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Topic: Cure (Read 323 times) |
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bobkip
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Had 2 replacement O2 tanks delivered today by the gal who is the regional mgr for the supply company. She has more than a passing interest in ch since her 18 year old son has clusterlike symptoms even tho his doc has diagnosed him with migraines. (he gets almost immediate relief from O2)
Anyway, we were talking and she said "I don't want to get your hopes up but there is a possible cure coming". Seems there is a bio-chemist from St. Louis who's wife is a sufferer and has developed a drug to fix it. He would'n go into any detaill but said trials, with FDA approval, will be starting in about 3 months. I don't know how far back in my head my eyes had rolled but she knew I didn't beleive it. But, ya never know.
Uh, flamers to the right, hopefuls to the left.
Any volunteers?
Kip
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pubgirl
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Kip
Didn't she give any hint of even what kind of drug it was?
Wendy
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Tiannia
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Life does not apologies......
 
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Re: Cure
« Reply #2 on: Mar 5th, 2004, 4:31pm » |
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Well the more pople in the field who have to deal with this either themselves or with a family member are our biggest hope of research. Because people who are disinterested 3rd parties are never going to take the time to do it.
Tia
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| « Last Edit: Mar 5th, 2004, 4:31pm by Tiannia » |
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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jonny
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on Mar 5th, 2004, 4:22pm, bobkip wrote:| Uh, flamers to the right, hopefuls to the left. |
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ROTFFLMMFAO!!!!!....Kip 
..........................jonny
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Linda_Howell
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Re: Cure
« Reply #4 on: Mar 5th, 2004, 4:49pm » |
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"Developed a drug to fix it" ??
Kinda like when my electrical wiring shorts out and someone "fixes" it?
Not flaming or hopeful Bob. Just don't like the way that was worded by a BIO CHEMIST.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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UN_SOLVED
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I need a fully-automatic Imitrex injector !!
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Re: Cure
« Reply #5 on: Mar 5th, 2004, 5:42pm » |
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I'll take it ... I'll take it !!
Your cluster guineapig
Unsolved
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I'm STILL alive ?
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bobkip
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Re: Cure
« Reply #6 on: Mar 5th, 2004, 7:11pm » |
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Linda,
Those were my words. Hell, I can't remember everything, I'm old ya know. lol
Kip
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eyes_afire
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Re: Cure
« Reply #7 on: Mar 5th, 2004, 7:34pm » |
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Currently there are exactly 2 studies for cluster headache on the FDA Clinical Trials website. Both of them have to do with that nose burning stuff. We can always check back in 3 months I guess 
http://www.clinicaltrials.gov/ct
The only other significant thing I found was a new anti-convulsant which may have some hope in treating M.... er M..... um....M....ah.....
You know what I mean... that other headache. 
http://www.clinicaltrials.gov/ct/show/NCT00055484?order=1
But it's only in Phase II. And, of course, cluster headaches were excluded from the trials.
Where's Aricept? 
--- Steve
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Still around... in a brand new world now...
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Lizzie2
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Re: Cure
« Reply #8 on: Mar 5th, 2004, 11:55pm » |
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Wasn't MHNI going to be doing some research on clusters? I heard that from someone not too long ago.
I've never qualified for the M trials either, eyes...a never ending one doesn't get ya in the door, and neither does clusters!
bites the big one!
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ccbiggsoo7
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Re: Cure
« Reply #9 on: Mar 8th, 2004, 2:00am » |
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give me his name, I'm from St. Louis I will hunt the nerd down and raid his home lab. Chris
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chris
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thomas
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I'm in, I'll volunteer to be poked and prodded. lol
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