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Topic: UPDATE! wasn't expecting this response... (Read 1320 times) |
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Little Deb
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UPDATE! wasn't expecting this response...
« on: Jan 7th, 2004, 4:26pm » |
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Debbie, it is ironic to receive an e-mail from you today. My husband committed suicide two years ago tomorrow. he had cluster headaches. Please take me off your list. I wish I had known about this support group before he died. It would have been so helpful. I knew of nowhere to go for help. No one knew how to treat them and he just suffered terribly.
Mindy
My response:
Mindy,
I am so sorry to hear about your husband. I hope I have not caused you too much pain. I will take you off my list. I sent out over 200 emails, not knowing if they would even reach anyone. I am sorry your husband suffered so. All of us clusterheads do. Some more than others. I am not sure when this support group started, but I found it by accident last year during my cycle. I have had CH for 25 years. This group of CHers we call our "family". It is wonderful to talk to others who understand our pain. And you are right, we are still treated terribly for the most part. The medical community and society are so undereducated on CH. We are trying to make a difference though. We are on the bandwagon! Please, please, if you ever want to talk or meet any of us, know we are here for you. There is a Supporters Board also. You are still part of our "family".
www.clusterheadaches.com
Debbie Hart
aka: Little Deb
Think I responded appropriately??? Hope so. Let us say a prayer for her today as she remembers her husband, our unknown cluster brother. May he rest in pain free peace.
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| « Last Edit: Jan 8th, 2004, 6:03pm by Little Deb » |
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Lissa
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Re: wasn't expecting this response...
« Reply #1 on: Jan 7th, 2004, 4:29pm » |
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That is so sad. 
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Episodic cluster survivor since 1995 at age 16.
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CHmess
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Re: wasn't expecting this response...
« Reply #2 on: Jan 7th, 2004, 4:29pm » |
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OMG - I have goose bumps all over and tears in my eyes....you couldn't have replied better to that!!!!!!
I'm saying a prayer for her right now!!!
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ClusterChuck
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Re: wasn't expecting this response...
« Reply #3 on: Jan 7th, 2004, 4:30pm » |
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SHIT!!! That poor woman! I hope she comes, but I can fully understand her not wanting to go. Damn shame!
I think you responded just fine.
Chuck
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Paigelle
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Re: wasn't expecting this response...
« Reply #4 on: Jan 7th, 2004, 4:39pm » |
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Oh my goodness! I truly feel this shows the true pain of cluster headaches. How it not only affects the person suffering, but the ones around them also. The pain a damn headache can cause for so many people and the damn medical community neglects it for the most part. Now I am depressed and mad as hell.
We should all pray for that family.
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Rick_K
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Re: wasn't expecting this response...
« Reply #5 on: Jan 7th, 2004, 4:45pm » |
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That was a great response
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episodic since 1969........damn
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Woobie
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Re: wasn't expecting this response...
« Reply #6 on: Jan 7th, 2004, 4:59pm » |
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SEE?? Clusterheadaches DO kill ~ directly or not, they do! 
This pisses me off... I wish they would have found this site - he would be alive today - I'm almost 100% sure of that! Makes you wonder who's hurting out there.. alone.
Deb - you did good!
Man! ............ 
tina
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| « Last Edit: Jan 7th, 2004, 5:00pm by Woobie » |
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jflynn
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Re: wasn't expecting this response...
« Reply #7 on: Jan 7th, 2004, 5:02pm » |
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I saw a specialist yesterday and he said there is a very high incedence of suicide among cluster sufferers. In fact "suicide headache" is a common term for CH.
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Woobie
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Re: wasn't expecting this response...
« Reply #8 on: Jan 7th, 2004, 5:06pm » |
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Yep - that's true -
but I know for a FACT that this site is responsible for saving lives..............
Im sure there are a lot of people that will testify to that! It's just a shame this guy suffered alone.
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Edna
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Re: wasn't expecting this response...
« Reply #9 on: Jan 7th, 2004, 5:08pm » |
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WOW Bring you back to the reality of what's important doesn't it?
Deb, you did wonderful.
Praying that our unknown cluster bud rest in peace not that his pain is finally gone. And may the good Lord keep his family close.
EDNA
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jonny
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Re: wasn't expecting this response...
« Reply #10 on: Jan 7th, 2004, 5:11pm » |
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miCHel
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Re: wasn't expecting this response...
« Reply #11 on: Jan 7th, 2004, 5:15pm » |
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I think I remember a thread when a lot of us mentioned that they had considered suicide at one point because of CH. It certainly was my case - every cycle. With this site and the people here, I now feel that I have so many more options before that final one.
