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Topic: What I'm trying now (Read 16686 times) |
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nani
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What I'm trying now
« on: Jul 22nd, 2005, 11:21pm » |
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After my disastrous fall from the kudzu vine, I decided to try the "other" alternative. 
After a short kudzu detox, I dosed on Wed morning. I took a very small dose and had no effect other than colors looking brighter. As I expected, (but damn...I still wasn't ready!) I got hit pretty hard twice on Wednesday before 8 PM. My normal increase in activity time has started at about 9 PM lately, and at 9 PM Wed, I noticed that my head felt "clear" or "empty" if you will. (Please refrain from posting specifically to that remark.) No pain or activity for the rest of the night.
Thursday I shadowed quite a bit during the day, but I noted that the "clear" feeling was back at 8 PM. No hits.
Today the shadows ended at 4 PM. 
At the moment, I'm feeling pretty optimistic.  I am prepared to dose again on Monday, if needed.
I'm not ashamed to say that I was a little nervous about this. But, having had a visit to PF land, I want an extended vacation there. Many thanks to Pinkfloyd and the rest of you who coached me through this. You know who you are... 
I want to keep you posted because I'm a hard to treat chronic. Eventually all meds quit working for me, and my abortive choices are now limited to O2, ice and Red Bull. I'll let you know. PF wishes, nani
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Others may come and go, but MY power is MINE.
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E-Double
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Re: What I'm trying now
« Reply #1 on: Jul 22nd, 2005, 11:46pm » |
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Good luck my love!!!
Stay strong as ever and you will rejoin those PF ranks again.
Hugs to ya,
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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burnt-toast
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Re: What I'm trying now
« Reply #2 on: Jul 23rd, 2005, 12:19am » |
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Good luck - Let us know how it goes.
Tom
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Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
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unsolved1
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Good Luck Nani !!
Best Wishes
Unsolved
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Kevin_M
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withered branches grow green again.
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Re: What I'm trying now
« Reply #4 on: Jul 23rd, 2005, 12:28am » |
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on Jul 22nd, 2005, 11:21pm, nani wrote:| At the moment, I'm feeling pretty optimistic. |
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Kevin M
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Topical
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Re: What I'm trying now
« Reply #5 on: Jul 23rd, 2005, 8:50am » |
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All our fingers are crossed for you Nani. Tame the beast!
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nani
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Re: What I'm trying now
« Reply #6 on: Jul 23rd, 2005, 10:57am » |
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Thanks all. Well, I've been up for about 3 hours now...
no shadows... heeheehee
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Others may come and go, but MY power is MINE.
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pattik
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Re: What I'm trying now
« Reply #7 on: Jul 23rd, 2005, 11:07am » |
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You are giving us much inspiration, Nani...my thoughts are with you. Hope this time will be the exception to the rule regarding treatments failing eventully. 
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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cjc68
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Re: What I'm trying now
« Reply #8 on: Jul 23rd, 2005, 3:34pm » |
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Good luck Sweetie! My best wishes and prayers are with you!
ps. I know of a place in Ruidoso (Ruidoso Downs) where that alternative grows wild and there is plenty there free for the taking.....
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sandie99
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Re: What I'm trying now
« Reply #9 on: Jul 23rd, 2005, 3:37pm » |
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My thumbs are up for you...
PF wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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nani
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Re: What I'm trying now
« Reply #10 on: Jul 23rd, 2005, 3:41pm » |
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on Jul 23rd, 2005, 3:34pm, cjc68 wrote:
ps. I know of a place in Ruidoso (Ruidoso Downs) where that alternative grows wild and there is plenty there free for the taking..... |
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Kewl! It's a great place to spend a weekend, too. They've just re-opened the Inn of The Mountain Gods and I hear it's gorgeous. Thanks for the tip.
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godsjoy777
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Re: What I'm trying now
« Reply #11 on: Jul 23rd, 2005, 3:57pm » |
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Yeah.....yipppppeeeeee!!!!! Hey Na....na......na...na.....the Pain free's back!!!!!
(sung to the tune "My Boyfriend's Back". Soooo happy for you and please keep us.....ahem....POSTED...  to the continued success......I will be trying this treatment the next cycle I believe if it seems to be the workeble solution....
You rock, Nani...Sooooooo glad to get to know you at the Dallas Convention....I had told my husband I have to meet Nani if I don't meet anybody else.....I just knew you were great!
Pain free Days and nights!!!!
