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Linda_Howell
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If you HAD to: my poll
« on: Mar 10th, 2004, 5:33pm » |
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If you HAD to have a CH around someome: who would it be? Notice I said HAD to have.
Aside from wife/husband..who, " here "would you be comfortable around...
(This goes along with Elaines "cluster angels post) but I wanted to get you guys thinking....I have mine and they are several, but I want to hear your's first.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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thomas
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Re: If you HAD to: my poll
« Reply #1 on: Mar 10th, 2004, 5:34pm » |
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Anybody that has ever posted on this board that is not a snake oil salesman  why people from this site? Because they would know to leave me the hell alone.
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| « Last Edit: Mar 10th, 2004, 5:54pm by thomas » |
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echo
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Re: If you HAD to: my poll
« Reply #2 on: Mar 10th, 2004, 5:35pm » |
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Jonny, slammy, cathi04, cathy, E, One Eye, Fubar, Big Dan, Thomas, Pep, Cat, Woobie,You -- to name a few
Damn my family is getting large.
No particular order,
A fellow clusterhead or seasoned supporter would know enough to leave me alone, knowing that if I needed them -- I would ask.
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| « Last Edit: Mar 11th, 2004, 4:40pm by echo » |
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Slammy
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Re: If you HAD to: my poll
« Reply #3 on: Mar 10th, 2004, 5:45pm » |
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A Tall, long-legged naked Blonde chick with Imitrex statdose pens and a big bottle of frosty 02 with a jet regulator! 
well, you asked! 
Slammy 
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| « Last Edit: Mar 10th, 2004, 5:45pm by Slammy » |
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That's it! Everyone out of the pool!
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Linda_Howell
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Re: If you HAD to: my poll
« Reply #4 on: Mar 10th, 2004, 5:45pm » |
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ONE of mine would be Roxy.
(Because she'd be going....Aw shit Linda. Suck it up) lmao
Linda
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Virginia
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Re: If you HAD to: my poll
« Reply #5 on: Mar 10th, 2004, 5:46pm » |
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yep, I agree with Echo. Another clusterhead.
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The Clusterhead formerly known as 9erfan.
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Linda_Howell
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Re: If you HAD to: my poll
« Reply #6 on: Mar 10th, 2004, 5:50pm » |
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knew I could get a "slammy response" from you LOL(at least I can attest to the last 4)
No No No ....I mean who. and Why?
Linda
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Charlie
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Re: If you HAD to: my poll
« Reply #7 on: Mar 10th, 2004, 5:51pm » |
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First choice here? You're on the short list Linda
Anyone else: My best friend Tom who is retired teacher and has seen me and others deal with some debilitatiing stuff. He pays attention but lets me alone.
Interesting Linda.
Charle
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Melissa
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Re: If you HAD to: my poll
« Reply #8 on: Mar 10th, 2004, 6:02pm » |
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If I HAD no other choice and couldn't be by myself, then out of the people who currently frequent ch.com it'd have to be JudyW, Mast, Bill & Deb L., LindaH, Dave Emond and Bonnie W...
I'm sure there will be more to come. 
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Jayne
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Re: If you HAD to: my poll
« Reply #9 on: Mar 10th, 2004, 6:04pm » |
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I'd have to say any of yoos guys. In fact I think the only person (another clusterhead) I had one in front of was Deej. Even then I went in another room to be alone.
It has alway been my luck to have attacks in front of the most ignorant people. I have even hidden in my closet at home with my o2 tank when people were over.
I once had a guy over (like you do) and he was err...staying the night. He did not know about my condition. Well I got slammed at 1.30 am. I crept out of bed and hid in my closet with the tank. I am in the dark, naked in my closet huffing away and rocking...next thing I hear was my errr. "date" from the bed shouting..."Jayne...what are you doing?"
"Re- arranging my shoes!!!" I yell back
He never asked me out on another "date" after that
Some people are just so sensitive
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BobG
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Re: If you HAD to: my poll
« Reply #10 on: Mar 10th, 2004, 6:04pm » |
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Anyone that has the sense to leave me alone. I would want the person that will just get me a bag of ice and then walk away. Someone that won't try to talk to me or touch me.
That could probably be you Linda.
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Linda_Howell
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Re: If you HAD to: my poll
« Reply #11 on: Mar 10th, 2004, 6:14pm » |
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Thank you Bob.
Another person I'd want to be around if I HAD to....
Would be Steve. (KOP) Not only is he the nicest guy in the world, but when I got hit in front of him...it was like we were in sync. He knew the "LOOK" He knew what to do. PERFECT. It felt O.K. if you know what I mean.
