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   New post - old illness
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victorj
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New post - old illness
« on: Feb 21st, 2002, 2:51am »
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Hi:  My name is Victor and I have been suffering from Cluster Headaches for about 4 years Embarassed.  I am seeing a neurologist who has put me on verapaxmil and lithium.  I recently weened myself of the lithium since it zapped my energy level.  I am still on the verapaxmil and have a cluster headache once every day or two.  Once in a while I get several in one day.  Over the years the headaches have become much more severe......requiring an imitrix injection followed by amerge after 3 hours.  My doc says I am a chronic difficult case since I have not had more than 5 days relief without a cluster.  I started accupuncture treatment about two months ago but have not noticed any change.  Does anyone have any experience with Accupuncture therapy? Any advise is greatly appreciated.
 
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sithlord
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Re: New post - old illness
« Reply #1 on: Feb 21st, 2002, 2:56am »
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hey there,
     Wow, yours sound a lot worse then mine.  Never tried accupuncture before, but I truly believe in alternative medicines.  My doc just started me on Verapamil yesterday.  I'm not chronic, just episodic.  I'm a little scared that I may have to go on lithium some day.
sithlord
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Melissa
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Re: New post - old illness
« Reply #2 on: Feb 21st, 2002, 6:51am »
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hi Victor! ;D  Welcome to our cluster family, I'm very sorry you are suffering Sad, but this is the best place for you to be!  I'm sorry, I don't have any info to give you on acupuncture, but just wanted to tell you hi, and to hang in there!
 
take care,
melissa
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David_M
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Re: New post - old illness
« Reply #3 on: Feb 21st, 2002, 8:58am »
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Hi Victor,
I've tried both accupuncture and massage therapy.  Both were consistently effective for getting rid of a headache.  But for breaking a cluster, I'm sorry to say its inconclusive for me.
 
Best wishes to you.
 
Dave
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murphysmom
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Re: New post - old illness
« Reply #4 on: Feb 21st, 2002, 9:23am »
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I am also sorry to hear of your pain brother Sad.  like melissa I have no experience with acupuncture, I have tried chiropractic treatment with some success for individual headaches but not breaking cycles...alas topamax, midrin, and amerge are my only hope in an emergency...Good luck though I hope it works for you..mmom
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nancyc
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Re: New post - old illness
« Reply #5 on: Feb 21st, 2002, 4:35pm »
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I agree with david m and murphysmom...accupuncture did not help me...massage therapy helped with the tension in my neck and shoulders when under attack really hard but did not stop the chs....sorry i could not help more....rite now, imitrex is my salvation....smiles,nancyc
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Jayne
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Re: New post - old illness
« Reply #6 on: Feb 21st, 2002, 4:44pm »
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My question to you is ....what dosage of verapamil are you /have you been on....???????
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135447360 135447360   mondocharlie   mondocharlie
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Re: New post - old illness
« Reply #7 on: Feb 21st, 2002, 8:46pm »
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Hi Victor:
 
From what I have seen and read, acupuncture hasn't been effective for Ch. Most alternative medicine isn't effective, and is usually expensive.
 
Believe me, I wish otherwise.  
 
Charlie
 
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