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Topic: Not hurting enuf? (Read 2104 times) |
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Mybelle
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Not hurting enuf?
« on: Apr 1st, 2008, 7:23pm » |
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There are some people here who have said that because my husband's headaches are few and not at a level 9 or 10 that maybe he doesn't have CH. But I am sure he does, due to the times he gets them and the shadows and "twinges" - and the way that rockstar takes care of them - He gets them at the very worst at a level 8 and he's really good with pain and would rather not thrash around but wrap his head in ice and pass out - Some things were said that made me feel as though we were outsiders because we don't suffer enough. Not true, not a minute goes by that I don't wonder whether he's having a shadow, and every morning when I wake up he's there to tell me he either slept through the night or he woke at 4:30 with a 2 or 3 and had twilight sleep. I think that validates us....
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Jonny
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Re: Not hurting enuf?
« Reply #1 on: Apr 1st, 2008, 7:25pm » |
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on Apr 1st, 2008, 7:23pm, Mybelle wrote:| I think that validates us.... |
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Has he been diagnosed?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Charlotte
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Re: Not hurting enuf?
« Reply #2 on: Apr 1st, 2008, 7:32pm » |
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There are just times when we may feel like an outsider. That doesn't make it so. If you are here, you are part of the family.
Charlotte
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Mybelle
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Re: Not hurting enuf?
« Reply #3 on: Apr 1st, 2008, 7:32pm » |
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no he hasn't - and that's his problem - he won't go -since he found this website - there's nothing here that doesn't fit -
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Jonny
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Re: Not hurting enuf?
« Reply #4 on: Apr 1st, 2008, 7:34pm » |
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on Apr 1st, 2008, 7:32pm, Mybelle wrote:| no he hasn't - and that's his problem - he won't go -since he found this website - there's nothing here that doesn't fit - |
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The pain cant be to bad if he wont go to a doc, right?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Mybelle
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Re: Not hurting enuf?
« Reply #5 on: Apr 1st, 2008, 7:37pm » |
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thanks Charlotte, I think this website is more for me than my husband who is computer illiterate, so all info he gets is from me through this website - He can be headache free all day and then boom at 3:30 or 4:00 wake with a 3 or 4 - I guess I'm just a worrier like my mom (I always told her to chill out - now my kids tell it to me) and I hate being like that - it sucks the life out of the day 
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vietvet2tours
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Re: Not hurting enuf?
« Reply #6 on: Apr 1st, 2008, 7:40pm » |
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Sounds like a bad headache.
Potter
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Mybelle
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Re: Not hurting enuf?
« Reply #7 on: Apr 1st, 2008, 7:41pm » |
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No jonny, the pain isn't that bad (shadows, twinges) but when he's had the full on headache (hatchet in eye) he says they were an 8 according to kip - but people say "oh it'll get worse" - I don't really need to hear it - that's not encouraging!!!! He's been like this for 7 weeks - he's developed his own pattern 
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JeffB
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Re: Not hurting enuf?
« Reply #8 on: Apr 1st, 2008, 7:43pm » |
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Hmm???
See a Doc. See a Doc in the middle of a hit. It's a lot better than a bunch of folks on the internet diagnosing him. (Although I'd bet dollars to doughnuts most of these people know more than the average Doc)
As far as sleeping through the night when in a cycle? No way! The beast doesn't tease me with a 2-3, it's just all out war, every night, till the focker moves on.
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| « Last Edit: Apr 1st, 2008, 7:46pm by JeffB » |
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jimmers
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Re: Not hurting enuf?
« Reply #9 on: Apr 1st, 2008, 7:45pm » |
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Did these people say these things on another thread or PM?
I know from first hand experience that no one here would ever turn their backs on anyone in need.
I guess you could call it being "Gun shy" Please don't take it to heart. there have been way to many phonys that have posted on here and sooner or later people become critical. They "Cry wolf" for the lack of a better term and that makes CH sufferers and their supporters become skeptical because they to are hurting.
Welcome, grab a chair and don't dissapear when the pain that your hubby has subsides. There is a lot to learn here, but just make sure you grab an oar and keep rowing.
Sorry for the psycho babble, but I'm in cycle right now and my brain isn't working right! 
Jimmers
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I don't suffer from INSANITY; I'm enjoying every minute of it!
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Mybelle
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Re: Not hurting enuf?
« Reply #10 on: Apr 1st, 2008, 7:49pm » |
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JeffB- When he gets one it is usually every other night - and perhaps he's winding down - in the beginning he was getting them every night and up for a few hours so........we're all different
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Jonny
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Re: Not hurting enuf?
« Reply #11 on: Apr 1st, 2008, 7:57pm » |
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Could it be that he is just saying "Not now honey I have a headache"?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Mybelle
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Re: Not hurting enuf?
« Reply #12 on: Apr 1st, 2008, 8:03pm » |
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Nope - and why are you so hostile? He's never said that to me - nor I to him
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PollyPocket
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Re: Not hurting enuf?
« Reply #13 on: Apr 1st, 2008, 8:07pm » |
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on Apr 1st, 2008, 7:43pm, JeffB wrote: Hmm???
See a Doc. See a Doc in the middle of a hit. It's a lot better than a bunch of folks on the internet diagnosing him. (Although I'd bet dollars to doughnuts most of these people know more than the average Doc) |
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I agree with ya there Jeff.
As far as sleeping through the night when in a cycle? No way! [/quote]
Disagree with ya there Jeff. I haven't had a night hit in 12 years.
Mybelle, get him to a doc for a proper diagnosis. He needs some good meds to combat the beast instead of trying to fight a battle without weapons, or worse yet, having you fight the battle for him.
Youre a good lady for being so supportive of him (but drag his ass to a doc)
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened. " - Tori
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Jonny
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Re: Not hurting enuf?
« Reply #14 on: Apr 1st, 2008, 8:08pm » |
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on Apr 1st, 2008, 8:03pm, Mybelle wrote:| Nope - and why are you so hostile? He's never said that to me - nor I to him |
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Hostile?.......I just asked a question.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Mybelle
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Re: Not hurting enuf?
« Reply #15 on: Apr 1st, 2008, 8:12pm » |
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He won't go - I can't force him - he weighs more than me - he's started arguments against docs every time I mention that - as far as his sleeping - a report said that 50% of CH took melatonin and were helped significantly - the first night my husband took it was the first night he slept through the night - we added benadryl and taurine - he woke up last night but went back to sleep - was the trial wrong?
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Jonny
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Re: Not hurting enuf?
« Reply #16 on: Apr 1st, 2008, 8:21pm » |
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on Apr 1st, 2008, 8:12pm, Mybelle wrote:| a report said that 50% of CH took melatonin and were helped significantly - the first night my husband took it was the first night he slept through the night |
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What report was that?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Redd
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Re: Not hurting enuf?
« Reply #17 on: Apr 1st, 2008, 8:23pm » |
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Part of the the concern here, is that proper diagnosis is critical, because it rules out more sinister conditions such as a tumor or worse.
Medications and treatments that we use could be very dangerous for someone who has a different condition.
As his supporter you need to tell him that he needs to cut the stubborn crap and get to a Doctor. Period.
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| « Last Edit: Apr 1st, 2008, 8:23pm by Redd » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Mybelle
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Re: Not hurting enuf?
« Reply #18 on: Apr 1st, 2008, 8:27pm » |
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Update on therapies for cluster headache by Todd D. Rozen and I quote"The efficacy of 10 mg of oral melatonin was evaluated in a double blind placebo controlled trial. cluster heache remission within 3 - 5 days occurred in 5 of ten patients who received melatonin, compared with none of ten patients who received placebos. Melatonin has also shown to be an effective preventive in chronic cluster heache. It is my belief that melatonin should be initiated in all cluster patients as a first line preventative sometimes even before verapamil". I printed the article out for my husband and just typed for you the quote.
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Charlotte
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Re: Not hurting enuf?
« Reply #19 on: Apr 1st, 2008, 8:28pm » |
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See, kid. This is what happens to family. Now we are nagging you to get his ass to the dr, for elimination purposes.
You can't win. Lol.
Charlotte
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Mybelle
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Re: Not hurting enuf?
« Reply #20 on: Apr 1st, 2008, 8:29pm » |
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Redd-if it's not getting worse but getting better there is no way he will go to a doctor
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Mybelle
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Re: Not hurting enuf?
« Reply #21 on: Apr 1st, 2008, 8:32pm » |
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thanks Charlotte - getting it from both ends......sheesh! 
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Charlotte
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Re: Not hurting enuf?
« Reply #22 on: Apr 1st, 2008, 8:32pm » |
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and if it is episodic, it should be over, eventually.
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Annette
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Re: Not hurting enuf?
« Reply #23 on: Apr 1st, 2008, 8:35pm » |
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CH is a medical condition and both legally as well as medically a person cant claim to have the condition without being formally diagnosed by a doctor. A diagnosis is not something that people can validate for you.
However, when people here urge your husband to go to a doctor to get properly diagnosed and treated, its only for his own benefit. Other conditions may cause similar symptoms. We have had people coming here diagnosing themselves with CH but later found out they really had something else when they were properly checked out by their doctors.
The truth is CH can start out as mild then progressily gets worse. I am sure when home remedies dont work anymore and the pain gets bad enough he will want to go. Obviously your husband has a right to choose whether or not he wants to see a doctor now but then without a proper diagnosis people have a right to have doubt also.
Its not a matter of being outsider or not, its a matter of getting proper care and treatment.
Whatever it is, I sincerely hope that he will be painfree.
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Mybelle
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Re: Not hurting enuf?
« Reply #24 on: Apr 1st, 2008, 8:39pm » |
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Thank you Annette, and I hope he doesn't get worse for his sake - but if it does he will go.....
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