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Topic: National Headache Foundation Research Summit (Read 3158 times) |
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Pinkfloyd
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National Headache Foundation Research Summit
« on: Feb 7th, 2006, 12:55am » |
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Dr. Sewell's abstract entitled, The Effects Of Psilocybin And Lsd On Cluster Headache: A Series Of 53 Cases, was selected for an oral presentation at the National Headache Foundation's 3rd Annual Headache Research Summit being held on Wednesday, February 15 and Thursday, February 16 from noon until 4 PM running concurrently with the postgraduate course, The Practicing Physician's Approach to the Difficult Headache
Patient in Rancho Mirage, CA.
I will be attending the 4 day conference (the research summit is only 2 days of the 4 day conference) and will be joined by Dr. Douglas Wright of O.U.C.H. Canada (and ch.com fame)
Although the details are yet to be finalized, we will most likely be joining Dr. Sewell during the presentation and panel discussion.
Hundreds of headache specialists are about to be formally introduced and/or updated on the effects of psychedelics upon cluster headaches.
If your doctors don't know about it yet, they most likely will, come next week. 
For more details on the conference, see:
http://www.dhc-fdn.org/eventfiles/DHC-FDNFeb06.pdf
BobW
http://www.clusterbusters.com/necklace.htm
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"Nothing is so firmly believed as what we least know."
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MJ
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Re: National Headache Foundation Research Summit
« Reply #1 on: Feb 7th, 2006, 1:24am » |
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Great news. Enjoy the sunshine too.
MJ
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MJ
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: National Headache Foundation Research Summit
« Reply #2 on: Feb 7th, 2006, 3:22am » |
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Great news! 
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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maffumatt
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Re: National Headache Foundation Research Summit
« Reply #3 on: Feb 7th, 2006, 4:56am » |
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alright!
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Bob P
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Re: National Headache Foundation Research Summit
« Reply #4 on: Feb 7th, 2006, 7:33am » |
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Cool deal. Tell Doug I said hi.
Would it be possible for Doc Sewell to share his paper with us?
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| « Last Edit: Feb 7th, 2006, 7:43am by Bob P » |
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
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Pinkfloyd
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Re: National Headache Foundation Research Summit
« Reply #5 on: Feb 7th, 2006, 9:24am » |
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on Feb 7th, 2006, 7:33am, Bob P wrote:| Would it be possible for Doc Sewell to share his paper with us? |
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I'll check with Dr. Sewell.
My guess is that he'll want to wait until the paper is published, which should be very soon.
Bobw
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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seasonalboomer
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Re: National Headache Foundation Research Summit
« Reply #6 on: Feb 7th, 2006, 9:28am » |
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if Dr. Sewell keeps it up he may replace Goadsby as the patron saint of CH.
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seasonal boomer
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vig
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Re: National Headache Foundation Research Summit
« Reply #7 on: Feb 7th, 2006, 9:18pm » |
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Quote:
... the patron saint of CH.
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he already is....
now we have several...
great work BobW!
(Ya snooze, ya lose, Goadsby!)
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| « Last Edit: Feb 7th, 2006, 9:19pm by vig » |
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SteveY
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Re: National Headache Foundation Research Summit
« Reply #8 on: Feb 8th, 2006, 7:53am » |
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Re Goadsby.
He is infact meeting Dr Sewell today.
The more the merrier, I don't care how many saints we have.
Steve
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Dragnlance
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Re: National Headache Foundation Research Summit
« Reply #9 on: Feb 8th, 2006, 11:36am » |
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Has anyone nominated DJ for sainthood? I know after finding this place, I am thinking of him that way
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nani
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Re: National Headache Foundation Research Summit
« Reply #10 on: Feb 8th, 2006, 11:46am » |
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Thanks to Andrew, Bob and Doug. 
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Margi
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Re: National Headache Foundation Research Summit
« Reply #11 on: Feb 8th, 2006, 12:16pm » |
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Bob, we're sending Doug with strict instructions to take good notes and lots of pictures. Please remind him. Oh and don't let him lollygag by the pool too much, ok? He's very much looking forward to the balmy weather because he's pretty cold and waterlogged, coming from Nanaimo - they've had a helluva wet winter so far!
Seriously, Bob, Doug and Doc Sewell - thanks so much for helping to putting cluster on the map!
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kathy copelin, ch.com 8/8/06
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Linda_Howell
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Re: National Headache Foundation Research Summit
« Reply #12 on: Feb 8th, 2006, 12:35pm » |
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This is so friggin AWESOME !!!!
