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   Author  Topic: Now this is far too tempting...  (Read 365 times)
sandie99
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Now this is far too tempting...
« on: Jan 9th, 2008, 2:53pm »
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Finland's Migraine Assosiation (the headache organization in which all of us clusterheads back in here belong to), is now doing some ultimate changes within its communication department and they want us, its members, to give them some new ideas.
 
And I'm far more than willing to give them few of my suggestions, I can tell you that! Grin So far they have pretty much ignored us clusterheads - after all, I cannot recall the last time their 4 times a year publication Headache would have had a piece about ch - and until last year they didn't even have a information leaflet.
And they still haven't added those links I suggested to their website... meaning ch.com and ouch... Roll Eyes
 
So, I'm going to give it a day or two, gather my ideas and suggestions and email all of them then. Maybe, just MAYBE this could mean that FINALLY they will actually listen and pay attention to clusterheads also! We're part of the organization, so we deserve to get some kind of attention every once in a blue moon. After all, I am paying a membership fee...
 
Sanna
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CH happends, Live anyway! PF days to us all!

"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)

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Guiseppi
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Re: Now this is far too tempting...
« Reply #1 on: Jan 9th, 2008, 3:28pm »
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Stay on them! You have the gift of the pen, they'll be no match for you! Grin
 
Guiseppi
« Last Edit: Jan 9th, 2008, 3:28pm by Guiseppi » IP Logged

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Jonny
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Re: Now this is far too tempting...
« Reply #2 on: Jan 9th, 2008, 4:04pm »
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on Jan 9th, 2008, 3:28pm, Guiseppi wrote:
Stay on them! You have the gift of the pen, they'll be no match for you! Grin

 
Yeah, you could write a piece on CH for one of the 4 times a year publication.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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nani
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Re: Now this is far too tempting...
« Reply #3 on: Jan 9th, 2008, 4:12pm »
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Go for it, Sanna! I think it's a great idea, and good practice for you, also.  Smiley
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