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Lizzie2
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Hospital Update
« on: Jan 2nd, 2004, 10:52pm » |
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Hi everyone,
Here's my update for the day...
My New Daily Persistent Headache is down to a 7 (more on this in a minute), and then I got 3 cluster attacks today. Still better than the 6 before, right?? We're slowly getting there, but getting the NDPH down is crucial.
Tonite they started a few different things, and I think my headache is at a 6 now. Yay!  The only other problem is that now my Picc Line has a clot in it. Don't know what that means exactlu except they have me on blood thinnes. OK bback to bed! Love to all!
~Lizzie
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Charlie
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Re: Hospital Update
« Reply #1 on: Jan 2nd, 2004, 11:00pm » |
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A PICC is a long, flexible tube that is put into a vein in your arm and threaded up into a large vein just above your heart. It is used for giving fluids or drug treatment into your bloodstream. PICC stands for "Peripherally Inserted Central Catheter".
A PICC works on the same principle as a "drip" but it can stay in for much longer - sometimes several months. The end of your PICC sits in a large vein just above your heart so there is plenty of blood rushing past it to dilute the drugs and take them safely into your bloodstream.
A PICC allows us to give you repeated or continuous treatments without having to keep finding a vein. You can go home with the PICC in, and usually blood samples can be taken from it without having to use a needle each time.
Some PICC's have just one line or "lumen" while others have two - a bit like a road tunnel with two lanes. This allows us to give more than one drug at once or to take blood while fluids are running.
I'm pain in the ass 
Fewer CH attacks? Can't beat that.
Good luck and let us know how it's going.
Charlie
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| « Last Edit: Jan 2nd, 2004, 11:01pm by Charlie » |
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Linda_Howell
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Re: Hospital Update
« Reply #2 on: Jan 2nd, 2004, 11:35pm » |
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and that's our Charlie.
Just when I think he has no more knowledge he comes up with this. Whew, I am impressed Charles
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Rick_K
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Re: Hospital Update
« Reply #3 on: Jan 2nd, 2004, 11:47pm » |
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on Jan 2nd, 2004, 11:00pm, Charlie wrote:| A PICC is a long, flexible tube that is put into a vein in your arm and threaded up into a large vein just above your heart. |
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Damn.....................
lotsa vibes and hugs heading your way Lizzie
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episodic since 1969........damn
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AlienSpaceBabe
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Signed,
the other Lizzie
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TxBasslady
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Re: Hospital Update
« Reply #5 on: Jan 3rd, 2004, 1:38am » |
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Thanks for the update..........hope all goes well for ya, sweetie!
Keep us updated 
Pf vibes to ya,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
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BlueMeanie
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Hang in there Chronic_Chic. I'm pullin' for ya.
PF VIBES
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Ree
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Re: Hospital Update
« Reply #7 on: Jan 3rd, 2004, 9:16am » |
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Good Luck Lizzie 2 wow............. Charlie I don't know if she was supposed to know that grizzley detail... ewwwwwww I hate hospitals... I hope they make ya better Lizzie love ree
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Prense
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Re: Hospital Update
« Reply #8 on: Jan 3rd, 2004, 10:37am » |
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Hang in there Lizzie!
Keep us posted...
Chris
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Paigelle
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Hope you feel better soon Lizzie! Thanks for keeping us updated.
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hunterdon04
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Re: Hospital Update
« Reply #10 on: Jan 3rd, 2004, 11:49am » |
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my thoughts go out to you.....peace
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Unsolved
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Re: Hospital Update
« Reply #11 on: Jan 3rd, 2004, 2:00pm » |
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Goodluck Lizzie ... hope you find some PF times ahead !
Charlie ~ Never heard of a Picc Line staying in for months. Maybe weeks ... but months ?
Unsolved
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Donna
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Re: Hospital Update
« Reply #12 on: Jan 3rd, 2004, 2:12pm » |
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I don't know about the picc line, but a port can stay indefinately as long as it is cleaned properly.
I never heard of a picc going home with you. Gotta go read now.
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Lizzie2
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Re: Hospital Update
« Reply #13 on: Jan 3rd, 2004, 5:45pm » |
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Hi everyone,
Thanks so much for all the PF vibes and thoughts! I can't tell you how much it means to turn on the computer and read all your messages!
Charlie, is this your picc line info site?
http://www.thefurrymonkey.co.uk/picc.htm
I had heard they could stay in for awhile, and you could even go home on them to do IV antibiotics, but never knew they stayed in for months! Well, my picc line will be lucky if it makes it thru the week with the way this baby is acting up!
I really need it to stay in because the word from the doc today is that if they lose the picc, my only options are IM injections or discharge as is.  So we're hoping they can keep it working! My nurse just went to get a heparin flush because one port of it seems a little cloggy. *eek*
Keep your fingers crossed for me! Thanks again for the messages!
Unsolved, I hope you are getting some relief too!!!!!
PF 2 all
Love, Lizzie
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cathy
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Re: Hospital Update
« Reply #14 on: Jan 3rd, 2004, 6:04pm » |
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Lizzie....vibes coming to you...get them ports unclogged you hear..and stop clotting them....let us know how your doing...
Cathy
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Lizzie2
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Re: Hospital Update
« Reply #15 on: Jan 4th, 2004, 8:18pm » |
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Hi Everybody,
Just wanted to post...vent...per say. Having a really difficult day here in hosp. I feel really foggy from the treatments and am getting sick from side effects and what not. All I just want to yell right now is THIS SUCKS! My mom and dad just left and I cried LOL...I'm such a baby. Can't wait till this stay is over.....
~Lizzie
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Donna
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Re: Hospital Update
« Reply #16 on: Jan 4th, 2004, 8:34pm » |
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Poor kid....I'm so sorry you feel sick and so helpless. I do know the feeling.
Hopefully, you will go home real soon....praying you do.
Donna
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