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Topic: Is It Over? (Read 471 times) |
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JoeyT
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I don't know how many of you read my posts from around Christams time - but I was a mess. Before Jan. 1998 I was basically chronic for 20 years. I got CHs everyday but was able to pretty much control then with Cafergot. In the spring and fall I would get a real bad bout that would last 8-10 weeks. SO I guess I was a chronic/ episodic sufferer. After getting ZERO headaches for almost 5 years they started coming back last fall. Right around the holidays the beast returned wanting payback for the 5 years of peace I had enjoyed. To top it off I've had a mild heart attack which completely rules out Cafergot, Imitrex...and most anything else except O2. I had a business trip I had to go on last week which scatred me to death. I had a few attacks but basically did OK. Have been on 40/30/40 prednisone on my trip and have been able to taper down to 20mg. The beast is showing his ugly face less and less...almost gone. I will soon (2-3 days,God willing) be of the steroids.
Question...is it over? Can I have a beer? Not that I'm crazy about beer, but I know it would trigger a CH if they are still around. I still feel headachy now and then but they havent seemed to 'trigger'. How do I know they're gone (at least for a while)? I've got Nitroglycerine but sure as hell wouldn't take it just to see if it would trigger a CH........
How do I know for sure if the cycle is over????
Joey
BTW, thanks to the people who offered to help when I had to be in Europe. Especially Ave and Svenn...you don't know how much your words of encouragement helped me. I am in your debt.
Joey
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Groove
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Re: Is It Over?
« Reply #1 on: Jan 23rd, 2003, 10:17pm » |
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My cycles just end as mysteriously as they appear. One day I'm on the verge of doing something unthinkable, and the next I'm singing along with Celine Dion (not that I think anybody SHOULD sing along with her insipid trash, but my point being that I'm so happy I would do anything).
All this to say that I wish I could answer you but I'm just as stumped as you are when it comes to these damned bastards.
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athos
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Re: Is It Over?
« Reply #2 on: Jan 24th, 2003, 1:50am » |
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The only triggers for me are fingernail polish and remover... (smelt not ingested  ) Alcohol is not a trigger I have had it once and a ahwile I am not a drinker but on the occassion it has done nothing to me to trigger and attack.
There is one pizza place and one chineese place that have triggered one every time I have eaten there. I don't eat there. I guess it is the cheeses or something that they use I don't know....
--Athos....
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rick
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Re: Is It Over?
« Reply #3 on: Jan 24th, 2003, 2:21am » |
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Joey,
Nice outside here in Chitown, eh? GOOD GOD, welcome to freakin Alaska...
I would personally hold off on the alcohol until I was sure I was out of the woods. Steroids will keep the symptoms down for me, only to see the beast return when I get off of them. Maybe you should wait until then.
Peace,
-R
P.S. We're plotting a clusterhead Sox outing if you are interested.
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suzy617
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Re: Is It Over?
« Reply #4 on: Jan 24th, 2003, 5:45am » |
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Hi Joey,
Beer was always a trigger for me while in cycle. I waited around 2 weeks after completely ending cycle including shadows, had my beer and all was good. You say you still feel headachy now so I wouldnt do anything that would piss the beast off just yet, as you know he can be a spitefull bastard.
suzy
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When God measures men, He puts the tape around the heart, not the head.
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SommelierCH
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Re: Is It Over?
« Reply #5 on: Jan 24th, 2003, 7:23am » |
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Hiya Joey, (and others wondering about alcohol and shadows)
ALCOHOL IS A TRIGGER! Sometimes it wouldn’t hit me until 6 hours later. Don’t drink any alcohol until you know for sure, that the shadows have LEFT, it’s just not worth the pain to find out. I drink wine for a living, but when that first attack starts my cycle, I go stone cold sober (10 weeks), until I feel clear of the shadows. If you’re not crazy about beer, don’t drink it. I, on the other hand, love beer, but even a non-alcoholic beer will set me off, if I still have shadows lurking.
Until you know your cycle, play it safe, don't test it. Enjoy your PFDAN,
David J.
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Wine is a little like love. When the right one comes along, you know it!
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brain_cramps
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Re: Is It Over?
« Reply #6 on: Jan 24th, 2003, 8:37am » |
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on Jan 23rd, 2003, 10:17pm, Groove wrote:| I'm singing along with Celine Dion |
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WOW Groove! 
Either you banged your head WAY to much or not quite enough! 
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JohnM
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Re: Is It Over?
« Reply #7 on: Jan 24th, 2003, 8:57am » |
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Celine Dion is a definite trigger for me!
That anorexic bitch is enough to give anyone a headache.
John
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Roxy
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Re: Is It Over?
« Reply #8 on: Jan 24th, 2003, 10:13am » |
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I agree John......
She might not actually trigger one for me.....but, everyone would think she did.....because, I would be banging my head against the wall.
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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Linda_Howell
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Hearing is one thing. Listening is another.
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Re: Is It Over?
« Reply #9 on: Jan 24th, 2003, 11:07am » |
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LMAO @ this thread. I'm surprised someone hasn't mentioned John Tesh or Barry Manlow as a trigger.
I agree with everyone here. Stay off the alcohol til you know for sure.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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brain_cramps
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Re: Is It Over?
« Reply #10 on: Jan 24th, 2003, 12:52pm » |
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I just pray I don't get hit when she's singing the national anthem for the SUPERBOWL.
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suzy617
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Re: Is It Over?
« Reply #11 on: Jan 24th, 2003, 12:57pm » |
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Barry Manilow? Geez I think he was singing his first song on the radio when I got my first CH. Maybe when he retires, I will finally be PF ;D
suzy
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When God measures men, He puts the tape around the heart, not the head.
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K.
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Re: Is It Over?
« Reply #12 on: Jan 24th, 2003, 6:19pm » |
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Suzy, your reply is funny as hell, cracked me up. Same goes for me...maybe we ought to throw Manilow an EARLY retirement party. Then we'll both be PF...as a matter of fact...maybe that's the cure!!
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catlind
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Re: Is It Over?
« Reply #13 on: Jan 24th, 2003, 6:40pm » |
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Note to self:
Cancel booking of Celine Dion and Barry Manilow to perform at convention
Cat
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If yer gonna be stupid, ya gotta be tough
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Cerberus
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Whomever said that two heads are better than one?
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Re: Is It Over?
« Reply #14 on: Jan 24th, 2003, 11:42pm » |
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I personally would wait till I had absoulutely NO pain at all for at least a week. Just a personal preference.
Dang man ! is winter over yet? Where are the avalanches? Where are the Igloos? I see no Sled dogs. Not a damn snowflake to be found anywhere, but ,yet the temperature remains at absolute zero and holding steady.
JoeyT, plese feel free to join us at the sox game in late may, the more the merrier. Just give the woobie and I a heads up if ya wanna go so we can get your ticket.
there are more headbangers here than at a quiet riot concert.......OMG! did I just say quiet riot? Bang your head baby!!!!!
Cerebus
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| « Last Edit: Jan 24th, 2003, 11:44pm by Cerberus » |
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I would rather face the end with terror than terror without end. - (Deitrich Sawatsky 194?)
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