Author |
Topic: Microvascular Decompression (Read 495 times) |
|
B14CK5H33P
New Board Old Timer
Circa '92
 
Gender: 
Posts: 346
|
 |
Microvascular Decompression
« on: Mar 30th, 2008, 5:47am » |
 Quote  Modify
|
Has anyone ever heard of this form of surgery? It is mainly used to treat Trigeminal Neuralgia, but it looks like they are also using this procedure for Cluster Headaches, according to an article from MHNI.
http://www.mhni.com/clusterheadaches.aspx#surgical
This is a video of the surgery. Warning - GRAPHIC images... not for the squeamish.
http://youtube.com/watch?v=l4sne6iCriY
Once I get through physical therapy and pain management, I am seriously considering this procedure (but think I'll wait until it is proven to work for chronic CH.)
For now, I'll stick to sucking o2. The non-rebreather mask is shit, but I plan on getting a scuba valve to get the highest benefit possible from the o2.
Also, has anyone ever tried Clomid for CH? It is a med used to help steroid users get off the pump-up junk.
Peace,
Carl D
|
|
 IP Logged |
My show is Sundays from 7pm - 1am eastern on www.wildbunchradio.com
Reality Is For Those Who Lack Imagination - Ken Olsen (R.I.P.)
Won't give up it wants me dead, Goddamn this noise inside my head -NIN
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
 
Gender: 
Posts: 3090
|
|
Re: Microvascular Decompression
« Reply #1 on: Mar 30th, 2008, 7:14am » |
Quote Modify
|
sorry Carl I haven't heard of it until now. Pain managment and physical therapy can do wonders. That is how I have been pain free for years. I would really be careful with the o2 and breathing in more than what you are suppose to. I would hate to see your lungs go Kaput. Hang in there brother. Nice to know there are more and more options every day out there for us.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
deltadarlin
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1485
|
|
Re: Microvascular Decompression
« Reply #2 on: Mar 30th, 2008, 10:09am » |
Quote Modify
|
Are you sure about the Clomid? Clomid is used to treat infertility in women. It works by stimulating an increase in the amount of hormones that support the growth and release of a mature egg (ovulation).
|
|
IP Logged |
If it weren't for the gutter, y mind would be homeless.
http://photobucket.com/albums/v123/tribander_3/
You pretend to pay me, I pretend to work.
|
|
|
Mrs Deej
CH.com Administrator
My life is what I make it....and it's beautiful!
Gender:
Posts: 523
|
|
Re: Microvascular Decompression
« Reply #3 on: Mar 30th, 2008, 10:22am » |
Quote Modify
|
Carl,
When we went to Stanford for DJ's follow up, Dr. Steinberg used this term. Here's a link to Stanford's site...maybe it can explain stuff.....
http://med.stanford.edu/neurosurgery/patient_care/functional.html
sorry couldn't be more help...
|
|
IP Logged |
Live everyday as if it were your last, ALWAYS say 'I love you' when leaving someone dear to your heart and NEVER go to bed angry!
|
|
|
B14CK5H33P
New Board Old Timer
Circa '92
Gender:
Posts: 346
|
|
Re: Microvascular Decompression
« Reply #4 on: Apr 1st, 2008, 9:39am » |
Quote Modify
|
on Mar 30th, 2008, 10:09am, deltadarlin wrote:| Are you sure about the Clomid? Clomid is used to treat infertility in women. It works by stimulating an increase in the amount of hormones that support the growth and release of a mature egg (ovulation). |
|
A friend of mine who is a biomedical engineer (and has also got me the proper docs after my primary almost killed me last year) read about a study on Clomid. Apparently it is also used for steroid users who are coming off the bulk-drugs, and may be useful for CH.
on Mar 30th, 2008, 10:22am, Mrs Deej wrote:
Thanks Steph. Right now any info I can get my hands on is helpful. One thing I have been scared to death of is having a doctor cut on me for anything. Last thing I need is to be worse off than I already am.
I'm hoping the pain management helps with my other probs. The sooner I can get back on a stage, the better.
For now, I have a hard time standing for too long, and walking has become a chore. Come to find out, it's not my hip at all, but 3 lower discs screwed in my back and a pinched nerve. Also found out the constant ache in the back of my head at the base of the skull is from my neck having no curvature, and T1 is pointing upward towards the base.
Finding the cause is always nice. Helps to find solutions. 
|
|
IP Logged |
My show is Sundays from 7pm - 1am eastern on www.wildbunchradio.com
Reality Is For Those Who Lack Imagination - Ken Olsen (R.I.P.)
Won't give up it wants me dead, Goddamn this noise inside my head -NIN
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss