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Topic: ........UPDATE.......HEARTFELT THANKS... (Read 1937 times) |
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debOUCH
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........UPDATE.......HEARTFELT THANKS...
« on: Mar 24th, 2008, 9:27am » |
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My last big hits, were Friday March 14, all nite, every 2 hrs, 8-9 on KipSacale........ with a Level 7 @ 6am on March 18, and a Level 5 on March 21 @ 9pm..........i am getting shadows, but they "seem" to be getting milder.....Pred taper ending today.....I am taking 10mg of Elavil @ bedtime, which seems to giving me some much needed sleep, tho some evenings i am restless..............2nd neuro appt today @ 1.........I am going to ask for some prescriptions, just in case, tho i am hoping & praying my first bout with the Beast is over...........I want to once again thank all of you wonderful people for your support and much needed information............i NEVER could have done it without you...........................you are all appreciated more than you will ever know.................... 
deb
xo
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Guiseppi
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #1 on: Mar 24th, 2008, 10:07am » |
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That's awesome Deb, anybody beats the beast we all win! Now stick around and help the next clueless soul that shows up here wondering why their eye is trying to pop out of their skull! 
Joe
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #2 on: Mar 24th, 2008, 10:12am » |
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without a doubt, joe!!!!!
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DennisM1045
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #3 on: Mar 24th, 2008, 8:47pm » |
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Hi Deb,
I'm glad to hear you seem to be finding your way out of the woods. Stick around... I like the sound of your thoughts here 
-Dennis-
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LeLimey
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #4 on: Mar 25th, 2008, 9:38am » |
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I hope it IS the end of your cycle Deb and I hope you never have another  I also hope you stick around 'cos I'm enjoying getting to know you!
PF wishes winging their way to you
Helen
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #5 on: Mar 25th, 2008, 9:54am » |
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i am not going anywhere, helen! i 2, am enjoying getting to know u as well as others on here!! i so love to read your posts as well as viewing your awesome pic's of homemade goodies!!! you are absolutely a wonderful "ray of sunshine" on this website!! PF wishes coming your way.......NOW..
deb
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Superdave
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #6 on: Mar 25th, 2008, 4:54pm » |
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I'm so happy you made it through Deb
Pain Free Living from now on.............
Superdave
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Wow! you mean it's just in my head?
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CostaRicaKris
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #7 on: Mar 25th, 2008, 10:10pm » |
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Hi Deb,
I haven't had the chance to get to know you yet but hopefully I will. I totally understand where you are coming from. I joined this site in Sept of last year when I came out of a four year remission. I started feeling better a few months later and dropped off, but the beast came back a few weeks ago and so did I and I've realized how much I've missed all the great people here. I'm sorry you've been in such pain and I hope you will have some relief soon 
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #8 on: Mar 28th, 2008, 7:37pm » |
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costaricakris!!! tks for the sweet words...i c u r from san diego, love it there! also, i guess u like costa rica!! i have been there 2 & loved it!!! i have not had a hit, shadows almost gone..................if i didnt find this site i dont know what i would have done.it was meant to b!!!!
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KatzPurr
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #9 on: Mar 28th, 2008, 8:54pm » |
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Doin' the happy dance for you right now Deb! Thanks for sharing such awesome news. There is nothing greater than hearing a fellow sufferer is PF. I hope the Beast never comes knocking on your door again! I celebrate your Victory with you!
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #10 on: Mar 28th, 2008, 9:07pm » |
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tks katzpurr!!! i hope so too, tho gettin some shadows, but trying to stay positive!!! all u peeps r so sweet! i dont know what i would do without! it's so nice to have others who understand cuz most are so damn ignorant!
deb
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Brew
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #11 on: Mar 28th, 2008, 9:13pm » |
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But "ignorant" doesn't mean stupid. It simply means they don't know. It then becomes incumbent upon us to educate - and not with an iron fist.
