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MartinW
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Hello everyone! This is my first post here as I just found out what i've been suffering from. I am fairly intimidated by this in part because untill today i had never heard of such a thing, But thanks to this site i have a huge source of information and a warm feeling of a support group, now back to the topic  .
I am a marijuana smoker and noticed that the last few times i've smoked it triggered a headache, and whats more, last night, before I saw a doctor today i drank 4-5 beers and expericned no problems. Has anyone else had and experiences with clusters and marijuana? Maybe someone could point me to a site with some research on the subject. The only thing i found here was an unanswered post asking about marijuana as a treatment. Thanks everyone in advance for your help. And expect to hear some more from me on the subject as i plan to to some experiments myself (that is of couse if i have the blessing of the boards to continue with this topic)
-Martin
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Prense
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Re: Marijuana
« Reply #1 on: Jan 27th, 2004, 7:22pm » |
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on Jan 27th, 2004, 7:18pm, MartinW wrote:| And expect to hear some more from me on the subject as i plan to to some experiments myself (that is of couse if i have the blessing of the boards to continue with this topic) |
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If you experiment with anything, please let us know how it goes!
I seem to recall some folks have claimed it triggers as quickly as beer. It's been a while though.
Welcome aboard!
Chris
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t_h_b
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Re: Marijuana
« Reply #2 on: Jan 27th, 2004, 7:43pm » |
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If you can drink a lot of beer without getting hit, are you sure you have cluster headaches?
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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jonny
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on Jan 27th, 2004, 7:43pm, t_h_b wrote:| If you can drink a lot of beer without getting hit, are you sure you have cluster headaches? |
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Hmmmmmm, Im 29 years chronic and have never been triggered by beer and I drink it everyday.
LOL...sorry...had to nail ya with that one, there are not many of us out there but we are out there....I like to think of it as pay back for all the pain 
..........................................jonny
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MartinW
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Re: Marijuana
« Reply #4 on: Jan 27th, 2004, 7:50pm » |
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That was the first thing i thought of when i read about alcohol triggering it, But the symptoms match exactly otherwise, This is only my second cycle, my first being almost exactly a year ago, and i saw no doctor about it because i thought it was a sinus problem and waited it out, i guess only time will tell, i am still new to this and reading all that i can about it to be sure this is what i am suffering from. The study that i was reading that directed me to this site initially had some statistics of a study done on sufferers of clusterhead and it said 90% of people in the study were triggered by alcohol, i'm just wondering now if i'm one of the other 10% or my doctor is mistaken and i have some other peorblem that resembles clusters
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thomas
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pot takes my ch to a whole new level,scary....bad
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Little Deb
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Re: Marijuana
« Reply #6 on: Jan 27th, 2004, 8:10pm » |
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Well, all I can say, besides WELCOME!, is........
fly to Raleigh this weekend, and bring some with you so we ALL can experiment!!!!!
helpin' a brother out.....little deb
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jonny
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on Jan 27th, 2004, 8:10pm, Little Deb wrote:Well, all I can say, besides WELCOME!, is........
fly to Raleigh this weekend, and bring some with you so we ALL can experiment!!!!!
helpin' a brother out.....little deb |
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LMMFAO!!!!!
.........................jonny
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MartinW
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Re: Marijuana
« Reply #8 on: Jan 27th, 2004, 8:19pm » |
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LOL, this weekend is no good for me, going camping on an island off south florida that is if i don't get thrown overboard for bitching about my head, the Large scale Marijuana study will have to wait, ohhh and we should have a buffet too
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Kirk
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Re: Marijuana
« Reply #9 on: Jan 27th, 2004, 8:26pm » |
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Alcohol doesn't trigger CH for me. Pot does. Go figure.
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phishphan
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Re: Marijuana
« Reply #10 on: Jan 27th, 2004, 8:41pm » |
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Martin,,
Yes marijuana does bring on a clusterheadache.
Mine started with Pot..Only when I smoked ...as soon as I smoked a huge one came on..Only one sideded.
I believe that its when you blood pressure goes up alot a headaches comes on...And pot does raise your pressure alot..
Ask your doctor to prescribe verapamil..This tends to help..Not completely. I guess that smoking pot and the headache beast are something that we have to live with.As long as we smoke..The headache will come...Some medications can make it less intence..
One guy told me that imitrex nasal spray helps to be able to puff...
Hope I helped.
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MartinW
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Re: Marijuana
« Reply #11 on: Jan 27th, 2004, 9:02pm » |
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wow thanks guys, This is the quickest replying messageboard i've ever used! I'm also happy to say that approx. 1 hour and 20 min ago i smoked a normal amount and i still feel great, but i'm not sure if it is linked with the prednisone i was prescribed as it was my first day on the prescription today, also the prednisone makes my body feel like i've been worked by 13 drunken men with baseball bats, does that get any better as the dosage goes down?
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BlueMeanie
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Welcome Martin:
Beer & Marijuana are both known to trigger MOST Clusterheads.
jonny & a few others are lucky. (If you partake in that kind of stuff). LOL
All triggers are different for each of us. Just stay away from you own concoctions please. Let the docs give you the right meds to try.
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t_h_b
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Re: Marijuana
« Reply #13 on: Jan 27th, 2004, 9:19pm » |
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Hey, Jonny,
Since you can drink a lot of beer without getting hit, are you sure you have cluster headaches? Maybe you really have migraines! Or a chronic sinus infection? Or you just need glasses....
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| « Last Edit: Jan 27th, 2004, 9:20pm by t_h_b » |
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No, it's not a headache--it's a Stage Ten Primary Chronic Periodic Idiopathic Trigeminovascular Cephalalgic Crisis.
