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Topic: New to ch.com (Read 730 times) |
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Rick_K
New Board Old Timer
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Posts: 291
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New to ch.com
« on: Nov 30th, 2003, 2:37pm » |
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Hello everyone…….
I’m new to ch.com, found you guys kinda backwards, I was “invited” over here from the OUCH message board. A little about me…I’m 49 years old (yes, soon to be 50!) and have suffered from clusters since 1969. Was not correctly diagnosed until the mid 80’s buy an old doctor who still wore the little mirror with the hole in it on his head, he called it “Horton’s Syndrome”. Just finished a looooong 5 month battle with the beast, but happy to say been pain free for about 2 months now. One hell of a summer.
Thank you for listening and being here. I’m proud to join such a great family, if I’m invited in…
Rick
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episodic since 1969........damn
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Mastifflvr28
CH.com Alumnus
New Board Hall of Famer
Freddie's eyes
 
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Posts: 3458
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Re: New to ch.com
« Reply #1 on: Nov 30th, 2003, 2:41pm » |
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Of course you are invited in Rick,
Welcome to this crazy family!!
Whilst you are out of cycle, this is the PERFECT time to educate yourself on this condition and there's no better place then here and over at the OUCH site.
Hopefully we can help make your next cycle your easiest one to get through 
Take care,
Mast
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Mastifflvr28 (aka Michelle A.)
Be part of the solution
http://www.ouch-us.org
OXYGEN!!!
http://www.maplefallswebdesign.com/misc/oxygen/oxygen.htm
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jonny
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Welcome Rick.
Invited?....we dont send out invitations but then again we welcome all that suffer or support CH.
....................................jonny
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Rick_K
New Board Old Timer
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Posts: 291
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Re: New to ch.com
« Reply #3 on: Nov 30th, 2003, 3:33pm » |
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Thank you 
PFDAN to all
Rick
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episodic since 1969........damn
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ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
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Re: New to ch.com
« Reply #4 on: Nov 30th, 2003, 3:50pm » |
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Welcome aboard, Rick! Are you sure you want to align yourself with this bunch of loonies? (But I am ok!)
Tell us some more about your fight with the beast, like how often you get them, how long does a cycle last, what meds you have tried, what were some of the "diagnosis" that were thrust on you?
We are all in this boat together, and it takes all of us to move this thing along, so grab an oar, take a seat and start rowing! (If not, the oar mistress, Cootie, will make SURE you do. Don't get her pissed! haha!)
Look forward to hearing more from you!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
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Re: New to ch.com
« Reply #5 on: Nov 30th, 2003, 3:50pm » |
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Welcome aboard Rick!
Read as much as you can from this site, you will not be disappointed!
Chris
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Where does the white go in a snowman when the snow melts?
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Little Deb
New Board Hall of Famer
Please SPAY and NEUTER all dogs, cats and idiots!
 
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Re: New to ch.com
« Reply #6 on: Nov 30th, 2003, 4:01pm » |
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Welcome Rick from Dallas!
You have found a place to call home. You can have that room over there  . Here is the lease...I take money orders only, and don't be late! I'll give you the first month for the low, low price of $125.oo a month.
Oh, and we don't have maid service, so please pick up after yourself.
Once again, welcome to clusterville!
Have a nice day 
tryin' to make a buck...Little Deb
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Adopt a shelter pet!
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cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
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Re: New to ch.com
« Reply #7 on: Nov 30th, 2003, 4:13pm » |
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on Nov 30th, 2003, 2:37pm, Rick_K wrote: found you guys kinda backwards 
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Hi Rick great to hear your PF welcome to the family...
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
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Re: New to ch.com
« Reply #8 on: Nov 30th, 2003, 4:19pm » |
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on Nov 30th, 2003, 4:01pm, Little Deb wrote:
I'll give you the first month for the low, low price of $125.oo a month.
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Deb, I thought you liked me! Why did you charge me three times that amount?
Now I am hurt ... sniff snifff ...
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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Little Deb
New Board Hall of Famer
Please SPAY and NEUTER all dogs, cats and idiots!
