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Topic: Another dreadful thought (Read 390 times) |
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Carl_D
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Reading up some about MS. Man, and I thought having CH, CPH and TMJ sucked!!!
One thing I definitley don't want is this wheelchair shit!
If the pain in my legs that crept in my right arm a bit ago gets worse, i may be ER bound by morning.
Shit!
Carl D
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Tara Ann
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Re: Another dreadful thought
« Reply #1 on: Jan 17th, 2004, 2:36am » |
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Vibes to you Carl! I'm hoping and praying for you!
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Prense
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Re: Another dreadful thought
« Reply #2 on: Jan 17th, 2004, 11:38am » |
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Carl,
Hang in there dude! If it turns out to be MS, let me know. The ST is not so bad, just make damn sure you get it from someone who has done PLENTY of them! They have made great strides in preventing attacks. I have a good friend that has MS, and I can put you in touch with him. Other than a weekly shot, he lives a "normal" life. They even allowed him to stay in the military with this... The key is, early treatment.
Regards!
Chris
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Jayne
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Re: Another dreadful thought
« Reply #3 on: Jan 17th, 2004, 11:44am » |
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Hey Carl
John and Mo who run the Ouch Uk board...well John was stricken with MS. Just to let you know that there is someone who would talk to you about it. They are great people.
Wishing all the love I can muster.
Love Jayne
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If you haven't laughed today, it's been a wasted day. 
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thomas
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Re: Another dreadful thought
« Reply #4 on: Jan 22nd, 2004, 5:16pm » |
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I'm pullin' for ya, man........
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Charlie
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Re: Another dreadful thought
« Reply #5 on: Jan 22nd, 2004, 6:16pm » |
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I have it on good authority that you'll do well.
Yuz gots me on yer side too.
Charlie
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Turts
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Re: Another dreadful thought
« Reply #6 on: Jan 23rd, 2004, 6:23am » |
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Wishing you all the best Carl. Sounds like you are in good hands here for MS as well.
Take Care man.
thinking of ya.
Turts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Brian_Y
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Re: Another dreadful thought
« Reply #7 on: Jan 23rd, 2004, 8:43am » |
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My wife has had MS since the mid 1990's. She is a 4.0 tennis player, plays in city leagues, routinely decimates her opponents with extreme prejudice, runs, works out at the gym, drinks herculean amounts of alcohol when the mood strikes her, raises our daughter, etc. etc. and so forth.
In short, aside from the betaseron she takes every other day, her life is relatively normal. And this is with experiencing optic neuritis, muscle spasms ALL the time, et al.
It can be done. Do not fall prey to the "cliches" about MS.
Look into the betaseron/avonex/copaxone treatments. They have pretty good success limiting flair ups.
Martinis help too.
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Carl_D
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Re: Another dreadful thought
« Reply #8 on: Jan 23rd, 2004, 9:51am » |
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Thanks for the heads up Brian. I will mention it to my Doc when I go back next week. Right now doing hrt (testosterone) to boost leg strength.
Peace,
Carl D
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Brian_Y
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Re: Another dreadful thought
« Reply #9 on: Jan 23rd, 2004, 12:09pm » |
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You DEFINITELY can benefit from one of those drugs. Word on the street is that betaseron is DOSED correctly. Mention that to him. I'd explore these drugs in a skinny minute if I had MS.
And not to patronize you as I do not know your situation obviously, but if you do not have good insurance it is difficult. One month's supply of this drug for the wife is $1600. We pay a co-pay of $20. Thank you Jesus!!!
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