Author |
Topic: Cluster side TMJ headaches=Kip 4-6. Fooled me. (Read 593 times) |
|
SommelierCH
New Board Hall of Famer
I’m awed by the amazing resiliency that we possess
Gender: 
Posts: 606
|
 |
Cluster side TMJ headaches=Kip 4-6. Fooled me.
« on: Feb 22nd, 2004, 8:45am » |
 Quote  Modify
|
It sure seemed like a Cluster. It woke me up the first time a week ago, medium intense pain, my Cluster side and pressure on my eye. Freaked me out, I knew I should have another 6 months till next cycle. Went to the O2 tank to head it off… didn’t touch it, but it didn’t get worse. Fully awake, I could tell it wasn’t a Cluster. The pressure on the right eye was from the side; between the temple, not behind the eye. The pain is not a stabbing point of singularity, it spread from my jaw to my scalp, on the outside not the inside. It hits every night during deep REM, just like a Cluster. So far, four 375mg aspirin seems to kill it (at least enough for this ClusterHead to go back to sleep, it’s no Kip-10) with a Maxalt MLT 10mg thrown in a couple of times, just in case.
The pain is so eerily similar, that there must be many TMJ (Temporo-Mandibular Joint) sufferers reading this board and wondering why O2 doesn’t work for them. At the same time there must be many ClusterHeads being given meds for TMJ that won’t touch the ClusterPain. Clusters are a vascular headache; TMJ’s are a muscle contraction (tension) headache. The pain is very similar, but the relief is very different.
TMJ & FACIAL PAIN CENTER
Wesley E. Shankland, II, D.D.S., M.S., Ph.D., Director
“The pain of muscle contraction (tension) headache usually starts in the forehead, temples or back of the head and spreads over the neck and shoulders. Sleeping difficulties are common: waking without feeling rested, restlessness and trouble getting to sleep. Those who clench or grind their teeth also develop muscle contraction headaches, especially during times of stress or during the night. When asking a patient to describe their pain, I often hear such descriptions as, tightness, drawing, band-like, or vise-like. Muscle contraction pain may last for hours, days, weeks or even months.”
After experiencing both Cluster and TMJ headaches, I would say to you: if the pain is not BEHIND your eye and Oxygen does not give you any relief; you should re-evaluate. It fooled me.
Peace,
David J.
P.S. Any suggestions for faster or longer lasting or preventive TMJ pain relief would be greatly appreciated.
|
|
 IP Logged |
Wine is a little like love. When the right one comes along, you know it!
|
|
|
Woobie
CH.com Alumnus
New Board Hall of Famer
I luv you guys!!!!!!!!
Gender: 
Posts: 3800
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #1 on: Feb 22nd, 2004, 9:19am » |
Quote Modify
|
Well HEY David J -
how you been??
sorry bout yer head - ch - tmj - it's all pain.
tina
|
|
IP Logged |
|
|
|
SommelierCH
New Board Hall of Famer
I’m awed by the amazing resiliency that we possess
Gender:
Posts: 606
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #2 on: Feb 22nd, 2004, 10:05am » |
Quote Modify
|
Well Hey, Tina,
I had to sit out for a while. A run of strange luck, ending with a spider bite that infected some deeper tissue with Staph, traveled to my lymph system, sent me to the hospital and knocked me out of work. I’m so far behind, I’d vote for an amendment to ensure every marathon runner was allowed 24hrs. to finish the course.
This is what is causing my TMJ, I presume…Stress. I think I’m clinching and grinding my jaw during REM. Just stressed to the max. Fuck, I don’t even have kids. My hat’s off to all of you who deal with much more than this. Believe me, I know that I sound like a baby.
I’ve never had a headache other than Clusters. Now I know what real people go through. My sympathies for the headache sufferers around the world, without being able to compare it to a CH Kip-10, it must be frightening.
I’m catching up on the bills, and got the DSL connected again.
Love you kids,
David J.
|
|
IP Logged |
Wine is a little like love. When the right one comes along, you know it!
|
|
|
Renee
CH.com Alumnus
New Board Hall of Famer
May we all find some pf time! Is it summer yet?