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #12 on: Mar 29th, 2008, 8:50am » |
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brewcrew, possibly you may be able to guide me on how to educate those who are not aware of what CH is..........i would say that @ least 1/2 of the people in my life, whether be friends or family, are very quick to dismiss and even after explaining a bit, giving them the OUCH description of a CH, are quick to dismiss,,,,,,,,,,,,,,my Winemaker told me yesterday it is probably PSYCHOSOMATIC!!!!  and also the instances with my nose ring is the cause, and i need a colon cleansing! I have even lost a a friendship with a woman who i THOUGHT was a good friend............thanks!
deb
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Brew
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #13 on: Mar 29th, 2008, 10:01am » |
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Best way I know - print this letter, make multiple copies, and give them to anyone and everyone who needs to be educated:
http://www.ouch-us.org/chgeneral/colleagueletter.htm
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DennisM1045
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #14 on: Mar 29th, 2008, 2:31pm » |
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Ya know Deb... some people just aren't going to get it. They might mean well and by making suggestions within the scope of their experience they are probably really trying to help. Unfortunately they just end up trying your patients instead.
I find it best to only discuss what is going on with those that either witness an attack or are likely to witness an attack. I'm not sure your Winemaker qualifies within that narrow definition.
While it can be difficult to keep such a devistating condition to a small circle of those that are understanding and in a position to help but, in my experience at least, it is far less stressful.
Some people just can't deal with the fact that there are problems for which there are no easy answers.
-Dennis-
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CostaRicaKris
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #15 on: Mar 29th, 2008, 4:44pm » |
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on Mar 28th, 2008, 7:37pm, debOUCH wrote:| costaricakris!!! tks for the sweet words...i c u r from san diego, love it there! also, i guess u like costa rica!! i have been there 2 & loved it!!! i have not had a hit, shadows almost gone..................if i didnt find this site i dont know what i would have done.it was meant to b!!!! |
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Yes, I'm a San Diego native and it's a great place but as my screen name suggests, my idea of paradise is a bit further south.
I'm so glad you're feeling better!
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Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
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CostaRicaKris
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #16 on: Mar 29th, 2008, 4:46pm » |
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on Mar 29th, 2008, 8:50am, debOUCH wrote:| my Winemaker told me yesterday it is probably PSYCHOSOMATIC!!!! |
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You have your own Winemaker?
Can I come live with you?
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #17 on: Mar 29th, 2008, 10:16pm » |
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haha.costarica chris!! best laff of day!  i am a Tasting Room Mgr @ a Vineyard, and the Winemaker makes our wines..........i do refer to him as mine!! sure, come on out east!! i do have an awesome hook up!! brewcrew, i did make copies of that letter as soon as joined site........some peeps care, some dont...wateva .....dont care any more, dont need them..i guess in instances like this, you find out who has your back.................dennis....... my winemaker really should be aware, for if i do have a CH @ work, he may have to cover........my GM and Vineyard Mgr are extremely understanding, as well as my staff........and i spend most of my days there..............my children are aware, my good friends,.......... that is it.........i dont advertise, dont want sympathy, hell! dont need no one else if i have my fellow clusterheads on here , right!!!! it's all GOOD................................ 
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DennisM1045
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #18 on: Mar 30th, 2008, 12:58pm » |
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Sorry Deb! Didn't realize that you worked with the winemaker  That puts him in the circle that needs to know.
-Dennis-
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #19 on: Apr 4th, 2008, 10:04pm » |
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ya ok.................."THE BEAST CAME FOR A ------ VISIT" ....1 week, nothing, shadows all this week, just didnt feel "right".....kinda had the feeling something up.................not 2 bad, like a 5, WTF..........he's messing with the wrong damn person.........i am fuming.................k, thanks...ahhhhhhhhhhhhhhh....feel better.......................................
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Superdave
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #20 on: Apr 4th, 2008, 10:33pm » |
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Don't sweat it Deb, your well armed now, and you know wer'e thinking about you
PF vibes your way girl......ooooo
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Wow! you mean it's just in my head?
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #21 on: Apr 5th, 2008, 8:17am » |
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so like, am i beginning another cycle or still in the same one!!!!!!!!!!
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LeLimey
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #22 on: Apr 5th, 2008, 8:54am » |
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Hi Deb, unless you have had 28 days pain free then it isn't a new cycle, it's the same one.
I hope that helps, I hope it IS all over soon for you too (HUG)
Helen
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debOUCH
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #23 on: Apr 5th, 2008, 8:57am » |
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tks helen.another thing u just taught me........................gta go to work!!!
deb
xo
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E-Double
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Re: ........UPDATE.......HEARTFELT THANKS...
« Reply #24 on: Apr 5th, 2008, 9:05am » |
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glad u had a break but bumbed it is still around...hang in there and call me if needed you have my number
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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