data was presented at the National Headache Foundation's annual gig this past February. The data is supportive of further research, and they are raising money and applying to the FDA to begin clinical trials next year.
http://www.maps.org/research/cluster/psilo-lsd/
Note: on the timeline on this site, it mentions that on Dec 22 a case report was submitted for publication. It does not mention that it has been accepted for publication by Neurology, though we do not yet know in which issue it will be published.
Food for thought.
Laurie
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| « Last Edit: Apr 28th, 2006, 11:08am by Garys_Girl » |
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Laurie
"It's comin' like a freight train - can't you hear it?" - Gary
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