Gender:
Posts: 1060
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #3 on: Feb 22nd, 2004, 10:15am » |
Quote Modify
|
David,
Do you have a TMJ splint that you wear while sleeping?
TMJ was my first diagnosis 7 years ago. While the diagnosis was correct, the kip 10's continued and finally about 6 months ago I got a correct diagnosis of ch and the meds are helping.
You can also place your tongue at the roof of your mouth just where your top teeth meet the roof of your mouth and PUSH hard with your tongue for about a minute. This will relax the muscles that spasm due to TMJ. If you don't have a splint, get one from a TMJ specialist, not just a regular dentist.
good luck
renee
|
|
IP Logged |
23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
|
|
|
TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
Gender:
Posts: 3201
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #4 on: Feb 22nd, 2004, 10:36pm » |
Quote Modify
|
David J............
Damn, it's good to see ya, sweetie.
Sorry about your troubles. You sure have been missed around here!
Hope things get better for ya real quick! 
Love and pf vibes,
Jean
|
|
IP Logged |
How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
|
|
|
jonny
Guest
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #5 on: Feb 23rd, 2004, 6:56pm » |
Quote Modify
 Remove
|
Hang in there, David dude!!!!
......................................jonny
|
|
IP Logged |
|
|
|
Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
Gender:
Posts: 14968
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #6 on: Feb 23rd, 2004, 7:39pm » |
Quote Modify
|
Great hearing from you but damn.......you've been through the mill.
Keep fighting David.
Vibes here
Charlie
|
|
IP Logged |
There is nothing more satisfying than being shot at without result---Winston Churchill
|
|
|
SommelierCH
New Board Hall of Famer
I’m awed by the amazing resiliency that we possess
Gender:
Posts: 606
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #7 on: Feb 25th, 2004, 7:18am » |
Quote Modify
|
Thanks Gals and Guys,,
It’s amazing how a good word from y’all can lift a troubled spirit. Never stop, my friends, never stop!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
Renee, that’s the stuff I was looking for. And to think, that my dad (a dentist) thought that sucking my thumb caused an over-bite. Clue me in on the splint thingie. Would it help with REM teeth grinding?
TxB….asslady, I see on the Message Board under your name that you are now a “Hell of a Farmer”! You go girl!! Fish, grits…who cares? As long as you gets your hands dirty.
…..jonny, you have been my inspiration from the git-go! No matter what I am going through, you are my reality check. I could never, thank you enough, for being here, day-in and day-out for all of us.
Charlie…Charlie…Charlie…You continue to amaze me. What is it, 14 years out of cycle? And still, you have the time to give me a good word and to send me your good vibes! I love you man. You are a beautiful person.
Now where did you hide my oar?…………………….…..jonny?
David J.
|
|
IP Logged |
Wine is a little like love. When the right one comes along, you know it!
|
|
|
rob_d
New Board Newbie
I love YaBB 1G - SP1!
Posts: 9
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #8 on: Feb 25th, 2004, 10:01am » |
Quote Modify
|
That is the strangest thing...I have had the same things...been in cycle 1 month and starting 1 week ago getting what I thought were mild CH, but in fact they weren't- and 3 tylenol's helped so we know they certainly aren't CH...same as yours though...the same throbbing sensation as the real thing.
funny how it is good news when we get what normal people would take 3 days off work for!!
|
|
IP Logged |
|
|
|
Belle
New Board Veteran
Kiss Me You Fool!
Gender:
Posts: 146
|
|
Re: Cluster side TMJ headaches=Kip 4-6. Fooled me.
« Reply #9 on: Feb 25th, 2004, 2:59pm » |
Quote Modify
|
I am currently awaiting an appointment for an MRI because the docs believe that I have TMJ as well as the clusters. And you were right about the kid thing. I have 2 kis and run a home day care and it's not easy when in a cycle. Hope your pain goes away soon.
Belle
|
|
IP Logged |
Take the time to stop and smell the roses!
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss