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Topic: C*I*L*L my doctor! (Read 943 times) |
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Superpain
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C*I*L*L my doctor!
« on: Mar 18th, 2004, 12:17pm » |
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Is there a rule about cussing on this board?
I've gotta vent!
I just got off the phone with my new Dr.'s (family practice) assistant after leaving a msg yesterday.
He wants my file from the neurologist I saw 17 years ago...
How the hell am I supposed to even remember who that was!?
I offered to send 20 yrs worth of my files from my family dr in Missouri, that chronicle my bouts with ch, but that is not good enough!
So this F#*%!#* douchebag won't even give me O2 without sending me to a neuro! HIS neuro! Who TF is that!? What TF does he know about ch? Maybe he does, maybe he doesn't know his ass from a hole in the ground...
But I don't have insurance and this doc knows it, but he wants to see me again, $$$, then send me to his neuro $$$$$$$, then MAYBE get O2, or whatever these two ignorant quacks come up with!
I told them I know of better ch doc's here than they do, so what is the point of using his ignorant ass as a middle man!?  Just prescribe me a freaking bottle of O2!!!!
"No. He's not going to prescribe anything till he know's what is going on with me..."
MutherFU$*!#! I just told you what is going on with me!!!!!
For Chrissake! It's oxygen, not oxycontin!
I hate these quack-erasses. You would think that ch would be studied somewhere in that 8 or so yrs that these people spend in school.
So now instead of this guy just being cool and listening to me, because I am the freakin EXPERT on this subject, and giving me a bottle of O2, I have to spend $400 on a specialist to get it.
God I'm pissed.
Thanks for letting me vent.... 
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| « Last Edit: Mar 18th, 2004, 12:20pm by Superpain » |
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Chris
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Melissa
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Quote:| Is there a rule about cussing on this board? |
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Fuck no!! 
You go ahead and vent away! Your doc sounds like an not a very nice person, and I'm so sorry you're having problems. I wish there was some way I could help!! 
 mel
ok, the board will NOT let you type a*shole, but that's ok by me, LOL
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| « Last Edit: Mar 18th, 2004, 12:37pm by Melissa » |
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kissmyglass
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Re: C*I*L*L my doctor!
« Reply #2 on: Mar 18th, 2004, 12:34pm » |
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Actually you only need to spend around $100 down at you local welding supply shop....and you can be sucking O2 today!
Good Luck
Kev
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Superpain
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Re: C*I*L*L my doctor!
« Reply #3 on: Mar 18th, 2004, 12:36pm » |
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It just amazes me the way these people refuse to understand the sense of urgency that we are forced to have...
Especially when it comes to OXYGEN!
It's in the air! Fuck it... I'm gonna go buy a welding kit...
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Chris
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Giovanni
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Re: C*I*L*L my doctor!
« Reply #4 on: Mar 18th, 2004, 1:15pm » |
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Kev gave you good advice...get your own via welding supply. On the internet you should be able to get mask, etc. If you're paying for all the stuff yourself this will be the least expensive way to go.
Good luck,
John
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helpless23
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Re: C*I*L*L my doctor!
« Reply #5 on: Mar 18th, 2004, 1:21pm » |
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I totally understand! We went through the same thing about a month ago. My dr.'s excuse for not writing the O2 script for my husband was because we had children - it was too dangerous. So is CH.
In any case, I don't know about O2 - but if you live in the Tri-State area (NJ/NY/PA) then I can give you the name of a very VERY good neuro that knows A LOT about clusters and won't insist that you have migraines.
HE get's it and is very educated in CH too.
Good luck with the welding kit!
Hugz and much love,
Toni
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Superpain
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Re: C*I*L*L my doctor!
« Reply #6 on: Mar 18th, 2004, 1:52pm » |
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I live in Phoenix, but thanks anyway!
I know of a few good docs here referred on OUCH, but they're all about $400 for the first visit + medical O2 = about $1000...
And sense I just took 2 weeks medical leave from my job... 
I'm all over the welding kit, but need a little more specific info on what I need. Any responses with specifics would be greatly appreciated! PM if need be...
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Chris
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Roxy
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Re: C*I*L*L my doctor!
« Reply #7 on: Mar 18th, 2004, 2:09pm » |
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Quote:During the study, patients will receive the drug and related medical care at no cost. Please contact Lori for any additional information you need, or to discuss logistics. We also appreciate any suggestion you may have.
With best regards,
Marcelo Bigal and Lori Choyce
203-322-2748
The New England Center for Headache |
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Why don't you sign up for the Zomig Clinical trials. Won't cost you anything, and they are using the Mayo Clinic (Dr. Dodick) in Scottsdale for the trial.
I use welding 02, works great.
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Tiannia
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Re: C*I*L*L my doctor!
« Reply #8 on: Mar 18th, 2004, 2:14pm » |
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on Mar 18th, 2004, 1:52pm, Superpain wrote:
I'm all over the welding kit, but need a little more specific info on what I need. Any responses with specifics would be greatly appreciated! PM if need be... |
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Here is the link from the left
http://www.headachesupportgroups.com/oxygen/oxygen.htm
This should get you started.
PF Wishes to you,
Tiannia
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Mac
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Re: C*I*L*L my doctor!
« Reply #9 on: Mar 18th, 2004, 2:34pm » |
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If the "doctor" knew anything about cluster headaches he wouldn't have hesitated prescribing the 02. I could see if it was a med but that's ridiculous. One other thing my American friends. How can you guys afford to be sick? $4oo.oo for a visit? Holy Fuck! 
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jonny
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Buy a medical regulator on ebay, make sure it goes to 15 LPM.
Go to the welding supply joint and buy a 3"X1/4" NPT. Stem (National pipe thread), a CGA-540 02 connecting nut and some teflon tape.
Unscrew the medical connector on the regulator and toss it in the trash, Slide the nut over the stem and tape the stem threads with the teflon tape.....screw it tight into the regulator and your done. slap that sucker on the tank and start sucking.
When you first turn on the tank put some soapy water on all the connections to make sure there are no leaks, Also.....NPT is very important when buying the stem, anything else wont fit.
Happy Sucking ..Dont forget a non-rebreather mask (Medical supply joint)
.......................jonny
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kissmyglass
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Re: C*I*L*L my doctor!
« Reply #11 on: Mar 18th, 2004, 3:14pm » |
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Jonny, instead of all that mumbo jumbo, why not just use a welding regulator? Thats what I do. I have no idea how many LPMs i'm getting but fuck it,it works & my bag is always full..
T, what kind of regulator you use?
Kev
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jonny
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LMAO.....The mumbo jumbo is the long way of saying "Unscrew and then screw in"
Its alot easyier than doing this
...........................jonny
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Tiannia
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Re: C*I*L*L my doctor!
« Reply #13 on: Mar 18th, 2004, 3:51pm » |
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on Mar 18th, 2004, 3:14pm, kissmyglass wrote:
T, what kind of regulator you use?
Kev |
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I dont hun. I'm in the same boat as Superpain. But I also have my husband who will not under any circumstances allow me to use welding O2 because he does not think that it is healthy or safe. So until I can get a doc to prescib it, I am Shit Out of Luck.
Yes, Mac. Doctors here can charge whatevery they want. That is why hea;thcare is such a big issue over here. Like trying to understand why I can get 12 Imitrex tables a month (6 every two weeks at $25 per fill) or I can get 6 Imitrex NS every 25 days at $50 per fill. Neither one is really enough to handle my HA, so I have to wait until it gets to the point that I know it is going to be a K8+ before I use either. Because according to the insurance company and the pharmacy "no one gets more then 6 HA per month". Like I said I must live a month each and every figging day for the past 9 months now. Hell I've lived 22 1/2 CH years already. Damn no wonder I feel old. 
Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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jonny
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on Mar 18th, 2004, 3:51pm, Tiannia wrote: But I also have my husband who will not under any circumstances allow me to use welding O2 because he does not think that it is healthy or safe.
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medical and welding tanks are filled from the same main tank, only diff is that the medical tanks are inspected by the state once a year.
$150 will get you a brand new welding tank, BAMM!!!....All is safe and no rental fees.
....................jonny
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Tiannia
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Re: C*I*L*L my doctor!
« Reply #15 on: Mar 18th, 2004, 4:11pm » |
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on Mar 18th, 2004, 4:04pm, jonny wrote:
medical and welding tanks are filled from the same main tank, only diff is that the medical tanks are inspected by the state once a year.
$150 will get you a brand new welding tank, BAMM!!!....All is safe and no rental fees.
....................jonny
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Jonny,
I know and I've spent 9 months trying to explain it to him and we just end up fighting about it. At the meet and greet here in Vegas, they told me that he was a crappy supporter if he was not willing to get me anything that easily accessable to help with the pain. But it is not worth me losing my family over.  I deal. I've gotten pretty good at it.
- Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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Superpain
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Re: C*I*L*L my doctor!
« Reply #16 on: Mar 18th, 2004, 4:26pm » |
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Coolness!
Thanks for the info guys!
I think I'll take the duct tape/welding regulator route for the short term till I can get the parts for the superpro modified class...
