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Topic: Who is the youngest clusterhead? (Read 860 times) |
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Lissa
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Who is the youngest clusterhead?
« on: Feb 4th, 2004, 10:47am » |
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I'm 24. 
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Episodic cluster survivor since 1995 at age 16.
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thomas
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Re: Who is the youngest clusterhead?
« Reply #1 on: Feb 4th, 2004, 10:57am » |
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kid
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ZAIRA
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Re: Who is the youngest clusterhead?
« Reply #2 on: Feb 4th, 2004, 11:00am » |
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I am 25 
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thomas
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Re: Who is the youngest clusterhead?
« Reply #3 on: Feb 4th, 2004, 11:11am » |
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I think poor little Carmerooski is one of the youngest..... 
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Margi
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Re: Who is the youngest clusterhead?
« Reply #4 on: Feb 4th, 2004, 11:48am » |
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Sadly, we've had children younger than Cam talked about here. Shelley's little man was not much older than 3 when she first arrived here.
The saddest CH story I ever heard was of the multiply handicapped child with CH (I forget how old he was now, but not very...) - his dad told us that he had no vision, hearing or speech and also suffered from cerebral palsy. They were able to determine that the "seizures" he was having were, indeed, cluster headache. I'm sure that little guy wasn't much past 6.
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thomas
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Re: Who is the youngest clusterhead?
« Reply #5 on: Feb 4th, 2004, 11:50am » |
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on Feb 4th, 2004, 11:48am, Margi wrote:Sadly, we've had children younger than Cam talked about here. Shelley's little man was not much older than 3 when she first arrived here.
The saddest CH story I ever heard was of the multiply handicapped child with CH (I forget how old he was now, but not very...) - his dad told us that he had no vision, hearing or speech and also suffered from cerebral palsy. They were able to determine that the "seizures" he was having were, indeed, cluster headache. I'm sure that little guy wasn't much past 6. |
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It's not fair Margi.............. 
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cootie
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Re: Who is the youngest clusterhead?
« Reply #6 on: Feb 4th, 2004, 12:20pm » |
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There was a girl on here a while back that was only 16 I talked to few times.......she was havein some family troubles and think her mom had died......real nice girl. Pam that is only 6
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don
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Re: Who is the youngest clusterhead?
« Reply #7 on: Feb 4th, 2004, 12:21pm » |
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Which calander are we using?
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Lizzie2
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Re: Who is the youngest clusterhead?
« Reply #8 on: Feb 4th, 2004, 12:28pm » |
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I'm 23. I hate hearing that little kids have to suffer with this. I don't even know if I want to have kids because the migraines I have are genetic, and I just don't know if I could watch my kids go through it.
Well, guess I should wait until I find the guy to have them with first!
~lizzie
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TxBasslady
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Re: Who is the youngest clusterhead?
« Reply #9 on: Feb 4th, 2004, 12:39pm » |
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Reading on the kids and cluster board makes me cry.
I have not a clue how Camerooski's mom deals with it.
It literally breaks my heart.........
Wish I could take the pain for that little boy.....
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JDH
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Re: Who is the youngest clusterhead?
« Reply #10 on: Feb 4th, 2004, 12:42pm » |
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on Feb 4th, 2004, 11:48am, Margi wrote:Sadly, we've had children younger than Cam talked about here. Shelley's little man was not much older than 3 when she first arrived here.
The saddest CH story I ever heard was of the multiply handicapped child with CH (I forget how old he was now, but not very...) - his dad told us that he had no vision, hearing or speech and also suffered from cerebral palsy. They were able to determine that the "seizures" he was having were, indeed, cluster headache. I'm sure that little guy wasn't much past 6. |
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Fuckin' beast!
That's so sad to hear about kids that young dealing w/this crap. Like Thomas said, it's just not fair.
Jim
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Tiannia
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Re: Who is the youngest clusterhead?
« Reply #11 on: Feb 4th, 2004, 12:59pm » |
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Very true. I look at my kids and they both have sinus troubles / sinusitis with headaches that they got from my hubby mostly. But I really worry at times that they could be worse. I can tell when my 17m old is in pain and there are times when he will hold his head and just lay on the ground and I find myself praying that he just does not end up with these things. That it is just the preassure changing. At least he is willing to come to me and have mom help and thank the powers that be that I can. Some kids tylenol, warm washclothes to the sinuses and rockig in moms lap and it makes it go away. Hell I dont know what I would do, if I could not help him at all. At least we can verballize and say what we are feeling, they are the innocent victims.
Tia
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Brian_Y
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Re: Who is the youngest clusterhead?
« Reply #12 on: Feb 4th, 2004, 1:00pm » |
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Where do those of us who are immortal fall?
