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Topic: New to membership! (Read 438 times) |
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Rosebuddy
New Board Newbie
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Posts: 18
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New to membership!
« on: Mar 24th, 2008, 2:23pm » |
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I've been reading this cite as a guest for the last few weeks, every since I started my first cycle in 19 years! Very depressing. It took about 10 years of annual 4-5 week cycles to get diagnosed (for years I thought I was having sinus headaches). The problem was, by the time I could get in to see a neurologist the cycle was winding down.
I thought it would be so much easier this time, and I went in armed with info from all of you good people - but it isn't! I always call the dr's office in desperation and take the first appointment I can get, resulting in seeing 4 different doctors already. They always ask about "triggers" and makes suggestions for over-the-counter migraine medication. ARRGH! Anyway, I tried one more time unsuccessfully to get a prescription for O2. No. They want to give me Imitrex capsules (I know she's still thinking migraines). I have a CT scan scheduled, which I expect to be a total waste of time and money, and then maybe will go with the neuro. I feel like they think I am a hysterical hypochondriac! Last night, during my attack, I developed a fever and was nearly giddy - thinking maybe it WAS a sinus infection. But no, I called the nurse line and she asked a few questions and said she thinks I have the flu and it's unrelated to the headaches. Nuts. I'm sure I got the flu from being in the doctor's waiting room so many times.
Well. I am going on and on. Please help me if you can to figure out how to get the right stuff!
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| « Last Edit: Mar 24th, 2008, 2:25pm by Rosebuddy » |
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Bob_Johnson
New Board Hall of Famer
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Re: New to membership!
« Reply #1 on: Mar 24th, 2008, 2:39pm » |
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You could have written the script on why it takes to long to get good treatment. Obviously, time to find a doc who knows!
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1. Search the OUCH site (button on left) for a list of recommended M.D.s.
2. Yellow Pages phone book: look for "Headache Clinics" in the M.D. section and look under "neurologist" where some docs will list speciality areas of practice.
3. Call your hospital/medical center. They often have an office to assist in finding a physician. You may have to ask for the social worker/patient advocate.
4. http://www.achenet.org On-line screen to find a physician.
5. http://www.headaches.org/consumer/index.html Call 1-800-643-5552; they will send a list of M.D.s for your state.I suggest using this source for several reasons: first, we have read several messages from people who, even seeing neurologists, are unhappy with the quality of care and ATTITUDES they have encountered; second, the clinical director of the Jefferson (Philadelphia) Headache Clinic said, in late 1999, that upwards of 40%+ of U.S. doctors have poor training in treating headache and/or hold attitudes about headache ("hysterical female disorder" which block them from sympathetic and effective work with the patient; third, it's necessary to find a doctor who has experience, skill, and a set of attitudes which give hope of success. This is the best method I know of to find such a physician.
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Bob Johnson
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Superdave
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Re: New to membership!
« Reply #2 on: Mar 24th, 2008, 4:50pm » |
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Hi Rosebuddy and welcome,
Always happy and sad to see a newcomer, thank God you found us and read...read...read...
Great place to be in a bad time
Superdave
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Wow! you mean it's just in my head?
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