Linda
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Roxy
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Re: If you HAD to: my poll
« Reply #12 on: Mar 10th, 2004, 6:33pm » |
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on Mar 10th, 2004, 5:45pm, Linda_Howell wrote:ONE of mine would be Roxy.
(Because she'd be going....Aw shit Linda. Suck it up) lmao |
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....and, then you'd laugh....and, then someone would say something about sex....and, we'd both smile through the tears.... 
The two who have actually sat with me through a god awful number of hits.....Deej and Cat. They never say a word...hardly...lol. And Deej lets you sqeeze his fingers as hard as you want.
Linda was the first to ever make me laugh while getting hit, and Michelle sat through the long, lonely nightime hits. This was, of course, after I rocked her out of the top bunk.....
Modified after I reread your post Linda....HAD to get hit in front of.......that's easy.
DJ, Cat, Linda, Mast, Ted
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| « Last Edit: Mar 10th, 2004, 7:39pm by Roxy » |
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catlind
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Re: If you HAD to: my poll
« Reply #13 on: Mar 10th, 2004, 6:50pm » |
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I still am not comfortable in the presence of others, it's a thing that's hard to explain. I find I am always fighting an internal battle of control, wanting desperately to scream and start wildly swinging or throwing things and just generally go beserk. So when people are around, it makes me that much more aware of the need to control that sensation.
Outside of that feeling however, my husband of course is the number one, he even understands the wild look of panic in my eyes.
Thelma...err Tracey is very easy to have with me, and Michelle (Mast) she let me squeeze her hand as hard as I wanted. Those two could be with me anywhere anytime during a hit and I would have no fears. Even if I did lose control, in the end I know they would understand.
DJ saw get me hit in his truck while were driving to Dallas, I was mortified. I hate to have anyone see me cry for any reason, and that was almost harder to take than anything, because I know he understands what it's like to go through CH. Poor bugger ... I cranked the air conditioning and damn near froze him out too hehe - and he never said a word.
I don't remember who else was even in the room with me in NY at the convention when I got hit and couldn't get away.
BillyJ, he is a hero. He rescued me when I was locked out of the room and had no O2 and no meds, he not only helped me get to them, he sat with me and just his silent presence was very very calming, I think of everyone, he is the only person who has ever had that affect on me.
I know all clusterheads understand, but it's just a thing with me. There's no comfort level with CH period for me, so I can't quite ever fully find a comfort level with someone around me during an attack.
Cat
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jonny
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Re: If you HAD to: my poll
« Reply #14 on: Mar 10th, 2004, 7:15pm » |
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Me.
I couldnt trust on anyone not pissing me off, I wouldnt want to be responsible for their health......in nearly three decades noone has been near me when im cranking.
Thats not true....Six months into my marrige the wife asked me if I was ok as I was raging Kip 10.....Full size cooler half full went straight through a wall (Not at her)....Back then is when I had no diagnosis and no meds, 4 to 6 times a day 10's.....I was a fucking monster back then.
Its a fucking shame what CH will turn some into and the medical community dont even give a shit!!
........................jonny
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Cerberus
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Re: If you HAD to: my poll
« Reply #15 on: Mar 10th, 2004, 7:54pm » |
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ummmmm........My doctor.
Ramon
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Kevin_M
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Re: If you HAD to: my poll
« Reply #16 on: Mar 10th, 2004, 8:35pm » |
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on Mar 10th, 2004, 7:15pm, jonny wrote:Back then is when I had no diagnosis and no meds, 4 to 6 times a day 10's
........................jonny |
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I often wondered, people have talked about going through them with no meds...and I just think HOW?
I've suffered long sometimes waiting for meds to kick in but that is completely different, you know it will end, and there are many times with meds, you can catch it at the onset and be spared the torture.
Insanity!!! You bet.
I forgot about my first year when I would have them, as of yet diagnosed, and people would not understand headaches being that severe. They could not relate and thought I was just being a big baby. I knew better
though. Took a while to find the explaination but when I did, identifying the problem was relieving, I was not wrong, these were not just headaches. Some ventured to say maybe migraines. I thought, "not like this." I had seen people with migraines. Migraines are bad but I can be a tough bastard and take lots of pain but this was totally taxing my sanity and had taken me past the extent of what I thought I could bear. Nobody seemed to understand the meaning of UNBEARABLE damnit. Take it to that limit, and then bury the dial past that.
Anyway, I prefer to bear them out alone, since I have for so long. I am sure I could have them hit with most any of you here because you've all danced, and
whatever I have to do to bear them, I am sure is understandable to anyone here.
