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Topic: bittersweet (Read 295 times) |
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broomhilda
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Ride it!
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bittersweet
« on: Jan 30th, 2004, 9:17pm » |
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Hi everyone! It is with bittersweet emotions I join your family of cluster heads and supporters!!!!!!! Some of you great ones I have interacted with in chat, hit there again!
I started my first and longest cluster five weeks ago, just when I thought I had it beat, it has beaten me, coming at all times of day and night. I see a neurologist next week, my GP diagnosed me and am on Topamax and verap, so trying all the stuff I have been learning while looming here for four weeks. You all have been so helpful in my dark days so I want to say a big thanks to all of you for all the advice and support. Glad your here!!!!!!!!!
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Suck it up Princess...
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Re: bittersweet
« Reply #1 on: Jan 30th, 2004, 11:45pm » |
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For someone with CH......there really is NOWHERE else to be, but here.
Glad to see you join the group. I saw you in chat the other night.
There is so much to read and you will find the best support in the world.
Stay in touch, and let us know how you are doing.
PF vibes,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Edna
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Re: bittersweet
« Reply #2 on: Jan 31st, 2004, 12:27am » |
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Oh how sweet of you to be thanking us. Glad you've found the best place to be for clusters.
Guessing you're the same broom that was in chat with me the other night........I'm needabuddy there.
Stick around with us please......you'll make AMAZING friends here, and get worlds of knowledge that will help you.
Keep us posted on your progress.
hugs for ya,
EDNA
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Callico
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Proud Dad of a US Marine!
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Re: bittersweet
« Reply #3 on: Jan 31st, 2004, 2:59am » |
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Glad you are here. You will find all the love and support you can use here. Also, there is a ton of info for you to read and use. Some of it may be helpful to your Dr as most of them have never had the fun of dealing with one of us. 
Wishing you PFDANs
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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brad267
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Re: bittersweet
« Reply #4 on: Jan 31st, 2004, 10:08am » |
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Hi Broomie,
Sorry you're here, hope you'll stay. I have a curiosity question... Did your GP pick up on diagnosing Clusters right away? Did he/she have any help? i.e. ER visit?? IIt's rare to find a smart one, and I hope you have!
-Start that letter of medical necessity for Imitrex... 
-Brad
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-- He felt that his whole life was some kind of dream and he sometimes wondered whose it was and whether they were enjoying it.
Douglas Adams (1952 - 2001), "The Hitchhiker's Guide to the Galaxy"
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broomhilda
CH.com Alumnus
New Board Hall of Famer
Ride it!
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Posts: 2533
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Re: bittersweet
« Reply #5 on: Jan 31st, 2004, 10:44am » |
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Hi there!!!! Edna, yes that was me, broomie in the chat room!!!!!!
Brad, I guess my dr is some what on the ball he diagnosed me right away, he has another cluster he treats as well, but I will be his first female. The problem here in BC is O2 is not covered on our med plansand went three times to ER and discharged myself after waiting in ER for two hours and cluster was over.( I am still trying to link with OUCH>CA to no avail for info there) I use Imitrex, sometimes works sometimes not! I am glad to join you all and thanks so much! Looking forward to more!
Take care and wish you all pain free weekend!!!!!!!
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Suck it up Princess...
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