That sucks Tiannia...
Have you thought about taking some cookies or something to your local firestation? If you have one close it might be a good idea to make friends with those guys for the bad ones.
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Chris
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Tiannia
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Re: C*I*L*L my doctor!
« Reply #17 on: Mar 18th, 2004, 4:33pm » |
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on Mar 18th, 2004, 4:26pm, Superpain wrote:That sucks Tiannia...
Have you thought about taking some cookies or something to your local firestation? If you have one close it might be a good idea to make friends with those guys for the bad ones. |
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Actually, that is the good thing. I have a fire station right next to my work. Literally we share a dirveway. So everyone at my work knows that if I get hit really bad to help me get over there. They are really great about it too. I've only had to do it once, but it was a life saver. Told me I could come back whenever I needed.
Good Luck Sup.
PF Wishes
Tia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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kissmyglass
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Re: C*I*L*L my doctor!
« Reply #18 on: Mar 18th, 2004, 4:36pm » |
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Sorry Tia, I meant "T" as in Roxy... But Tia, tell hubby to read Jonnys post...THEY FILL THEM FROM THE SAME TANK!
K
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Tiannia
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Re: C*I*L*L my doctor!
« Reply #19 on: Mar 18th, 2004, 4:45pm » |
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on Mar 18th, 2004, 4:36pm, kissmyglass wrote:Sorry Tia, I meant "T" as in Roxy... But Tia, tell hubby to read Jonnys post...THEY FILL THEM FROM THE SAME TANK!
K
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Actually we are both Traci's I just spell mine differenty.
To be honest, I can t get my husband to even look at these boards. He is there for me when i need him to be, but to deal with this daily he cant handle it so he buries his head in the sand. I cant force him. Everyone on this board gets me through the day to day stuff.
Tia/Tra
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t_h_b
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Re: C*I*L*L my doctor!
« Reply #20 on: Mar 18th, 2004, 6:16pm » |
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Tia, call an oxygen supply company, tell whoever answers the phone that you need for them to explain what Jonny said, and then hand the phone to your husband.
Or maybe give your number to Jonny and ask him to call your husband. I imagine that Jonny can be very convincing over the telephone.
If he won't listen, just go get your own oxygen. You can order the tank and supplies over the internet and the oxygen company can come pick it up and fill it for you if you are quadriplegic or something.
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| « Last Edit: Mar 18th, 2004, 6:17pm by t_h_b » |
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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t_h_b
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Re: C*I*L*L my doctor!
« Reply #21 on: Mar 18th, 2004, 6:22pm » |
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on Mar 18th, 2004, 2:34pm, Mac wrote:| One other thing my American friends. How can you guys afford to be sick? $4oo.oo for a visit? Holy Fuck! |
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That's why only (some) people who work or those who are very poor or fairly wealthy or over 65 years old have insurance and good access to health care in the U.S.
If you don't have insurance you can wait until your condition is life-threatening and then go to the ER and get enough care to make your condition non-life threatening.
On the other hand, we can have elective surgery scheduled and performed within a week or less if insurance or financial resources are present.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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jonny
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on Mar 18th, 2004, 6:16pm, t_h_b wrote:| Tia, call an oxygen supply company, tell whoever answers the phone that you need for them to explain what Jonny said, and then hand the phone to your husband. |
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They wont, Gas suppliers are instructed to never tell the public that the 02 comes from the same main tank. My gas guy only told me cause I have been dealing with him for over ten years, He also converts medical 02 regs for me cause he knows its safe.
I will be glad to talk to anyone on this subject.
............................jonny
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Roxy
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Re: C*I*L*L my doctor!
« Reply #23 on: Mar 18th, 2004, 6:57pm » |
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on Mar 18th, 2004, 3:14pm, kissmyglass wrote:| T, what kind of regulator you use? |
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Hey Kev..... 
I use both regulators. I have a medical reg on my big tank, and a welding reg on my smaller tank that I carry in the truck. I like the welding regulator better....the bag is never empty, and at 15lpm on the medical reg, I can't keep the bag full.
Tia, I agree with jonny. Don't tell the welding company what you are doing, or what you need the parts for. If they know, they are obligated by law to refuse you. I'm like jonny, my place knows what I use it for, but our ranch has dealt with them for over 25 years now, so they let it slide. They know my acetylene only gets filled every couple of months.....
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
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stevegeebe
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Re: C*I*L*L my doctor!
« Reply #24 on: Mar 18th, 2004, 8:45pm » |
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Look...I blazed through this post and all I can say is, "Send this Dr. a fucking invoice!
Steve G
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