I have not met personally those here so I can't choose one or a couple. But I am sure the empathy would be there, whether spoken or unspoken. I know you all are familiar with the experience and I would of course do what I could for myself to fight it. I am sure all or any of you would be behind me and I would feel that.
I was going to comment on Jayne's naked in the closet but I'll bite my tongue.
"Remember not only to say the right thing at the right time, but far more difficult still, to leave unsaid the wrong thing at the tempting moment."
- Benjamin Franklin
So, I guess put me down as an "undecided" Linda.
Kevin M
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Mr. Happy
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Re: If you HAD to: my poll
« Reply #17 on: Mar 10th, 2004, 8:47pm » |
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Quote:| who, " here "would you be comfortable around... |
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Damnit Lin.........I can't do "comfortable" and "hit" in the same sentence.
Can only remark on the folks I've met so far. Considering the NY DevCon, DavCon, and the PaNJ meet............it'd be any one of those filthy CHeads. No huhu. `Cept Jonny. He'd probably spend the whole hit trying to make me pick up that bar of soap from the floor.
Titties would be a plus factor,
RJ
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Tim_w
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Re: If you HAD to: my poll
« Reply #18 on: Mar 10th, 2004, 8:49pm » |
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Linda
Besides my friend Patti
First pick would be Linda And JudyW!!!
Dont need to say why 
TimW Happy Pappy
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ShariRae
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Re: If you HAD to: my poll
« Reply #19 on: Mar 10th, 2004, 9:55pm » |
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Mine would be nancyc (smiles),mast & jonny. Although I would opt to be alone..any one of em would know what to do..and more importantly..what NOT to do
Huggs
Shari
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Roxy
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Re: If you HAD to: my poll
« Reply #20 on: Mar 10th, 2004, 10:04pm » |
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I do have to add two other wonderful guys to my list.
The first time I got hit at the convention, DJ and jonny were there. The 02 didn't even have the regulator on yet. I turned and looked at jonny, and just said...."jonny", and he came running and fixed it up for me when I didn't even know where I was at that point. I can still remember looking down and seeing two hands holding me. One with no tattoo visible, and another with tattoos. Talk about two sweeties.
And, Mr. Happy, who grabbed me by the earlobe in Iowa, and drug my ass off to the 02.....he knew when I needed to go....I was going to wait...LOL. He's always been much smarter than me......
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
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fubar
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Re: If you HAD to: my poll
« Reply #21 on: Mar 10th, 2004, 11:22pm » |
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echo, I'm so humbled to be mentioned as a person you'd chose to be around during a hit. the impact of that was nothing I expected. reading the other names, I was like 'uh huh, of course, yes I agree, Oh my God... that's MY name!'. a very odd and good feeling.
I would chose anybody that would respect my desperate plea to simply be away from me as fast as possible for a long as it takes. I feel worse knowing people are watching, probably desperate to help and completely helpless. I feel frustration at not being able to control myself, my expressions, my tears. I grow angry at the force that cripples me with no mercy. It is NOT something I want to go through with someone sitting there trying to help.
Thank you echo. you too V.
-Shawn
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Callico
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Re: If you HAD to: my poll
« Reply #22 on: Mar 11th, 2004, 12:06am » |
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You are asking a lot. I have only two other than you all here that I have grown to love the last couple of years and especially the ones at Davcon 03 who sat through a light one with me and didn't bat an eye (what an awesome experience), but just kept on with the conversation.
There is a young man from my youth group at church who is preparing for the ministry. Theon participated in my daughter's wedding last May, and when I got hit at the rehearsal dinner he went out with me and just stood guard and kept anyone else from bothering me. He didn't say a word, but his presence was enough. Also, my daughter's maid of honor is an EMT. My daughter told her about my condition, so she read up on it and made herself available during all of the festivities. She also had the sense to leave me alone, but brought a box of kleenex and kept others away. I hope though that I never have to put another person through that again. I know she had nightmares from the experience that night. They are two awesome kids that have honorary clusterhead credentials in my book.
Jerry
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kissmyglass
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Re: If you HAD to: my poll
« Reply #23 on: Mar 11th, 2004, 8:22am » |
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No One..not even another Clusterhead...I disappeared a lot in NY.....Have to be alone.
I must say after seeing Roxy & Linda get hit, It is much easier being a Clusterhead than a supporter...
Kev
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Mr.YL
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Re: If you HAD to: my poll
« Reply #24 on: Mar 11th, 2004, 10:15am » |
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No one... My dog Princess...
ok...Mr.YL
will halfto keep thinkin about that angel.I got a few...
Dave E, been to mountains on the bends? Love those rocky mountains.
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keep livin clean...
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