Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Nov 23rd, 2024, 2:41am

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « 7 Years And Here They Are »


   Clusterheadaches.com Message Board
   New Message Board Archives
   Jan-Mar 2003
(Moderator: DJ)
   7 Years And Here They Are
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: 7 Years And Here They Are  (Read 936 times)
snuffster
New Board Newbie

*





    KristofferMurphy
Email

Gender: male
Posts: 17
7 Years And Here They Are
« on: Mar 24th, 2003, 9:29pm »
Quote Quote Modify Modify

After reading the board, I feel lucky.  It's been 7 years since my last episode.
 
I can't believe how much more information there is now then back then.  I guess the internet is really good for more then Ebay.
 
I started again with them 3 weeks ago.  Last time I had them it lasted over a year.  Here's to hoping they don't stay around that long now.
 
I'm not sure my wife can take waking up alone for that long, and my cats are getting no sleep because they are just pacing with me.
 
Kris
IP Logged
WendyHowe
Guest

Email

Re: 7 Years And Here They Are
« Reply #1 on: Mar 24th, 2003, 9:43pm »
Quote Quote Modify Modify Remove Remove

Kris
 
I am really sorry you are in pain and hope it is shorter lived than your last. Your post gives me hope. 7 years is a long time to be headache free. My neurologist told me that once they start, I am bound to get another attack so I have been living in dread for 6 months.
 
My best wishes to you and hope you have the right help (drugs and otherwise) to get out the other side.
 
 
Wendy
IP Logged
JDH
CH.com Alumnus
New Board Hall of Famer
USA 
*****




We will get by, We will survive!

    simnjue2u
Email

Gender: male
Posts: 2453
Re: 7 Years And Here They Are
« Reply #2 on: Mar 24th, 2003, 11:21pm »
Quote Quote Modify Modify

Kris,
Sorry to hear the pain thing is back in your life after such a long time. There's lot's of good info here that can help you so read all you can.
hopin' it's a short one.
pfdan's to you,
Jim
« Last Edit: Mar 24th, 2003, 11:22pm by JDH » IP Logged

9-11-01, to remember is to honor.

It's not what you know, it's what you can prove.

ECH established 1985
Edna
New Board Hall of Famer
USA 
*****





   
Email

Gender: female
Posts: 1596
Re: 7 Years And Here They Are
« Reply #3 on: Mar 26th, 2003, 8:09am »
Quote Quote Modify Modify

Kris, sorry you have to be battling right now, but you give many hear hope to know you were pf for 7 yrs.
 
Hope you've taken time to really read and learn all the info available to you here......keep us posted on your progress,
 
EDNA
IP Logged
firebrix
New Board Hall of Famer
New_Zealand 
*****



I must never weaken.

   


Gender: female
Posts: 683
Re: 7 Years And Here They Are
« Reply #4 on: Mar 26th, 2003, 3:41pm »
Quote Quote Modify Modify

Greetings snuffster
Sorry to read that you're getting slammed after such a long break.
If this break in CHs has happened before, it might just happen again!
Meanwhile get y'self heaps of oxygen, non-rebreather and give it the best you can.
Kind thoughts going your way and wishes for PFDAN
firebrix
« Last Edit: Mar 26th, 2003, 3:43pm by firebrix » IP Logged

"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
brain_cramps
New Board Hall of Famer
Canada 
*****





   
Email

Gender: male
Posts: 2103
Re: 7 Years And Here They Are
« Reply #5 on: Mar 26th, 2003, 4:14pm »
Quote Quote Modify Modify

on Mar 24th, 2003, 9:29pm, snuffster wrote:
After reading the board, I feel lucky.  It's been 7 years since my last episode.
I'm sure everyone here would pray for 7yrs 'off'.  I'm hoping and praying that this round is shorter for you and the break is longer next time.
 
on Mar 24th, 2003, 9:29pm, snuffster wrote:
I can't believe how much more information there is now then back then.  I guess the internet is really good for more then Ebay.

Its amazing how much things can change in a few years...
 
Thanks DJ
 
grant
IP Logged
miCHel
New Board Veteran
Canada 
***





   
Email

Gender: male
Posts: 184
Re: 7 Years And Here They Are
« Reply #6 on: Mar 26th, 2003, 5:04pm »
Quote Quote Modify Modify

That sucks Kris!
 
I once had a 3 year break... which was long enough to even forgot I had CH.  I was a little discouraged when I got hit again... I can imagine the feeling after 7 years!
 
But as you said, lots of things have changed!  Hopefully, and theorically, this cycle should be a lot easier than your last one.  Anyway, that's what I wish you + an even longer break the next time.  And why not an indefinite one while you're at it!
 
Best of luck!
 
miCHel
 
 
IP Logged

Good one Scotty! Now beam down my clothes...
don
Guest

Email

Re: 7 Years And Here They Are
« Reply #7 on: Mar 26th, 2003, 10:09pm »
Quote Quote Modify Modify Remove Remove

Thank the PF Gods for those 7 years. There are new drugs and protocols out ther now. Look for one that works for you.
 
What has worked in the past when you were no doubt diagnosed with sinus problems, bad teeth, Meeegraines,
etc. etc.
 
Don't worry about the cats, they'll keep pacing with or without you. Dumb cats. Get your wife to our supporters board.
« Last Edit: Mar 26th, 2003, 10:10pm by don » IP Logged
snuffster
New Board Newbie

*





    KristofferMurphy
Email

Gender: male
Posts: 17
Re: 7 Years And Here They Are
« Reply #8 on: Mar 26th, 2003, 11:31pm »
Quote Quote Modify Modify

Thanks for the support guys!
 
My new doctor has been great, calling friends of his to help me out and writing script to hopefully fool the insurance company (I hope).
 
Started on Pred today, after I'm done with that, I'll go onto a Calcium Blocker.
 
Been using Imitrex and Fuerinal like it's going out a style.  It al seem much more managable now then it was 7 years ago.
 
Thanks again!
 
Kris
IP Logged
don
Guest

Email

Re: 7 Years And Here They Are
« Reply #9 on: Mar 27th, 2003, 12:44am »
Quote Quote Modify Modify Remove Remove

A little hint. If you dont start a preventative along with the pred. there is a good chance the CH will return when you reach the lower doses of the pred.
IP Logged
snuffster
New Board Newbie

*





    KristofferMurphy
Email

Gender: male
Posts: 17
Re: 7 Years And Here They Are
« Reply #10 on: Mar 27th, 2003, 1:45pm »
Quote Quote Modify Modify

Don,
 
Thanks so much for the advice!  I called my doctor and asked hom abbout taking both, and he said I should be.  
 
I guess I misunderstood him when he told me what to do.
 
Thanks again!
 
Kris
IP Logged
jonny
Guest

Email

Re: 7 Years And Here They Are
« Reply #11 on: Mar 28th, 2003, 6:22pm »
Quote Quote Modify Modify Remove Remove

Read up, Bro......lots of info to be found here and at clusterheadaches.org
 
................................jonny
IP Logged
Charlie
CH.com Alumnus
New Board Hall of Famer
USA 
*****




Happy to be here

135447360 135447360   mondocharlie   mondocharlie
Email

Gender: male
Posts: 14968
Re: 7 Years And Here They Are
« Reply #12 on: Mar 28th, 2003, 10:47pm »
Quote Quote Modify Modify

Welcome and as Jonny said, read up. Here's something to look over as well. It worked very well for me:
 
Dr. Wright's Circulatory Technique:
 
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
 
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head.  This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.  
 
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided.  If you let up or lose concentration, it’s very hard to restart this process.  It may take some time but when this works, the relief is almost immediate.  
 
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood.  It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.  
 
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
 
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.  
 
I wish you the best of luck - Charlie Strand
 
IP Logged

There is nothing more satisfying than being shot at without result---Winston Churchill
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss