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Topic: March 19, 2003, 8:20pm (Read 382 times) |
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quitadamo
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March 19, 2003, 8:20pm
« on: Mar 19th, 2003, 9:02pm » |
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Just eight days into my 40th year. For the last 2 or 3 weeks (I lose track of time) it's been unfairly intermittent following a fast and heavy chest & head cold. Hopefully this is the Omega.
The Alpha was in my teens - maybe 16 or 17. It followed a sexual encounter and it lasted one night. In the morning I was stirred - not too shaken. I had anorther one or two between then and college.
In college it happened one morning - woke me up. In the middle of pledging at College in the early 80's. I dropped out in the middle of pledge week. I was scared - but again it was a one nighter with an afterring that lasted another day - or 2.
There have been a few Hall of Famers.... immediately pre-climax during sex. BANG! Like getting cracked in the head with a bat. It felt like my skull was leaking blood from between the long ridges... that ran from just below my eyebrow ridge, up across my forehead, following a line across one side of my head, down one side of my neck, to a knot in between my shoulder blade and my spine.
I don't have to describe the level of the pain you all know too well.
That was the early 90's
Inderal was the relief du jour - complete with the destruction of my desire sex.
After about a year I weaned off the preventative drugs.
Since then, I have a one nighter (it actually lasts two or 3 days) every now and then. Sometimes in the afternoon. Painfully unpredictable as much as it has been consistent in either doing a hit and run or a week's stay.
Booze is a trigger - thankfully I don't drink more than one a month (if that).
Too bad smokes are a trigger - and I bet it's the nicotine. I wonder about coffee.... bet those headache remedies with caffeine trigger them. I wonder about pot too.... the sense of relaxation it induces.
Whatever.... I'm nursing a bottle of Tylenol-3's and Biaxin just in case there's a sinus infection prolonging them. A decongestant too, to relieve the pressure.
The coolest stuff I have found that helps the small ones is Pamprin. Chew 2 of those and relief comes in about 15 minutes or so.
Most of mine have been small. Forgettable for the most part (as I type, I keep remembering another one.) The meduim and large ones (the ones that linger for more than a day) or the big ones (the ones that go from the worst pain to "somebody kill me please" - those are the ones that I want to leave behind now that I am 40.
The one I have now is just lingering and lingering. It rained today - but I knew it was going to rain around 2am last night. This one kept me out of work. That really bothers me because I'm pretty well behind as it is. For the last couple weeks - it's been one or two hit and runs - skipping some days and going back to back others.
My neck is stiff - maybe I need another lumbar puncture to make sure my head's not bleeding inside - what do you want to bet that it's from me craining my neck in circles trying to spin the pain loose. Ping, again - right behind the eye, again - soft and menacing. Maybe it's over soon.
It's 9:41pm.... I type too slow.
What I think is cool is that this web site exists. After 30+ years - I have finally found this place.
Now I'm going to search for a cure.
Ping, F***
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WendyHowe
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Re: March 19, 2003, 8:20pm
« Reply #1 on: Mar 19th, 2003, 9:08pm » |
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Hello Quint (sorry that can't be your real name)
You will get a fine welcome and loads of help here. I am a new person and not as clued up as the others but I smoke as if it was an Olympic event and it has no effect at all on my headaches. Others have given up and say it doesn't help either.In fact I smoke during the attacks to take my mind of the pain (doesn't work but doesn't make it worse)
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: March 19, 2003, 8:20pm
« Reply #2 on: Mar 19th, 2003, 9:37pm » |
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Hi guit-sumthing-or-other.......sorry with this war thing goin on I'm in no mood to get names 100 % correct.......hope you find the help you need ! This is a good start for you here.....good luck and peace to us all ! Pam-Coots-now-at-war-with-the-world
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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firebrix
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I must never weaken.
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Re: March 19, 2003, 8:20pm
« Reply #3 on: Mar 20th, 2003, 2:07am » |
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hey guys his user name is quitadamo - I read that as "quit a damned mo!" no doubt referring to his pain.
Welcome quitadamo!! I hope it does!
Sorry you needed to find this site but pleased that you did. There are many wonderful people here - (some have a little trouble with reading-LOL Humour only guys!) but everyone has help to give. I have learned so much here.
Let us know if you need any assistance and meanwhile check out the archives.
Good to meet you.
Wishing you PFDAN
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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rumplestiltskin
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well...I'd say it's fairly certain yer not here looking to get laid.
That said...I'm havin a tad bit of trouble finding Clusterheadaches mentioned in yer post. My eyes ain't what they used to be.
Check out them links on the left and look fer the similarities.
love
den
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ave
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Re: March 19, 2003, 8:20pm
« Reply #5 on: Mar 20th, 2003, 5:40am » |
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Just what I thought, Rumpel!
Duration, for one, seems a little off for clusters headaches.
Have you taken the cluster quiz, Q?
Have you been diagnosed with cluster headaches?
For if you don't have clusters this website won't help you one whit. Cluster headaches are totally different from other HA's and medication and treatment discussed here will do nothing for your afflicton.
Some rules of thumb: cluster headaches don't go away with (OTC or prescribed) painkillers.
Alcohol brings them on for many (but not all of us) and smokes do not bring on attacks (ease them a litte in fact.)
Sp far your description sounds like at least a mixture of headaches - tension headaches (from muscle tension in the neck area), the famous headache spikes after sex and maybe coffee weekend headaches.
Tension headaches - massage and better posture.
Sex headaches - well documented, go away by themselves; also have everything to do with head/neck position during sex. (just stop if you get the feeling there's a HA coming, and change position).
Coffee/weekend headaches, have everything to do with lots of coffee on weekdays, getting up late and missing out on your regular coffee shot in the weekends.
If on top of all that you have cluster headaches too... wow.
Otherwise, best find other headache sites that may help youbetter.
Good luck.
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suzy617
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Re: March 19, 2003, 8:20pm
« Reply #6 on: Mar 20th, 2003, 6:30am » |
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Hi Quitadamo,
I agree with the others in that it sounds like you suffer from something other then CH. You stated that with the medium and larger ones, they linger for more then a day but CH lasts only from 1-3 hours then it disappears as fast as it comes on. Also you stated that the pain in your eye was soft and menacing. I've never heard a true clusterhead describe it as so. More like an ice pic being pushed into your eyeball.
Take that quiz and good luck to you.
suzy
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When God measures men, He puts the tape around the heart, not the head.
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quitadamo
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I love YaBB 1G - SP1!
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Re: March 19, 2003, 8:20pm
« Reply #7 on: Mar 21st, 2003, 6:15pm » |
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To those who replied.
Thanks for the welcomes and well wishes.
Yes - I did not say the word CH. Like the word cancer - I do not particularly like it - fact of life or not.
Diagnosed - yes - by a professional MD, a Neurologist, then a HA Specialist in NYC. 3x....
Sorry if some doubt my symptoms and diagnosis.... I did not get into my details, sorry about that.
My symptoms are text book, classic, letter for letter, piece for piece, step by step.... not missing a trick.
Den - No - I am not looking to get laid - at least not on-line (that wasn't an offer - was it?)
Ave - Part of my problem is that I do not mark my Palm with the date & time of every HA - duration is probably not as "off" as it appears.
Six years ago I was setting my clock by the 10:30 am head rocker in a dark room HA. Every day.
I think I went from episodic to cronic and back. It's entirely possible, no?
At one point several years ago, I ended up in a hospital with a spinal tap and a CAT scan and an MRI and a host of other non productive tests.
Tension - you bet. Stress - every day. Coffee - daily.
Change sex positions? You have got to be kidding me -
Ave - you say
"Some rules of thumb: cluster headaches don't go away with (OTC or prescribed) painkillers.
Alcohol brings them on for many (but not all of us) and smokes do not bring on attacks (ease them a litte in fact.)
Sp far your description sounds like at least a mixture of headaches - tension headaches (from muscle tension in the neck area), the famous headache spikes after sex and maybe coffee weekend headaches. "
My reply: OTC meds ease them for me - then again maybe it's just simply the fact that the HA just don't last forever and the meds help me relax (Pamprin, Tylenol Cold & Flu) a bit until the pain goes away.... the OTC's dont fix it - they make it bearable, for me.
You say they don't go away with OTC or prescribed painkillers - but there are a several hundred people on this site who would tell you that's not a correct statement. According to this site's survey - about 26% of 11400 respondents said nothing works. That would mean for 74% of us - something works....
I long for smokes when I have one --- but they don't help end the headache and I think at this point they don't help my general health either.
The headache spikes were not "after" sex - they were immediately pre-big-O.
Something else to think about.... maybe all that twisting and stretching and pulling and tensing leave me with a residual stress/tension HA.... hence the lingering effects.
I have lived with the ice pick behind my eye - scream, cry, tug on my hair, roll around on the floor, the bed, outside on the cool grass, incapacitated.
Practicing meds without a license is illegal in most states..... please keep your diagnosis to yourself - I'm not interested in hearing from nay-sayers, doubting-Thomases, or skeptics. If that's what this place is about - I'll click the little X in the top right corner and make this pain go away.
Not meaning to be cranky here - but I have a touch of righteous indignation on this subject.... when you have lived 30 years with your very own demon - you get a little defensive if some one calls him something other than what he is - especially the first time they meet him.
("It's the fact that I always have to explain" - VM"
Q.
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jonny
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Re: March 19, 2003, 8:20pm
« Reply #8 on: Mar 21st, 2003, 6:28pm » |
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on Mar 21st, 2003, 6:15pm, quitadamo wrote:
My reply: OTC meds ease them for me - then again maybe it's just simply the fact that the HA just don't last forever and the meds help me relax (Pamprin, Tylenol Cold & Flu) a bit until the pain goes away.... the OTC's dont fix it - they make it bearable, for me. |
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Tylenol helps you to relax to the point your CH goes away?
OTC makes your CH bearable?
You better get a new Doc!!!
Hmmmmmm!!!!
................................jonny
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catlind
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Re: March 19, 2003, 8:20pm
« Reply #9 on: Mar 22nd, 2003, 12:41am » |
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Quit,
Welcome aboard. Please forgive us in our skepticism. Like you, we abhore having to explain to non CH'ers what a true CH is. As such, we tend to try to find out all the info possible about what a person goes through and try to help people who do not suffer CH to get to a place that does help. It's very true, this place will not help someone without CH.
Your first post was a little shy on details. Your second post certainly seems to describe CH far better. As I'm sure you already know, we are a doubting breed. Please don't take it personally, as you get to know us here you will come to think of us as family. As a CH sufferer I'm sure you can understand the nature of our skepticism.
I would like to address your point about the diagnosing though. At the beginning of this site is the disclaimer about diagnosis. Few of us here are doctors, but most of us here know more than most doctors about do about CH. This site has more information on it than any combination of text books that the Docs study from. Everyone here will give you their opinion about what they see and what works for them. Your original post doesn't indicate the traditional signs of CH and that is what was being addressed. Almost every new person who comes here is given the "take the cluster quiz" advice. In no way is it to shove off the CH'ers, but to be sure that other HA sufferers find help, and to be sure that CH'ers don't have to deal with other HA types. It is the most excruciating pain known, and it's hard to be patient with folks who suffer sinus headaches and whine.
Welcome aboard, hope you find the things you are looking for here 
Cat
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