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BlueMeanie
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on Jan 27th, 2004, 9:19pm, t_h_b wrote:Hey, Jonny,
Since you can drink a lot of beer without getting hit, are you sure you have cluster headaches? Maybe you really have migraines! Or a chronic sinus infection? Or you just need glasses....
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Boy are you asking for it. LMAO
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Little Deb
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Re: Marijuana
« Reply #15 on: Jan 27th, 2004, 9:33pm » |
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Why don't ya just ask jonny if he is sure he is male!
You might as well say he is a female and females don't get clusters!
You really ARE asking for it!!!
LOLOLOLOLOL!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
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fubar
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Re: Marijuana
« Reply #16 on: Jan 27th, 2004, 10:37pm » |
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on Jan 27th, 2004, 9:19pm, t_h_b wrote:Hey, Jonny,
Since you can drink a lot of beer without getting hit, are you sure you have cluster headaches? Maybe you really have migraines! Or a chronic sinus infection? Or you just need glasses....
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OMG LMFAO
That was so funny I spilled my beer all over my doobie.
-Fu
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brain_cramps
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Re: Marijuana
« Reply #17 on: Jan 27th, 2004, 10:44pm » |
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on Jan 27th, 2004, 10:37pm, fubar wrote:OMG LMFAO
That was so funny I spilled my beer all over my doobie.
-Fu
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BWAAAAAAAHAAAAAAAAHAAAAAAAAA!!!!!!!! 
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Prense
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Re: Marijuana
« Reply #18 on: Jan 27th, 2004, 11:07pm » |
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on Jan 27th, 2004, 9:23pm, BlueMeanie wrote:
Boy are you asking for it. LMAO
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Heh...
Someone stand by the fire extinguishers.
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Tiannia
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Re: Marijuana
« Reply #19 on: Jan 27th, 2004, 11:20pm » |
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on Jan 27th, 2004, 9:19pm, t_h_b wrote:Hey, Jonny,
Since you can drink a lot of beer without getting hit, are you sure you have cluster headaches? Maybe you really have migraines! Or a chronic sinus infection? Or you just need glasses....
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Oh fuck I cant wait to see this one. Jonny getting Meeegines????
Martin,
I'm not a big beer drinker but I do drink rum, but I dont find that it triggers it every time, so I really dont consider it a trigger at all. It usually comes from other crap that comes on during the day that when I have a drink at night that I'll end up getting hit. but as a chonic, I figure what the hell I'm gonna get hit anyway might as well get hit now rather then later. 
Sorry you had to find us, butyou did come to the right place.
Tiannia
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magman
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Re: Marijuana
« Reply #20 on: Jan 27th, 2004, 11:25pm » |
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on Jan 27th, 2004, 8:10pm, Little Deb wrote:Well, all I can say, besides WELCOME!, is........
fly to Raleigh this weekend, and bring some with you so we ALL can experiment!!!!!
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If u were serious, i can accomidate!!!
Welcome to your new family Martin, and a BIG Thank U for possing this Question. Iwas too damn chicken.
Being a pothead since high school and now as close to 50 without being 50, well....lots of doobies.....
Anyway....I just discoverd that during cycle, I need to leave it alone. Alcohol is ok, but not the weed. Thankfully my cycle is only 6 to 10 weeks long.
Welcome again Martin.
-dan
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don
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As a general rule for most sufferers your CH attacks will return when you get to the lower doses of the prednisone. The way to prevent that from happening is to take a preventative med along with and after the prednisone taper.
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Wonderingwhy
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Re: Marijuana
« Reply #22 on: Jan 28th, 2004, 12:15am » |
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I'm not sure if it triggers them but it makes narcs go alot further with there properties. Not that narcotics are any good for CH, anyways.
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TxBasslady
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Re: Marijuana
« Reply #23 on: Jan 28th, 2004, 1:48am » |
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IMHO I have NEVER been able to understand why a clusterhead will engage in an activity/and or substance that they KNOW will trigger a ch.
Sheesh...........common sense DOES NOT abound for some.
Good grief...................ch is an absolute disaster to our families. It changes lives and destroys lives.
If you have no family, and noone that cares about you or loves you..........then smoke away!!! But don't whine about the headaches, if you consistently partake of those things that are known triggers.
There's alot of chronics here that consume alcohol. However, the alcohol does not seem to trigger ch. No matter what they do.....they are gonna get hit. Therefore, I make an exception for them. But for episodics......PROBABLY NOT a good idea.
Not a judgement........just my opinion.
Jean
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JohnM
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Re: Marijuana
« Reply #24 on: Jan 28th, 2004, 2:27am » |
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About 25 or more years ago, when I was a big drinker, long before any of my doctors heard about CH, I thought my HA's may have been CAUSED by beer! Go figure. Drink a few beers and wham I would get hit. Same thing with the occasional weed.
I tried drinking whisky instead during some cycles and suffered a bit less, then tried not drinking or smoking at all during some cycles and was hit even less. But... I still got hit. Always seemed to be summertime when I got in cycle so I blamed it on the heat, or air presssure, or stress or whatever because the doctors knew fuck all and some said it was in my mind - bastards! Now it seems that giving up booze only helps to stop them triggering at the wrong moment.
I try and avoid booze completely when in cycle and gave up smoking (anything at all) some 20 odd years ago. I still get hit a lot but the worst thing you can do is go out on a social occasion and get hit big time, then and there just because you took a few drinks. Rather wait until you get home and get hit at 2am (?)  at least it won't (may not?) ruin the evening.
John
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