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Topic: Newcomer!! (Read 293 times) |
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Jon320
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This is my first visit. It is nice to here that I am not suffering form some extremly rare medical problem. I guess this means there may be help out there. I have had headaches for almost 10 years. I did not seek medical attention until a little more then a year ago. The headaches where causing by left eye to fixate after the headaches had subsided, which prompted the visit. I had no Idea what Cluster headaches where until the doctor told me. I was fortunate that my cycle was ending when I "finally" went to the doctor. He see he would prescribe somthing for the pain but I refused, stating next time I will get something. I am now kicking myself for not acting with the future in mind. I have been free of CH for over a year, luckly; until last week when I sufured my first in over a year. I was in denial, thinking it was just an isolated incident. Guess again! I suffered the most sever CH just last night that I have every had in almost 10 years. It lasted over three hours and just when you thougt it was over it started agian. I hope it dose not occur agian tonight but .......! I only wish that I had taken the doctors advise. I would like to thank every one for the information on the site. I have all ready leaned more in just the last hour then I have ever known. I am one my way the the doctor on monday and this time I will get some help.
Thanks Jon!!!!
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Jarvis
New Board Old Timer
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Posts: 251
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Re: Newcomer!!
« Reply #1 on: Feb 23rd, 2003, 2:12am » |
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Hi Jon welcome. Its good to see you found this place. You will find much help and support from many. .... I'm a lousy supporter but the others are pretty good at it.
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Mark C
CH.com Alumnus
New Board Hall of Famer
Onward through the fog.
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Re: Newcomer!!
« Reply #2 on: Feb 23rd, 2003, 2:16am » |
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Welcome Jon,
Sorry you need us....but glad you found us! There is more information on this site and the OUCH site (see link on left) than anywhere else. More combined CH experience than anywhere else on the net (Thank you again DJ). Educate your self and be prepared for your next visit. I will attach a favorite link to get you started.
PFDAN's
Mark
http://www.clusterheadaches.org/library/general/index.htm
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jonny
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Yo Jon, Jarvis is a ham dont mind him ;D
Click the buttons to the left.
Let us know how we can help you.
.................................jonny (jon)
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cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
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Re: Newcomer!!
« Reply #4 on: Feb 23rd, 2003, 2:38am » |
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Hi Jon.....you'll get good info here.......I'm a pork chop not a ham........good luck to ya...Pammy (pam)
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
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Re: Newcomer!!
« Reply #5 on: Feb 23rd, 2003, 6:13am » |
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Welcome aboard Jon. You definitely are not alone. We all know, really know what this is like. If you stick around, you will find ways to manage this horror, medical and non-medical ideas. Here's one I used very successfully. It's helped many:
Dr. Wright's Circulatory Technique
This is not transcendental meditation, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. It’s not a miracle, but it’s been helpful to many.
When I was diagnosed, my neurologist said to treat this as a vascular problem. I was told to concentrate on “redirecting” blood circulation in order to retard flow to the head. This is done by trying to “send” blood into the arms and hands or other extremities. When properly done, your hands will become warm and redder with increased circulation. I also found it easier to concentrate on one hand.
This relieves just slightly, the pressure on the affected vessel, which indirectly causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about half an hour to no more than a few minutes. Sometimes, when awake, I could entirely abort the attack IF I KEPT AT IT. Often, I would suffer only minor discomfort instead of excruciating pain. Do not stop just because your hands are warm or redder. Keep this up until you are sure it's subsided. If you let up or lose concentration, it’s very hard to restart this process. It may take some time but when this works, the relief is almost immediate.
I learned this from the doctor in a few minutes. He simply told me to try to keep blood away from the head. He thought it easiest to concentrate on the arms and hands but any place that works for you is fine. He said to think of it as "filling your hands" with redirected blood. It’s important to keep at it THROUGH the pain. This will be difficult, but it’s the only way this technique will work. Don’t let up until you are sure the attack has ended.
This will not always work, but I think it will always have at least some effect on the severity and duration of the attacks. It can be useful between medications or while waiting for some other drug to take effect. All it takes is a little practice. It was fairly easy to learn and what I'm writing here is more than I got from the doctor, as I've drawn from my own experience.
When awakened in horrible pain, it’s very hard to focus, but I think it’s always worth a try. This costs nothing but hard work, is harmless, non-invasive, and it gives us a fighting chance.
I wish you the best of luck - Charlie Strand
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There is nothing more satisfying than being shot at without result---Winston Churchill
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cbolony
New Board Newbie
I love YaBB 1G - SP1!
Posts: 8
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Re: Newcomer!!
« Reply #6 on: Feb 23rd, 2003, 8:26am » |
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Quote:| He see he would prescribe somthing for the pain but I refused, stating next time I will get something. I am now kicking myself for not acting with the future in mind. |
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Jon never refuse meds oxygen,imitrex keep on hand all the time they will help you threw your cycle.They sure helped me.I get 3-4 cycles a year.And keep reading all the post they will help you a lot.A lot of good people on this board they will help you
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Ann
New Board Hall of Famer
Annage
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Re: Newcomer!!
« Reply #7 on: Feb 23rd, 2003, 9:10am » |
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Welcome Jon!
Sorry you had to find us, but you've come to the right place. I strongly suggest you continue reading. There are hordes and hordes of information here as well as incredibly educated and kind people here to help. After you've read everything, feel free to ask questions. There is always someone here to help. Good luck
hugs
Ann
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Roxy
CH.com Alumnus
New Board Hall of Famer
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Re: Newcomer!!
« Reply #8 on: Feb 23rd, 2003, 10:12am » |
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Welcome Jon.....I'm sorry you're having a tough time right now, but I'm glad you found the site.
There's plenty of good info and support here. Just read everything you can, and if you still have questions....there is usually someone around who has an answer.
PFDAN,
Tracey
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
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Re: Newcomer!!
« Reply #9 on: Feb 23rd, 2003, 10:44am » |
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Sorry to hear your having a bad time....hope things get better for you soon.
Cathy 
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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