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Topic: cluster site (Read 404 times) |
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tsayswhy
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cluster site
« on: Mar 16th, 2004, 3:42pm » |
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Just thought i would share this with you!!
I was just playing eucher on line when my doctor call asked for the site address---must have someone in his office with clusterheadaches. We are a smaller town and nice to see the word is coming out about clusterheadaches, and sending people to the site.
It was just nice to know that all my blabbing to the doc didn't go unnotice  tari
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if you are going my way---i will walk with you
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jonny
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Keep blabbering, Tari 
...............................jonny
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t_h_b
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primary chronic since 1999
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Re: cluster site
« Reply #2 on: Mar 16th, 2004, 6:48pm » |
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That is really great.
Could also be that your MD wants some self-education, too.
You might even consider asking your MD to let the other ClusterHead know that if they want to contact you they can.
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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stevegeebe
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Re: cluster site
« Reply #3 on: Mar 16th, 2004, 8:20pm » |
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Send an invoice DJ.
Steve G
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sandie99
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Re: cluster site
« Reply #4 on: Mar 17th, 2004, 4:02am » |
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That's great!
When I go to see my neuro next week, I think I'll write him a little note with this site's address on it... That'll teach him a thing or two and help other clusterheads.
Best wishes & PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Grandma_Sweet_Boy
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Re: cluster site
« Reply #5 on: Mar 17th, 2004, 4:38pm » |
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Funny thing that - my dr. just called me yesterday and gave me this site to check out. Now that I know I'm onlyl one of thousands of us, I no longer believe I'm losing my mind or imagining this searing pain.
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jonny
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All right, Grandma!!!!!
Nope!, your not alone anymore...there are thousands of us roaming the world and I am King (remember that, might come in handy some day.....LOL )
Welcome aboard, at just about any hour there is somebody here if you need to vent or just talk.
.....................................jonny
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Mac
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Re: cluster site
« Reply #7 on: Mar 17th, 2004, 6:22pm » |
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Welcome aboard Grandma. I see we have another Canuck online. You may want to check out the Canadian clusterhead site at the bottom of this post. We just got it going a couple of months ago. You'll be able to talk "Canadian" and use extra letters like "u" as in flavour or colour or neighbour.It's cool PFDAN Glen
http://www.clusterheadaches.ca
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| « Last Edit: Mar 17th, 2004, 6:28pm by Mac » |
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http://www.clusterheadaches.ca
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tsayswhy
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Re: cluster site
« Reply #8 on: Mar 17th, 2004, 7:46pm » |
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Welcome aboard Grandma
We are from the same home town (maybe you are the one the doctor called about the other day asking for the sites address) If we share the same doctor please help me educate him on cluster 2 is better then 1.
You will find everything you need right here and all the support you need. please feel free to email me
tari
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if you are going my way---i will walk with you
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Grandma_Sweet_Boy
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Re: cluster site
« Reply #9 on: Mar 19th, 2004, 9:10pm » |
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Thanks to all of you for your support. Somehow this monster doesn't seem to overbearing knowing that it's shared with so many people. Special thanks to Tari for providing the information to the dr. so he could pass it along! I promise to educate him and in fact told the Dr. at Emerg about this the night before last and he promised to look it up. I've told my own Dr. to continue to get the message out there.
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Charlie
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Re: cluster site
« Reply #10 on: Mar 19th, 2004, 9:42pm » |
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Just got the gist of this thread.
Damn that's cool and welcome aboard Granny.
Nice going kids.
Charlie
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cootie
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Re: cluster site
« Reply #11 on: Mar 20th, 2004, 12:51am » |
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Hi Grandma boy.......you found a new home now Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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