It is so sad to find out that some sufferers didn't get to reach this place in time.
Deb, your answer was perfect.
miCHel
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BlueMeanie
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Re: wasn't expecting this response...
« Reply #12 on: Jan 7th, 2004, 5:17pm » |
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OMG. I'm a guy and guys don't cry. As much pain as i've been in lately, that put a tear to my eye. So sad to hear that story. That's what makes this organization so great. Having people who understand makes such a big difference in our lives.
PFDAN
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Tiannia
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Re: wasn't expecting this response...
« Reply #13 on: Jan 7th, 2004, 5:24pm » |
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Deb you did great. I was deffinatly not expecting to read that. That is so very very sad. I know that this site has changed me so much. THat is why it is so great that a couple of times a week we normally see at least one new person on the boards.
Tia
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thomas
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Re: wasn't expecting this response...
« Reply #14 on: Jan 7th, 2004, 5:24pm » |
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ShariRae
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Re: wasn't expecting this response...
« Reply #15 on: Jan 7th, 2004, 5:45pm » |
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Deb.. I think your response was perfect..
Nice job 
Shari (fighting back tears)
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Linda_Howell
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Re: wasn't expecting this response...
« Reply #16 on: Jan 7th, 2004, 5:52pm » |
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lil Deb,
I'll say it too. Your words were just fine hon. BTW, this site started on April 11th. 1998...God I wish she had found us then.
Linda
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Charlie
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Re: wasn't expecting this response...
« Reply #17 on: Jan 7th, 2004, 5:58pm » |
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Good response Deb.
What a true horror this thing is and what it can do to people.  
Charlie
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grumpett
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Re: wasn't expecting this response...
« Reply #18 on: Jan 7th, 2004, 6:15pm » |
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That was a great reply Deb!
I often thought that any body else who had this always did commit to suicide and that was why I didn't know of any one else with this condition!
I know I did and still do!
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Jackie
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Re: wasn't expecting this response...
« Reply #19 on: Jan 7th, 2004, 6:20pm » |
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Very sad...
There are so many of us here helping each other. God only knows how many others are out there going it alone....wish there was a way to get to each and every one of them.
Deb, your reply was good.
Jacks 
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KingOfPain
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Re: wasn't expecting this response...
« Reply #20 on: Jan 7th, 2004, 6:50pm » |
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What comes to mind [after the sadness
for her & the loss of her loved one ]
is maybe, just maybe if she ever
encounters another CHer, she might
just remember this site & your effort.
It could save that life, &/or give support.
I appreciate your trying.
Way To Go Little Deb.
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| « Last Edit: Jan 7th, 2004, 6:51pm by KingOfPain » |
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t_h_b
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Re: wasn't expecting this response...
« Reply #21 on: Jan 7th, 2004, 6:58pm » |
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Mindy should be given an honorary lifetime supporter's membership from OUCH.
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Renee
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Re: wasn't expecting this response...
« Reply #22 on: Jan 7th, 2004, 7:12pm » |
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WOW!! This really hits home for me, in my heart and in my life.
Oh, how I wish they had found this "family" in time to save him.
It hits home for me because only 4 months ago I was contemplating the same. I went to the e.r. and it was actually an e.r. doc that diagnosed what I'd been suffering for 7 years. I came home and immediately started researching and found my "family".
NOW...I know I am no longer alone and if y'all can overcome, I CAN TOO, and I no longer feel all alone with noone to share this demon with.
Thank you all for saving those, including me, that find this wonderful home. I'm staying and fighting for me and for you.
tears for those not as lucky as myself,
Renee
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ClusterChuck
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Re: wasn't expecting this response...
« Reply #23 on: Jan 7th, 2004, 7:17pm » |
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on Jan 7th, 2004, 5:06pm, Woobie wrote:I know for a FACT that this site is responsible for saving lives..............
Im sure there are a lot of people that will testify to that! |
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Tina, I am still alive ONLY because of this site. It was a last straw when I did a search for CH. I am so glad I did! I know some will be very pissed to hear this, but I still think about it a LOT. The ONLY reason I have been able to bear this cycle, for so long, is the people here. I thank you all for that.
And to the greatest one of all, DJ, what can I say, but a sincere thank you.
Chuck, who has had his life saved by this site.
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stevegeebe
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Re: wasn't expecting this response...
« Reply #24 on: Jan 7th, 2004, 7:58pm » |
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Ironic...? Maybe. It'll have to play out. One never knows who controls these things.
I wish he had found this place. Makes me sad to hear this.
Ya did great LD.
Steve G
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