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Topic: Hi All! (Read 261 times) |
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joyce_a
New Board Newbie
Make It Go Away!!!!!
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Posts: 6
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I found this site the other day while I was looking for some information on my new gift (yeah right!).
For the longest time I thought that I might have a brain tumor but found out that it was CH..
I thought that I would just check in and say howdy and that I am doing ok (for right now). I am going to the doctors today and am wondering what he is going to say this week.....
Take care all!
*joyce
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thomas
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Be sure to print off some info on the left. Good luck.
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echo
CH.com Alumnus
New Board Hall of Famer
Chronic and still alive --- I Win!
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Posts: 4214
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Re: Hi All!
« Reply #2 on: Feb 26th, 2004, 10:35am » |
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Gald you were able to confirm it was not a tumor. Sorry that you have joined the ranks of "clusterhead".
How long have you had these little jewels? Are you chronic or episodic.?
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
Proud Dad of a US Marine, and a former Marine turned Police Officer.
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joyce_a
New Board Newbie
Make It Go Away!!!!!
Gender:
Posts: 6
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Re: Hi All!
« Reply #3 on: Feb 26th, 2004, 10:58am » |
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Hi Echo!
I have only been having these gems for a few months..
Are you chronic or episodic.? - not sure...
I haven't had one (Thank God!) for several weeks..
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ZAIRA
New Board Hall of Famer
Brave to Stand !!!
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Posts: 1577
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Re: Hi All!
« Reply #4 on: Feb 26th, 2004, 11:57am » |
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Good Morning  and Welcome!
Glad you found this site.
Now you have somebody to talk to that understands what is going on in your head. 
Stay with us....
What do you take for your CH?
Good luck, Zaira 
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Love yourself, Love others, Love often, Forever!
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Giovanni
New Board Hall of Famer
I love YaBB 1G - SP1!
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Posts: 764
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Re: Hi All!
« Reply #5 on: Feb 26th, 2004, 12:05pm » |
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Hello Joyce,
Welcome! I've learned a lot from this site and you will too. Knowledge is power with these things. Best of luck to you.
John
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joyce_a
New Board Newbie
Make It Go Away!!!!!
Gender:
Posts: 6
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Re: Hi All!
« Reply #6 on: Feb 26th, 2004, 1:27pm » |
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Hi Zaira and thanks for the welcome.. It is a nice feeling to know that there are folks out there that understand what I am going through.
I live with both of my daughters and my 7 year old granddaughter.. They listen to me when I tell them that I am having a pain all on the right side of my head but that is just about as far as it goes.. Until you experience the pain first hand I don't think that anyone will truly understand what we are going through..
I take perkaset(sorry about the spelling) but it makes me sick for 24 to 48 hours after taking it.. Yes I take it with food but that doesn't seem to help...
I haven't had a CH for about a week and I am ever so thankful for that but I know in the back of my mind that I never know or will know when the next one will hit..
I do intend to come here and check out how folks are and what is up..
Take care!
*joyce
Thanks John.. The best to all that come here so that they are not alone....
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pubgirl
Guest
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Joyce
So long as there is CH.com, you're never alone!
Might sometimes wish people would shut up, but never really truly. This place has saved a lot of people from a lot of things......doctors mainly
Wendy
Percocet? Isn't that a painkiller? They don't work for CH
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joyce_a
New Board Newbie
Make It Go Away!!!!!
Gender:
Posts: 6
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Re: Hi All!
« Reply #8 on: Feb 26th, 2004, 3:10pm » |
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The percocet takes the pain away but leaves me very neausu.(geesh i can't spell today)..
I got them from my primary doctor before I went to see the Neraolgist.. Maybe I should ask him if there is something else that I can take..
Well I have a 4:30 appointment to find out how the MRI went... I sure hope that they didn't find anything..
I will check back in tomorrow to see whats happening!
Take care !!
*joyce
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r_headache
New Board Junior
Air Force Rocks!!
Gender:
Posts: 79
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Re: Hi All!
« Reply #9 on: Feb 26th, 2004, 3:10pm » |
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joyce, first of all you need to get to a nero and get some REAL headache meds, get off of the percs ASAP, they could be giving you rebound CH. I was given percs, feoricet and a long list of other meds until I went to see a nero and she gave me the good stuff, Imatrex, Frova, Verapamil, etc. Everyone of us is different and some meds work great for some but not for others. Work with your nero and you may get lucky on the first try, if not, try and try again, just don't give up. Pain free days going out to you!
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