Forever young or hopelessly old?
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fubar
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Re: Who is the youngest clusterhead?
« Reply #13 on: Feb 4th, 2004, 1:10pm » |
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My 11 yr old girl is starting to have CH. Last month I saw all the tell tale non-fakeable signs, but it was only one attack. I've never been so depressed as at that moment, realizing she was going to go through it. CH is a BIIAAAAATCH.
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Virginia
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Re: Who is the youngest clusterhead?
« Reply #14 on: Feb 4th, 2004, 1:18pm » |
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I can't even imagine trying to deal with this crap as a child. My heart breaks for them.
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Edski_1
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Re: Who is the youngest clusterhead?
« Reply #15 on: Feb 4th, 2004, 1:21pm » |
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Very small consolation for the young ones...
Treatments and diagnosis are better now, and they have the experiences of all the older clusterheads to draw on. Hopefully their Hell will be a *little easier* to del with as they grow older.
Something tells me that the battle will never end unfortunately, though.
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totka
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Re: Who is the youngest clusterhead?
« Reply #16 on: Feb 4th, 2004, 2:50pm » |
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I was 23 sometime
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Karla
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Re: Who is the youngest clusterhead?
« Reply #17 on: Feb 4th, 2004, 3:06pm » |
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My son Joshua started having ch when he was 13. I died when I found out he was suffering from them as well as migraines just like me. I am so grateful that he is not chronic like his mother. All his brothers suffer from migraines. I am waiting to see if any more of them develope into clusters. No fair.
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Karla
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kim
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Re: Who is the youngest clusterhead?
« Reply #18 on: Feb 4th, 2004, 3:44pm » |
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If memory serves me (which we all know is usually pretty much kaput), I think the youngest recorded cluster attack was in an 11 month old baby. That really sux.
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Lissa
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Re: Who is the youngest clusterhead?
« Reply #19 on: Feb 4th, 2004, 3:54pm » |
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on Feb 4th, 2004, 12:20pm, cootie wrote:| There was a girl on here a while back that was only 16 I talked to few times....... |
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That's about the age my headaches started. I was either 15 or 16. I can't remember now. I'm getting too old.
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Big Dan
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Re: Who is the youngest clusterhead?
« Reply #20 on: Feb 4th, 2004, 5:13pm » |
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23 now... in and around 16 when they started...
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| « Last Edit: Feb 4th, 2004, 5:13pm by Big Dan » |
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Giovanni
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Re: Who is the youngest clusterhead?
« Reply #21 on: Feb 4th, 2004, 6:17pm » |
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Quote:fubar Posted on: Today at 2:40pm
My 11 yr old girl is starting to have CH. Last month I saw all the tell tale non-fakeable signs, but it was only one attack. I've never been so depressed as at that moment, realizing she was going to go through it. CH is a BIIAAAAATCH. |
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I've read (can't put my hands on it now) that some people only have one attack and that it--never again. Surly hope your daughter is one of these.
John
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manana
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Re: Who is the youngest clusterhead?
« Reply #22 on: Feb 4th, 2004, 6:29pm » |
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They say it's not genetic...my father suffered, both of my grandfathers suffered, I've suffered since I was 18 & I'm now 48, & my 20 yr old daughter has suffered since she was an adolescent although she hasn't been "officially" diagnosised (I pray it's not ch with her). What makes me angry is that there are treatments but they are expensive & way too difficult to obtain. I sure hope someone can organize ch'rs & get some results for the next generation if not for us!
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Lizzie2
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Re: Who is the youngest clusterhead?
« Reply #23 on: Feb 4th, 2004, 7:05pm » |
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on Feb 4th, 2004, 6:29pm, manana wrote:| They say it's not genetic...my father suffered, both of my grandfathers suffered, I've suffered since I was 18 & I'm now 48, & my 20 yr old daughter has suffered since she was an adolescent although she hasn't been "officially" diagnosised (I pray it's not ch with her). What makes me angry is that there are treatments but they are expensive & way too difficult to obtain. I sure hope someone can organize ch'rs & get some results for the next generation if not for us! |
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There's actually research being done as we speak on the genetic thing. I think it is a distinct possibility that it may be genetic for some people. If you have migraine, you have a 50/50 chance of having a kid with migraine. If both parents have migraine, the child has a 75% chance. I don't know that the odds are quite as high with clusters, but they are definately looking into the possibility that it IS genetic.
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Opus
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Re: Who is the youngest clusterhead?
« Reply #24 on: Feb 4th, 2004, 9:13pm » |
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Coots,
Her name is Cassie aka night owl, she is 7 now and going through a bad time, her father is military and being shipped out somewhere. Plus he head is bad too. She doesn't write much anymore.
Opus/Paul
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