Blessings,
Karen
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stomper
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Re: What I'm trying now
« Reply #12 on: Jul 23rd, 2005, 4:08pm » |
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yyyyyyooooooouuuuuu gggggggggooooooooo gggggggiiiiiirrrrrllllllssssss love readin up on the nanster!! allthebest2you!! jimm
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lionsound
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breathe
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Re: What I'm trying now
« Reply #13 on: Jul 23rd, 2005, 8:50pm » |
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Good luck , nani!
pf's for you!
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| « Last Edit: Jul 23rd, 2005, 8:51pm by lionsound » |
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nani
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Re: What I'm trying now
« Reply #14 on: Jul 24th, 2005, 12:07am » |
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Thanks so much everyone. I love you all!!
I only shadowed between noon and 2:30 today. 
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cjc68
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Re: What I'm trying now
« Reply #15 on: Jul 24th, 2005, 12:29am » |
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I think we will both have a good night sweetie! I am happy you had a good day!
ps. I added a new entry on my post. (the zu and pred)
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eddie
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Re: What I'm trying now
« Reply #16 on: Jul 24th, 2005, 11:57am » |
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good luck nani
i really was tired of taking a lunchbox full of meds
to work and not food. im not totally pain free but alot
better. i wish you all the luck
eddie
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| « Last Edit: Jul 24th, 2005, 1:22pm by eddie » |
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PFDAN TO ALL>><< http://www.putfile.com/ededearl>>><music> http://www.myspace.com/pamneddie
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Chillrmn1
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Hi Nani,
So glad you're seeing some pain free relief and hope it continues for you! Please don't be discouraged at first, may take a few times for the healing to take foot. In my case, HBWR seemed to get me my remission after the the first alternative tries. As long as you're seeing progress or relief seems it's heading in the right direction for you. Glad to see you're giving it a try......................was the best choice for ME since all these 28 years of the beast, torment, and misery..............only wish I'd have made the desicion to try this route sooner. Sincerely wishing you the same results as I experienced.
Wishing you pain free time and success..............of all people, you deserve it! You're a special person, always helpful, supportive, and wise to all.
Sincerely,
Bob
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Lobster
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Re: What I'm trying now
« Reply #18 on: Jul 24th, 2005, 1:24pm » |
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Nice to hear that it seems to be working, Nani. Keeping my digits crossed.
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Kris_in_SJ
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Re: What I'm trying now
« Reply #19 on: Jul 24th, 2005, 8:40pm » |
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Go Nani!
PinkFloyd may well be the best friend of many around here. As I await my next, inevitable cycle, I'm reading, reading, reading about alternatives.
My best to you, sweetie. Keep us informed.
Kris
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I'm a small woman in small town being chased by a VERY BIG BEAST!
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nani
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Re: What I'm trying now
« Reply #20 on: Jul 24th, 2005, 10:45pm » |
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15 minutes (total) in shadows today.
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Others may come and go, but MY power is MINE.
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slacker032
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Re: What I'm trying now
« Reply #21 on: Jul 24th, 2005, 11:24pm » |
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For how long did you detox off of the Kudzu? Did you taper or stop completely?
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One good thing about music, when it hits you, you feel no pain. - Bob Marley
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nani
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Re: What I'm trying now
« Reply #22 on: Jul 25th, 2005, 10:05am » |
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I tapered off the 'zu, because I'm a wimp. I was down to 1 a day for 2 days and dosed 24 hrs after my last 'zu. I knew that I was cutting it close and risked having this treatment fail, but it worked out pretty well after all.
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Others may come and go, but MY power is MINE.
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seasonalboomer
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Re: What I'm trying now
« Reply #23 on: Jul 25th, 2005, 10:16am » |
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you go girl. hope that things continue to keep you in the drivers seat.
scott
(using Zu again for for my new cycle - -- let you know it goes.)
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seasonal boomer
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nani
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Re: What I'm trying now
« Reply #24 on: Jul 25th, 2005, 10:20am » |
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on Jul 25th, 2005, 10:16am, seasonalboomer wrote:
(using Zu again for for my new cycle - -- let you know it goes.) |
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Thanks, scott...Be assured I'm still watching kudzu very closely. I intend to hold on the my position as cheerleader emeritus for the;
Gimme a K! Gimme a U! Gimme a D! ....
well, you know.
Edited to add: Things are going very well, and I've decided not to dose again today. I'll wait until I "need" to again. I don't want to be a thread hog, so I'll only update when things change. Please PM me for any updates, if you'd like.
Hugs and PF wishes to all, nani
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| « Last Edit: Jul 25th, 2005, 10:43am by nani » |
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