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Topic: my intro (Read 485 times) |
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ComputerGeek
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Hi Everyone,
This is acutually not my first post here but I got off on the wrong foot so I'm trying things differently with a simple intro of my self. I'm male, in my 40's, and have a family. I work full time as a database administrator and go to school full time as well. I have had cluster headaches for a bout 11 years now. They started when I gave up drinking coffee (I have now mended my ways and still drink coffee  ). I few days after quiting coffee I experinced my first cluster. It lasted for about 2 minutes and was so unuusal and painful that I went to see my doctor. He said it was caffiene withdrawl. I said that it was something more than that. He disagreed and I went home. The headaches continued to get worse in pain, frequency, and length. Eventually after several trips to the emergency room he took me serious and diagnosed cluster headaches. I then started trying all kinds of drugs like cafergot, bellergal, beta blockers, and finally the initial one to work, Elavil (not sure if I am spelling it right, its been a while since I was on it). I was on this crappy drug for about 4 years and then went off. About a year later the CHs started up again. I then found a nuro who put me on Sansert as a preventative and Imitrex injections for aborting. The headaches are always on the right side of my head, my eye droops, my right nostril runs, right side of face sometimes hurts, and I sweat. They come around November and leave around February each year. I can't sit down or really do anything but hit my head and pace when they occur. I have a 2 and 1/2 year old daughter so right now when I do get a CH and its not in the middle of the night, I hide in my closet (its big enought to pace in). Any way, Sansert has really changed my life for the better. I get my kidneys checked every 3 months. I have gotten a wealth of information from this site over the last few years. Thank-you. And thank-you to woobie for all the kind words.
Pat
P.S.- sorry for any bad feelings my initial posts may have caused.
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Charlie
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Re: my intro
« Reply #2 on: Jan 19th, 2003, 12:49am » |
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Welcome back and I remember the coffee thing. Coffee is a hobby with me. The idea of not drinking it has never occurred to me. My attacks ended more than 11 years ago but I can find no reason other than I was 45 at the time. I know how lucky I am. Maybe you'll have the same experience.
Stick around and l guess you already know the players here. Glad to have you.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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firebrix
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I must never weaken.
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Re: my intro
« Reply #3 on: Jan 19th, 2003, 5:35am » |
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Welcome aboard ComputerGeek!
Good to meet you but sorry you suffer CH.
Stick around. You'll have some fun, and meet some really cool people here.
Wishing you PFDAN
firebrix
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"All that it takes for the triumph of evil is for good men to do nothing."
Edmund Burke
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Opus
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Re: my intro
« Reply #4 on: Jan 19th, 2003, 7:01am » |
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Pat,
Glad you have come back and sorry you have to be here. I don't think many true clusterheads can stay away for long. Glad woobie caught you in time.
Opus
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Zed-Zed-nine plural-Zed alpha,
There is no place like home.
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marty
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Re: my intro
« Reply #5 on: Jan 19th, 2003, 7:54am » |
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Hi Pat..
Welcome.. Since you are from South Cal, check out the CalOUCH web site on
http://www.pahlow.net/calouch/index.htm
You will find that we are starting to build a contact network and are planning a lot of activites and fun stuff as well as the more serious business of dealing with Doctor and Insurance issues.
We'd love to see you join us
Marty
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Brew
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Low Four!
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Re: my intro
« Reply #6 on: Jan 19th, 2003, 8:13am » |
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You and I are in the same boat, my friend. Sansert has been a life saver for me. I hate to be the one to break it to you, but it has been discontinued by Novartis. Hopefully this means that they've found something better with which to replace it (I heard about something called Methergine on another thread). You might want to talk to your neuro about it.
We can hope, right?
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Always remember that you're unique, just like everyone else.
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suzy617
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Re: my intro
« Reply #7 on: Jan 19th, 2003, 8:22am » |
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Hi Pat,
Welcome to the cluster family. I never tried the coffee thing to abort an attack but I know lots of CHers do that. Glad you came aboard....stick around.
suzy
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When God measures men, He puts the tape around the heart, not the head.
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Woobie
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Re: my intro
« Reply #8 on: Jan 19th, 2003, 9:00am » |
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LOL!!!
See Pat?? That wasn't so hard, now... was it?? 
Tina 
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jonny
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Welcome aboard, Pat
Sorry you have to be here, but im glad your finally home. lots of nice folks here.
......................jonny
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Mark C
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Onward through the fog.
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;DRe: my intro
« Reply #10 on: Jan 19th, 2003, 2:24pm » |
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Welcome aboard Pat.....Tina you kill me ;D
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cootie
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Re: my intro
« Reply #11 on: Jan 19th, 2003, 3:08pm » |
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Hi Pootergeek......I remember yer first posts....live and learn is my motto and I'm still learnin of course.....welcome back....you did good !! Our closets are too fulla junk ta pace in or hide.......good luck to ya......Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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. Continue to educate yourself on your condition through use of this site and the OUCH website is the best advice I can give. 
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