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Topic: YES!!! FINALLY! NEW DOC EXCELLENT!!! (Read 315 times) |
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helpless23
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YES!!! FINALLY! NEW DOC EXCELLENT!!!
« on: Mar 2nd, 2004, 10:25am » |
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Hi guys!
Very excited! We went to the new Doc today! WHAT A GUY!!!! KNEW HIS STUFF BOY! Gave hubby Verapimil. Took him off Indomethacin, said that it's not effective in treating CH at all! Wants to see him back in 2 months too, to see how his BP is doing with the meds!
We are both very excited and happy! This guy seems to know what he's talking about. For the first time since the CH's came back, this is the FIRST Dr. that we didn't have to fight with to get the right diagnosis!
Much love,
Toni
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thomas
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #1 on: Mar 2nd, 2004, 10:56am » |
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Great news, Toni, thanks for the update.
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Melissa
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #2 on: Mar 2nd, 2004, 10:57am » |
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What wonderful news Toni!  I'm very happy that your hubby has a great doc to support him. He is very lucky to have him!
 mel
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helpless23
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #3 on: Mar 2nd, 2004, 10:57am » |
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Hi Thomas!
*hugz* I'm totally pumped up! 357Mag put it best. It's like liberation! Maybe I'll join him in Washington after all. 
Much Love,
Toni
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helpless23
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #4 on: Mar 2nd, 2004, 11:00am » |
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HI Mel!
I know! I've only been dealing with Ken and this CH for a few months, but I'm sure all of you know it seems like a lifetime of fighting with Doc's from giving the wrong diagnosis down to the Insurance Companies.
I'll tell you one thing, this doc is NOT afraid to write a Letter Of Medical Necessity!
Oh, and thanks to Bob_P for giving me that information. I am greatful.
Much Love,
Toni
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amen
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I love YaBB 1G - SP1!
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #5 on: Mar 2nd, 2004, 12:43pm » |
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Wow!! That's great! Second Good news post I read in a row.
Andrea
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bobkip
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #6 on: Mar 2nd, 2004, 1:12pm » |
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Great news Toni. Now what can I do to get him to move to Florida? lol
Kip
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helpless23
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #7 on: Mar 2nd, 2004, 1:39pm » |
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Hey Kip!
Gee, I don't know. This doc cares though. It's rare that you find a doc who is true to the Dr's oath!
I'll ask if he a brother in Florida for you! 
Much Love,
Toni
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Bob P
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Shut up Bob!
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #8 on: Mar 2nd, 2004, 2:16pm » |
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Hey "Helpless",
Good for you and even better for Ken. Hope the verap works well. Make sure to keep uping the dose until, as Doc Goadsby says, the headaches stop or side effects make him stop taking more. Doc Robinson, in Vancouver, said he had people as high as 1080mg/day of the verap.
Good luck.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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ZAIRA
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #9 on: Mar 2nd, 2004, 2:31pm » |
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Wonderful news.... it's every day more difficult to find a doctor who understands you... 
Wishing you PFDAN.... Zaira 
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Love yourself, Love others, Love often, Forever!
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Charlie
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #10 on: Mar 2nd, 2004, 5:24pm » |
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Great post and good for you and yours.
Nice to see that March is coming in like a lamb for ya and that you found a MD that pays attention.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Tiannia
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #11 on: Mar 2nd, 2004, 5:38pm » |
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Great news. Now if we could just get him to talk to the rest of the doctors in the Country. hehe
Tiannia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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jonny
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #12 on: Mar 2nd, 2004, 5:41pm » |
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Thats great news, Toni.....finding the right doc is one in a million.
I got lucky too, My insurance changed back to where the Neuro that diagnosed me is, he gave me anything I wanted to try, was my age, had a harley and a vette....plus he didnt like his wife much.......We had lots in common, visits would last 40 mins just shooting the shit......ROTFFLMMFAO
When it comes to docs all is right in this dudes world
.............................jonny
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| « Last Edit: Mar 2nd, 2004, 7:51pm by jonny » |
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Cerberus
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #13 on: Mar 2nd, 2004, 7:42pm » |
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Is it just me...(probably) or are more people finding good doctors that know their stuff? AND is it a result of US and OUCH that it is happening?.... 
The good doc theme seems to be spreading
Either way....
FUCKINEH! WTG helpless!
Ramon
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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helpless23
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Re: YES!!! FINALLY! NEW DOC EXCELLENT!!!
« Reply #14 on: Mar 3rd, 2004, 6:54pm » |
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Yeah!
Ken is on 480 a day. First doses are a bit weird, and different pills, but only for the first 6 days. I'll keep you posted. I know the Indomethacin has been giving him wicked shadows - but no CH's full blown. I don't know if that's good or bad. According to him, the shadows are annoying. But doc said that Indo is NOT the proper medication to treat CH. Right then and there I knew he knew his shit!
Again, what a relief!!!!
I don't know what's working here - but as long as there are at least some Doc's with the knowledge of clusters like the guy I found - then there is always hope.
Zaira - Love your name and love your pictures! I'm Italian too and love to sing! 
Bob - What can I say? I hope your sense of humor is a lot better than your sense of spelling.  Chill down, my sense of humor is GREAT! (Trying to make peace here). Smile Bob.
Jonny - Glad to hear that things worked out for you too! And you get to shoot the shit with someone.
Charlie - Thank you. PFDAN's to you too.
Tianna - I was shocked too when I saw how smart and NICE he was. I'll talk to him about the rest of the country. *wink* ya never know! 
Ramon - Love your ending. FUCKINEH is right!
And everyone else who I didn't get - or didn't respond to, THANK YOU ALL SO MUCH FOR BEING SO WONDERFUL!!!! I love this place!!!!
Much Love,
Toni
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