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Topic: New here - supporter!! (Read 342 times) |
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jcork
New Board Newbie
I love YaBB 1G - SP1!
Posts: 2
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New here - supporter!!
« on: Jan 7th, 2008, 9:24am » |
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Hi everyone! I am not a CH'er, but a supporter. My husband (wcork) found this site the first of November and I have been lurking since then, but finally decided to join. He went through a 3-4 remission after being chronic for 10 years and then last november, they came back with avengence!!
I have done a TON of research and this site has helped SOOOOO much!! My thanks to all of you!! It took a while, but we finally found him a headache specialist that really seems to know about clusters. He is now doing better, getting only 1 or 2 a day and finally getting sleep. He has Imitrex injections, on O2 (15lpm with a nonrebreather) and in on depakote and 240 mg of verapamil. He did have a occipital nerve block and we think that helped as well. He had one that did not do anything, but then the Dr said he might have missed the "right" spot and asked to try it again at no charge - and this time it seemed to help a LOT.
Anyway, I just wanted to introduce myself, say hello, and I will also be putting a tip we found that helps on the treatments board. I havent seen it mentioned here so thought I would list it.
God bless all of you!!
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rocketman3104
New Board Newbie
Fightin'em off, one at a time
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Posts: 44
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Re: New here - supporter!!
« Reply #1 on: Jan 7th, 2008, 10:32am » |
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Welcome. I'm glad you found this family. Sorry you had to though. But none the less, welcome. Your husband is lucky to have a supporter like you. I do, and it makes it alot easier to deal with. So my hats off to you for being there for him.
Sounds like you have some of the best treatment already started. If you have something that works and haven't seen it posted here, let us know about it! It may give another relief.
So take care and again, WELCOME!
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Paul
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Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
  
 
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Re: New here - supporter!!
« Reply #2 on: Jan 7th, 2008, 11:13am » |
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Hi and welcome.
It is supporters like yourself that help us go on...If I could, I'd give you a great big hug. Way-to-go girl !!!
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Guiseppi
CH.com Alumnus
New Board Hall of Famer
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Re: New here - supporter!!
« Reply #3 on: Jan 7th, 2008, 12:19pm » |
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Just another hug and a thanks, my supporter of 28 years is all that's kept me sane...she's also the one that found this board for me! You supporters have it as bad or worse then us since all you can do at times is juat watch.......we do appreciate you! 
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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DennisM1045
New Board Hall of Famer
One wave at a time!
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Re: New here - supporter!!
« Reply #4 on: Jan 7th, 2008, 1:05pm » |
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Welcome! Supporters rock! 
Without people like you we'd all be insane or dead. Thank you.
-Dennis-
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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Annette
CH.com Alumnus
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Veni Vidi Velcro
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Re: New here - supporter!!
« Reply #5 on: Jan 8th, 2008, 8:43am » |
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Hello and welcome !
I am a supporter for my husband who has CH. He is out of cycle now but I stay around to try to provide support for others.
Glad to meet you and I am happy to hear your husband has found the med combos that work for him.
All the best.
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Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
Arthur Conan Doyle
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tessistired
New Board Veteran
I love YaBB 1G - SP1!
Gender:
Posts: 117
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Re: New here - supporter!!
« Reply #6 on: Jan 10th, 2008, 9:42am » |
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Thank you soooooo much for being YOU!!!!! And doing what you do for your husband. It's so true what Jonny said...if it weren't for supporters like you we would either go insane or be dead. Everyone here on this site are my supporters. I dont really have anyone else to support me but my young children who are 7 and 10 and I try not to burden them. But they are truely a blessing. They do understand moms ch's and kiss my head when i am having a hit to try to make it go away...gosh if only that worked!!!!!!
But please keep up the great job and THANK YOU AGAIN!!!
MANY BLESSINGS TO YOU AND YOURS!!
TESS
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