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Topic: Had oxygen for the first time! (Read 873 times) |
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Lissa
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Had oxygen for the first time!
« on: Jan 11th, 2006, 8:28am » |
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It WORKED! 
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Episodic cluster survivor since 1995 at age 16.
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marlinsfan
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Re: Had oxygen for the first time!
« Reply #1 on: Jan 11th, 2006, 8:49am » |
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Way to go! How long did it take? What LPM are you using?
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Beastfodder
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O2 and clusterbusters - naturally
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Re: Had oxygen for the first time!
« Reply #2 on: Jan 11th, 2006, 8:51am » |
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Excellent news.
Hope you share that with that nurse who said it wasn't a CH remedy when first asked about it!
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O2 and clusterbusters - naturally
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Lissa
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Re: Had oxygen for the first time!
« Reply #3 on: Jan 11th, 2006, 8:52am » |
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I believe I had it at 7-8 LPM. It was gone in 5 minutes.
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Episodic cluster survivor since 1995 at age 16.
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E-Double
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Re: Had oxygen for the first time!
« Reply #4 on: Jan 11th, 2006, 8:58am » |
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Right on!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Lissa
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Re: Had oxygen for the first time!
« Reply #5 on: Jan 11th, 2006, 9:01am » |
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I was quite skeptical. Thank God it worked. I don't know what I would have done.
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Episodic cluster survivor since 1995 at age 16.
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E-Double
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Re: Had oxygen for the first time!
« Reply #6 on: Jan 11th, 2006, 9:16am » |
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on Jan 11th, 2006, 9:01am, Lissa wrote:| I was quite skeptical. Thank God it worked. I don't know what I would have done. |
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A new disciple 
You would have survived and been fine like the rest of us 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Lissa
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Posts: 711
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Re: Had oxygen for the first time!
« Reply #7 on: Jan 11th, 2006, 9:29am » |
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I know I would have survived, but it saved me a trip to the ER.
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Episodic cluster survivor since 1995 at age 16.
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vig
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CHit Happens
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Re: Had oxygen for the first time!
« Reply #8 on: Jan 11th, 2006, 10:10am » |
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Let's see if Mr. Happy can rustle up a ClusterMasx...
WooHoo!!
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never, Never, NEVER quit. -Winston Churchill
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zanychef
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i'm busting with a masx cant really go wrong can i
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Re: Had oxygen for the first time!
« Reply #9 on: Jan 11th, 2006, 10:25am » |
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gotta love that o2
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plenty of time to sleep now me headaches aint too bad
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seasonalboomer
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If I think hard enough maybe it'll go away.....
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Re: Had oxygen for the first time!
« Reply #11 on: Jan 11th, 2006, 2:08pm » |
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It's like being "born-again" isn't it? Now, your job is to extoll the virtues of O2 to one and all.
Congrats on getting your O2 and doing something about it! Always great to hear about people who fought to get their O2 and then see results.
Scott
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seasonal boomer
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BK
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Re: Had oxygen for the first time!
« Reply #12 on: Jan 11th, 2006, 4:33pm » |
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I'm always glad to hear of success stories with O2 but I wish I knew what it was like to get relief using it. It must be an extraordinary feeling the way so many ch'ers carry on about it. Perhaps I'm just a little jealous because it never worked for me and I'm stuck using too may chemicals to keep mine under control. Anyway, congratulations!!
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Guiseppi
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Re: Had oxygen for the first time!
« Reply #13 on: Jan 11th, 2006, 7:01pm » |
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So glad to hear the 02 worked! I tote my tank and regulator around like a danged pacifier and baby blanket. No matter how short a trip I'm taking, shopping, etc., Mr E-Tank is my traveling companion! What's amazing is how much of the fear you can do away with, knowing you have a first line of defense to duck behind. Again, congrats, I couldn't be happier for you.
Guiseppi
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mcf69
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Re: Had oxygen for the first time!
« Reply #14 on: Jan 11th, 2006, 11:29pm » |
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Awesome!!!!!! Glad it worked for you, wonderfull feeling isn't it? I really don't know what I'd do without the o2, I think I would have removed my head a long time ago.
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Lissa
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Re: Had oxygen for the first time!
« Reply #15 on: Jan 12th, 2006, 8:36am » |
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It really is amazing. Thanks everyone!!
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Episodic cluster survivor since 1995 at age 16.
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Icey
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Re: Had oxygen for the first time!
« Reply #16 on: Jan 12th, 2006, 9:04am » |
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yep .. so Glad to hear it does work for some . Just never worked for me , but reading up I see I'm not alone 
Debbie
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vietvet2tours
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Re: Had oxygen for the first time!
« Reply #17 on: Jan 12th, 2006, 9:12am » |
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You been here since 02 and your just trying oxygen what have I missed?
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Kill em all let God sort em out
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Lissa
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Re: Had oxygen for the first time!
« Reply #18 on: Jan 12th, 2006, 9:43am » |
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on Jan 12th, 2006, 9:12am, vietvet2tours wrote:| You been here since 02 and your just trying oxygen what have I missed? |
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I've been on Verapamil and Imitrex since I was diagnosed and wanted to try the more natural route.
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Episodic cluster survivor since 1995 at age 16.
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kayarr
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Re: Had oxygen for the first time!
« Reply #19 on: Jan 12th, 2006, 11:30pm » |
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We have extra E tanks in the trunk
Love O2!!!!!!
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Nothing is impossible! Just believe!!!!!
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Major_Headcase
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Re: Had oxygen for the first time!
« Reply #20 on: Jan 13th, 2006, 10:04am » |
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I just started a new cycle and have an appt with my doc this afternoon. I've stuck with the Prednisone Verapamil and Imitrex combo and it's worked for me since I started getting CH 4-5 years ago ... but this time I'm going to ask my doc to prescribe 02 for me, I have the 02 info printed out and ready to take with me ... hope my insurance will cover most (some) of the cost, my wallet is still bleeding from Christmas.
-John
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marlinsfan
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Re: Had oxygen for the first time!
« Reply #21 on: Jan 13th, 2006, 10:26am » |
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on Jan 13th, 2006, 10:04am, Major_Headcase wrote:| but this time I'm going to ask my doc to prescribe 02 for me |
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John, don't ask, demand it!
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Wlt2424
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Re: Had oxygen for the first time!
« Reply #22 on: Jan 15th, 2006, 12:01am » |
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Great for You! I have been on for over 10 years. It has saved my life. My MOTTO: Oxygen- Don't leave home without it!!!!!!!!!!!!!!!!!
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Mr. Happy
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Re: Had oxygen for the first time!
« Reply #23 on: Jan 15th, 2006, 1:23am » |
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Just wait'll they become available, and you get your grubby little lungs shaking hands with a Clustermasx.
If you thought O2 worked good before....
RJ
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May those who don't want any
Have memories of never getting any.
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