DJ, I'm certain, would not want to be called a saint, but would all of this have ever happened the way it has, without him starting ch.com? I think not.
Linda
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Pinkfloyd
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Re: National Headache Foundation Research Summit
« Reply #13 on: Feb 8th, 2006, 5:33pm » |
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on Feb 8th, 2006, 12:16pm, Margi wrote:| Oh and don't let him lollygag by the pool too much, ok? |
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All unauthorized lollygagging will captured on film. 
One of the points I hope we can stress upon them is, with all the research being done by so many of the cluster patients themselves, it should be obvious that not enough research is being done by the medical community as a whole.
BobW
Thanks to everyone that has helped us get this far. We've only just begun.
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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LeLimey
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Re: National Headache Foundation Research Summit
« Reply #14 on: Feb 8th, 2006, 5:39pm » |
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You're making history there Bob, its exciting!
I can't wait to hear all about it so take copious notes (in between lollygagging naturally!)
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Jonny
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Re: National Headache Foundation Research Summit
« Reply #15 on: Feb 8th, 2006, 5:55pm » |
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on Feb 8th, 2006, 5:33pm, Pinkfloyd wrote:| One of the points I hope we can stress upon them is, with all the research being done by so many of the cluster patients themselves, it should be obvious that not enough research is being done by the medical community as a whole. |
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 I have never ever posted that, so you better enjoy it, Bob
Folks like Bob Johnson, Flo, BobP, YOU and many more have got us this far. We are all Ch'ers but some are better researchers than others, Me?, ill stick with keeping the snakeoil out
DJ, without you we would still be in the fucking stoneage, Thank you, Brother!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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SteveY
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Re: National Headache Foundation Research Summit
« Reply #16 on: Feb 8th, 2006, 7:02pm » |
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Ditto
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Pinkfloyd
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Re: National Headache Foundation Research Summit
« Reply #17 on: Feb 8th, 2006, 7:22pm » |
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on Feb 8th, 2006, 5:55pm, Jonny wrote:
I have never ever posted that, so you better enjoy it, Bob
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Thanks Jonny, I do appreciate it.
I think the strides we've made are a testiment to the closeness of the entire cluster community, and everyone has had a hand in this.
Bobw
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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Lizzie2
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Re: National Headache Foundation Research Summit
« Reply #18 on: Feb 8th, 2006, 11:16pm » |
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Bob,
So very excited for all of you. I can't wait to hear all about it! Never have been to an NHF meeting although I get stuff in the mail from them all the time. I don't have enough $$ t o fly around the world for all this shtuff.
Best of luck and ENJOY every moment!!!
Carrie
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dennisoc
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break a leg
« Reply #19 on: Feb 9th, 2006, 12:46am » |
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we who suffer cluster pain salute you.
we who have children at risk of clusters send you off with all our hopes.
walk in the sunshine
den
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Pinkfloyd
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Re: National Headache Foundation Research Summit
« Reply #20 on: Feb 9th, 2006, 2:10am » |
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Break a leg??
It would be my luck to break a leg and be in a room with 350 "headache" doctors.
Thanks Den, and everyone
Bobw
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"Nothing is so firmly believed as what we least know."
"There is no passion so contagious as that of fear."
[Michel de Montaigne
www.clusterbusters.com
www.obscuredview.blogspot.com
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Peppermint
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Re: National Headache Foundation Research Summit
« Reply #21 on: Feb 9th, 2006, 10:22am » |
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Bob, I have to tell you, you really have come a looooong way BABY!!
This is very exciting news, from all the effort and stages you've had to go through, it really is a promising step towards possible relief, a possible cure -
Good luck to you, Dr. Doug Wright and Dr. Sewell, here's praying each stride you make will take you further than you ever dreamed!
Knock them off their keister's,
Pep 
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When playing in the gym, beware of steel beams. - M. Amyx
Carve your name on hearts, and not on marble. - Charles H. Spurgeon
FYI - I am NOT a clusterhead.
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_Lee_
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Re: National Headache Foundation Research Summit
« Reply #22 on: Feb 10th, 2006, 12:33am » |
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Way to go Bob, I hope all these sceptical Doctors get it.
Lee
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carriefu
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Re: National Headache Foundation Research Summit
« Reply #23 on: Feb 10th, 2006, 1:55am » |
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thank G-D for those still looking for a cure...........
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pattik
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Re: National Headache Foundation Research Summit
« Reply #24 on: Feb 10th, 2006, 10:25am » |
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Wishing all of you attending the conference great success in spreading the word...and don't forget to enjoy the beautiful surroundings while you're at it.
Patti
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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