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Topic: New to CH.com (Read 854 times) |
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AtomicTwinStix
New Board Newbie
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New to CH.com
« on: Mar 24th, 2008, 11:02pm » |
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Wow...so glad I found this website! And just in the nick of time. I just finished a cycle about 2 weeks long with at least 2 headaches a day lasting anywhere from 30 minutes to more than 4 hours. Very persistent......8pm every day.
Glad to be here. Hope to meet some great folks, get some advice/help, and maybe offer some of my own.
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thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
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Re: New to CH.com
« Reply #1 on: Mar 24th, 2008, 11:05pm » |
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Welcome,
Houdy from Montany.
thebb 
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| « Last Edit: Mar 24th, 2008, 11:06pm by thebbz » |
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It wasn't me I didn't do it
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DragonSlayer
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That pain is only 1/2 as bad as you think it is!!!
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Re: New to CH.com
« Reply #2 on: Mar 25th, 2008, 12:25am » |
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Hey Atomic 
So sorry you came looking But damn glad you found us!
Welcome to the Clusterville Nuthouse  .
What have you used for treatment so far??
I'm always interested to hear what works for others.
Again Welcome! There is alot of info here pull up a chair and read... Read... Read...
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| « Last Edit: Mar 25th, 2008, 12:26am by DragonSlayer » |
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Mr. Spock tried Vulcan mind meld during one of my K10 hits. You saw how he reacted on TV... then the movie "he's dead Jim"... But he came back....
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Guiseppi
CH.com Alumnus
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Re: New to CH.com
« Reply #3 on: Mar 25th, 2008, 10:12am » |
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And I too am glad you found us! What dragon boy said. Let us know what you've used in the past, what has and hasn't worked etc. This board is all about sharing info and helping each other out. Here's hoping that was your last cycle ever! (I know but we're a damned optimistic bunch!  )
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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Rosybabe
CH.com Alumnus
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"Too much of a good thing can be wonderful!!
 
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Re: New to CH.com
« Reply #4 on: Mar 25th, 2008, 1:11pm » |
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Welcome Home Atomic!!
now grab and oar and row!!!
pain free wishes!!
Rosy.
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 Believing is just the beginning!
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George_J
CH.com Alumnus
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White-Breasted Nuthatch
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Re: New to CH.com
« Reply #5 on: Mar 25th, 2008, 7:16pm » |
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Big welcome from Idaho, ATS.
It's a pleasure to meet you.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Batch
New Board Old Timer
FOX 2 - Check 6
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Re: New to CH.com
« Reply #6 on: Mar 25th, 2008, 8:19pm » |
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ATS,
Welcome to CH.com... Yer are down in the same neck of the woods as ClusterChuck. If you want to meet a fellow CH'er face to face and discover the other world we share, he's in the book. Shoot him a PM with your POC info. He's busy as a beaver, but I'm sure he'll find a way to make time for a meet.
V/R, Batch
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You love lots of things if you live around them. But there isn't any woman and there isn't any horse, not any before nor after, that’s as lovely as a great airplane. Man has one virginity to lose in fighters, and if it is a lovely airplane he loses it to, there is where his heart will forever be.
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AtomicTwinStix
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Re: New to CH.com
« Reply #7 on: Mar 25th, 2008, 9:35pm » |
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Thanks to everyone for the welcome....
As far as treatment...I have not gone the medication route as of yet because my cycles are so randomly spaced apart. I guess in the beginning I thought it was something I'd just have to deal with. And I got sick and damn tired of hearing people with migraines compare their condition to mine. Don't get me wrong, I feel for those folks too, but they just don't know.
Let's see....homegrown treatments that have worked in the past...(worked on some occasions, didn't in others)
- Medium warm shower (sitting down with head between knees), and letting water cascade on my head
- Water....tons and tons of water during cycles.....since my headaches are typically triggered by alcohol during cycles, I try to avoid it at all costs....I do love a cold beer though
- My headaches are typically centered on the right side of my head, and originate behind my eye, gradually taking over the entire right side of my face and head. I've found that in some cases, squeezing both temples with the butt of my palms reduces some of the torment during a 8-10 Kip moment
- I'd like to get some comments on "standby" medications, for when I have a cycle that lasts longer than 3 weeks
I know these "remedies" may sound stupid, but it's just what I do to cope. It varies sometimes for me.....being on my feet is sometimes better than being in the bed. Or sitting in a recliner with no lights or noise. I'd like to hear what others have to contribute...
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thebbz
CH.com Alumnus
New Board Hall of Famer
Ow,Ow,Ow
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Re: New to CH.com
« Reply #8 on: Mar 25th, 2008, 9:53pm » |
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http://www.plainboard.com/ch/chtherapy.pdf
O2 and coffee is a good standby , for aborts. My prevents are secret.  Pick your poison
all the best
thebb
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It wasn't me I didn't do it
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Guiseppi
CH.com Alumnus
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Re: New to CH.com
« Reply #9 on: Mar 25th, 2008, 10:48pm » |
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With such a short cycle the preventative meds probably wouldn't help much. Most take about 2 weeks to build up to a therapeudic level.
Bzz mentiioned oxygen, it should be your first line abortive. My cycles last 8-12 weeks, been doing battle for 30 years and oxygen is still my most consistent weapon. Read the link on the left, I can be pain free in as few as 6-8 minutes using only oxygen. The key points:
Pure oxygen, at a high flow rate, at least 15 LPM, from a non re breather mask, started at the first hint of an attack. Read the link on the left, oxygen info, for more details.
Try slamming an energy drink at the first hint of an attack, Monster, Rock Star, any containing the combo of caffeine and taurine, many can abort or substantially reduce an attack that way.
So glad you found us, I hope we can help you!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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CostaRicaKris
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Currently training for AFC half Marathon
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Re: New to CH.com
« Reply #10 on: Mar 25th, 2008, 11:01pm » |
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on Mar 25th, 2008, 9:35pm, AtomicTwinStix wrote:
Let's see....homegrown treatments that have worked in the past...(worked on some occasions, didn't in others)
- Medium warm shower (sitting down with head between knees), and letting water cascade on my head
- squeezing both temples with the butt of my palms reduces some of the torment during a 8-10 Kip moment
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I know these "remedies" may sound stupid, but it's just what I do to cope. It varies sometimes for me.....being on my feet is sometimes better than being in the bed. ..
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Those don't sound stupid to me at all. I've been known to do the same thing. Especially before I knew what I was dealing with.
~Kris
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Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
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Callico
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Re: New to CH.com
« Reply #11 on: Mar 28th, 2008, 7:16pm » |
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Welcome aboard! We have a couple of other clusterheads in Greenville. Used to live there myself back in the 70's.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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KatzPurr
New Board Newbie
10+ OUCH!
  
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Re: New to CH.com
« Reply #12 on: Mar 28th, 2008, 10:40pm » |
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Welcome ATS! You will find a wonderful group of supporters here. I've only been posting and reading here for a few weeks and the information on these boards has been invaluable. The best suggestion was for me to re-visit the whole O2 option, which has proven to be a godsend thus far. I've only been using it for two days, but man has it made a huge difference in aborting my hits. Many times my ch will begin with a more migraine type ha evolving into a full blown cluster and the O2 has kept those at bay too.
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KatzPurr's Purrrrrrr Palace
http://www.myspace.com/jlabax
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