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Re: New to ch.com
« Reply #9 on: Nov 30th, 2003, 4:21pm » |
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Chuck, I am getting desparate this close to Christmas. I'll take what I can get!!!
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Adopt a shelter pet!
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don
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Welcome aboard Rick.
If I were still waiting for the invite my last post would have been in 2000 !
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Rick_K
New Board Old Timer
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Posts: 291
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Re: New to ch.com
« Reply #11 on: Nov 30th, 2003, 5:13pm » |
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Well Chuck, there have been so many over the last 34 years I can’t remember them all so I’ll touch on the highlights I can remember. When they first started it was an eye problem and the doctor said I needed glasses, that didn’t work. I then spent about 15 years with sinus problems. Every time the beast came a knockin’ I had a sinus infection so that was the problem, go figure. The doctor that diagnosed clusters, he called it Horton’s Syndrome, used an 8” wire with a small cotton ball on the end that he dipped in a 5% cocaine solution and shoved up my nose to deaden a group of nerves (makes my nose hurt just thinking about it). That worked once although I had the treatment during my next two cycles with the beast with no help or relief. That was in the mid 80’s. Back to my regular doctor and a couple of nuros who used pain killers like candy, they had no idea what they were dealing with. Went through a lot of “try this and give me a call”. Found oxygen in the mid 90’s (yea) and a nuro who knew his stuff in 98. Presedone, Verapamil and Caffergot along with imatrex and oxygen is the latest cocktail that seems to work for me.
As for when the beast came visiting, I cannot remember when or how long in the 70’s or 80’s but in the 90’s I was on a cycle of 3 months pain and 3 years pain free. Found my current nuro in 98 and after a 3 month cycle, that was the first time on Presedone, Verapamil and Caffergot, had 5 pain free years only to go through the 5 month cycle last summer.
I don’t know but sometimes I think the drugs have lengthened the cycles but the pain is a little more under control, not much but a little. I’ll take what I can get.
I’m glad I found a new home and I should fit right in with a bunch of loonies.
Rick
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episodic since 1969........damn
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BlueMeanie
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on Nov 30th, 2003, 3:50pm, ClusterChuck wrote:| Welcome aboard, Rick! Are you sure you want to align yourself with this bunch of loonies? |
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Welcome Rick. I'm kinda new here at Clusterville. One thing is for sure. ClusterChuck couldn't have said it better. LOL
Great Bunch Of People Here Who Are Willing To Listen & Help All They Can.
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Patrick_A
New Board Hall of Famer
If i could get my hands on that wascally Wabbit
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Re: New to ch.com
« Reply #13 on: Nov 30th, 2003, 9:11pm » |
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Hey Rick,
Glad to see ya found the CH.com site. I noticed ya wondering around at OUCH.com and sent ya the invite to visit us here.
Grab an oar bro, If ya aint suffering, Ya gotta row!
Patrick
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Do you think that when they asked George Washington for his ID, that he just whipped out a One Dollar Bill?
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
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Re: New to ch.com
« Reply #14 on: Nov 30th, 2003, 9:43pm » |
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Hi Rick,
Welcome to the board!
Lotz of great info here.....and good friends too! 
Usually someone here 24/7........so keep posting and let us know how you are doing.
Wow......Texas is upping their population here on the board.....lol
Hope you enjoy this "family" as much as I do!!! 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
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Re: New to ch.com
« Reply #15 on: Nov 30th, 2003, 9:59pm » |
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Quote:| I’m new to ch.com, found you guys kinda backwards |
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You're not kidding! It's tough having to slog your way around in here. We're easily side-tacked. 
Welcome to the madhouse and these goofs know more about this horror than most anyone. You'll find some good ideas here.
Mine too began in 1969 when I was 23. I've been PF since 1991 and other than my being 57, I have no idea why. I'm not complaining.
Here's to another 10,000 PF months.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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mikeyd
New Board Veteran
 
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Re: New to ch.com
« Reply #16 on: Nov 30th, 2003, 11:28pm » |
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,
Enjoy your stay at the clusterhead hotel!  , Glad you could make it!
Mikeyd
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Waging war with the beast is tiresome & painful but never boring ;-D
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nancyc
New Board Old Timer
Friends don't let friends post drunk on mbs......
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Re: New to ch.com
« Reply #17 on: Dec 1st, 2003, 12:37am » |
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Hi Rick...welcome to clusterville....grab an oar...and dont forget you have to take the dogs out on monday nites and on saturdays you get to pick up the icecream for Mastiff ....Make yourself at home...take your shoes off and stay awhile... nancyc ps Don't worry about being late on the rent, Deb is a real sweety!...
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cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
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Re: New to ch.com
« Reply #18 on: Dec 1st, 2003, 12:47am » |
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Oar mystress domineque cootie here..........so git your leather suit on and start rowin with us........glad ta have ya aboard !!! OK git busy........row row row yer boat...........hmmm........where have I heard them lines before ? Pam that's boat is not always afloat
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Mikey
New Board Hall of Famer
Rock till ya Drop and DON'T mess with the FAM!!!!!
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Re: New to ch.com
« Reply #19 on: Dec 1st, 2003, 1:00am » |
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Welcome aboard Rick.....Chuck was lying, he's not OK!!
Anytime you need us, we're here, and ask all the questions you want to ask, because like Charlie said, you are with some of the most informed, and loving people in the world.
So, grab your oar and start rowing with us to a cure!!
Don't wait on any invitation, just jump right in!!
Mikey,
PS, Chuck, don't go tell stories about yourself anymore!..
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I love to ROCK very HARD!!!
CHRONIC and going crazy!! Want to come too?
Hope for PFDAN, peace and safety to you all!!
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ClusterChuck
CH.com Alumnus
New Board Hall of Famer
The BEAST rises again, and again, and again, and .
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Posts: 3181
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Re: New to ch.com
« Reply #20 on: Dec 1st, 2003, 1:40am » |
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on Dec 1st, 2003, 1:00am, Mikey wrote:Chuck was lying, he's not OK!!
PS, Chuck, don't go tell stories about yourself anymore!.. |
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"Why's everybody always picking on me?"
Chuck (or should I say, Charlie Brown?)(He's a clown ...)
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
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Re: New to ch.com
« Reply #21 on: Dec 1st, 2003, 5:25am » |
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Welcome to Clusterville. Most of the loonies here are really harmless regardless of what they say about each other.
Since you're not in cycle right now, you can do the support thingy. There's a lot of people right now who are in cycle and need support BIG TIME.
We're nosey and will know all about you before it's over. Just go ahead and tell all your deep dark secrets and get it over with. Inquiring minds and all that.
This board is addicting. You MUST visit at least once or twice a day just to keep up with the latest.
Read the archives and find out what's worked and what hasn't worked for a lot of us. Read the med page and see what meds are available so you'll be informed when you visit your doc.
My doc still calls CH Horton's Syndrome too. But he's older than me (and I'm older than dirt). That's what they taught in med school years ago. It's the droopy eye thingy. he also calls them "histimine headaches" sometimes. But I'm educating him and when I tell him something, he tunes in and listens.
Welcome aboard - now watch out for Cootie......
Hugs BD
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What don't kill ya, Makes ya stonger!
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jadedgazer
New Board Veteran
This isn't life threatening, just life altering
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Re: New to ch.com
« Reply #22 on: Dec 1st, 2003, 7:54am » |
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Welcome aboard Rick.
Absorb the information
Bask in the friendship
&
Lean on & Lend support when you are able.
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Jackie S.
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duchartin
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
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Re: New to ch.com
« Reply #23 on: Dec 1st, 2003, 8:09am » |
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Bask in the friendship...
That is maybe the best definition what this site is about. Welcome & share the positive vibes from all your brothers & sisters around the world !
Wishing a PF Christmas to everybody, by the way.
Martin
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thomas
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Doesn't matter how you found us - just a long as you found us. Welcome.
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