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Topic: has anyone ever had a comparable pain? (Read 752 times) |
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12gagueblast
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has anyone ever had a comparable pain?
« on: Nov 23rd, 2003, 12:49am » |
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I was just wondering if anybody had ever had other severe pain that the could comepare to CH? I have never really had any other bad pain, but have heard that people the have CH always say CH is worse. Just wondering. 
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Little Deb
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Re: has anyone ever had a comparable pain?
« Reply #1 on: Nov 23rd, 2003, 1:43am » |
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have you read the Kip scale to the left???
There is no pain greater that I know.
I can only guess that having your leg cut off by a very dull serrated hack saw with no medication or numbing whatsoever while at the same time having your face branded like a cow with a hot iron might be comparable.
Goodness I hope I never have to feel that!!! The difference is, even if you were the unlucky one that had a bad experience as described, you could rest assured that once it was over, it's over.
With CH, well, you know....
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Charlie
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Re: has anyone ever had a comparable pain?
« Reply #2 on: Nov 23rd, 2003, 5:24am » |
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Surely, you jest.....and yes...I'm still calling you Shirley.
Nothing even registers a blip on my screen.
Lucky us. 
Charlie
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Lapsi_Harmaahapsi
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Re: has anyone ever had a comparable pain?
« Reply #3 on: Nov 23rd, 2003, 5:46am » |
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I guess most of us have had some other pain that equals CH in its "intensity" (I hate going to the dentist), but I've yet to suffer anything that equals CH in its hopeless "debilitativeness"(?). ie. there's nothing you can do to really lessen the pain until it decides to go away. The dentist's drill only hurts my tooth but CH hurts my head and makes the whole of me pretty darn miserable.
Thank God for verpamil & imigran. 
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BarbaraD
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Re: has anyone ever had a comparable pain?
« Reply #4 on: Nov 23rd, 2003, 7:11am » |
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Heck, the CH hurts my TOOTH too, so that elimates the dentist..... 
Been through childbirth --- CH is MUCH worse. Broken bones - CH is worse. Surgery - CH is worse.
So I guess NO - nothing even comes close to CH...
Hugs BD
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Jackie
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Re: has anyone ever had a comparable pain?
« Reply #5 on: Nov 23rd, 2003, 7:23am » |
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Blake says NOPE....nothing hurts like a cluster. He had kidney stones last Jan. (New Years Eve acutally)...says that hurt like holly hell but didn't reach a Kip 10....not by a long shot.
Jacks 
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Paigelle
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Re: has anyone ever had a comparable pain?
« Reply #6 on: Nov 23rd, 2003, 8:16am » |
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Been through childbirth also, no epidural or anything and CH is worse. I would rather give birth once a day than have an episode of CH.
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brain_cramps
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Re: has anyone ever had a comparable pain?
« Reply #7 on: Nov 23rd, 2003, 8:46am » |
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While accidentally putting weight on shattered heel did hurt  , I quickly 'learned' not to.
ie. common sense allowed me to control the worst of the pain. 
Wish I could do that with CH.
grant
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| « Last Edit: Nov 23rd, 2003, 8:47am by brain_cramps » |
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BlueMeanie
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Re: has anyone ever had a comparable pain?
« Reply #8 on: Nov 23rd, 2003, 9:00am » |
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Never had a child. I think it may be just as bad. Having a child every day for 3 months.
Without a PFD for 8 days now. Just venting ya know.
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J.ten_Dam
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Re: has anyone ever had a comparable pain?
« Reply #9 on: Nov 23rd, 2003, 9:02am » |
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I have had three hernias at the same time and kept faling jet CH is wors with my back I could controle the pain with CH you cant
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don
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Re: has anyone ever had a comparable pain?
« Reply #10 on: Nov 23rd, 2003, 10:08am » |
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A therapist once told me that pain is just a concept. That it is a learning experiance that should be embraced.
My response.
The next time you feel a tension headache coming on, run down to the commuter rail station and embrace the front of the speeding locomotive. Then you to can learn about CH.
What a fucking ditz!
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jadedgazer
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Re: has anyone ever had a comparable pain?
« Reply #11 on: Nov 23rd, 2003, 10:20am » |
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Well, recently I had a wisdom tooth abcess out of the blue and for some odd reason they couldn't numb it. I coudn't stand it in my mouth anymore and couldn't afford an oral surgeon and by the time we figured out the blasted thing wasn't going to stay numb for more than 60 seconds, she had busted it thru the roots. I made her pull it without anesthesia...that pain came close...lol. But still didn't hit it.
Has anyone else experienced anything like this since having CH? I never had problems like this before CH, maybe it was the meds complicating things. ????
Don't care to repeat the experience.
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kim
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Re: has anyone ever had a comparable pain?
« Reply #12 on: Nov 23rd, 2003, 11:29am » |
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Cluster pain is repetitive, relentless - like a speeding locamotive we know will come again and again. A "trauma" kind of pain is visible and can be attended to and resolved. To date, clusters are not privy to such resolution. That to me is a big factor with this illness.
I have been involved in numerous "trauma" situations. Believe me they ALL hurt like freaking hell. I recall one vehicular accident in a volkswagon "Thing" (remember them?)...the driver fellasleep at the wheel and hit a telephone poll. I was the passenger. 40 MPH - with an impact ratio of 80mph.....Jaws of life took apart the car and got me out. It was months of hospitalization involving orthopedic invasions you can't imagine.
However, it is over. I can barely remember the agonies I endured.
Clusters have no resolution. That fact alone plays with a person's mind and contributes significantly to the disorder.
Pain that is not visible to the outside world, pain that causes a person to isolate --- to me that is the cruelest form of pain and much harder to endure -- AGAIN and AGAIN. It's never OVER. 
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| « Last Edit: Nov 23rd, 2003, 11:31am by kim » |
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brain_cramps
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Re: has anyone ever had a comparable pain?
« Reply #13 on: Nov 23rd, 2003, 12:14pm » |
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Great post, Kim! The last couple lines really hit the nail on the head.
on Nov 23rd, 2003, 11:29am, kim wrote:Clusters have no resolution. That fact alone plays with a person's mind and contributes significantly to the disorder.
Pain that is not visible to the outside world, pain that causes a person to isolate --- to me that is the cruelest form of pain and much harder to endure -- AGAIN and AGAIN. It's never OVER. |
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(I had to go back and re-read it --- was kinda expecting "kimspeak" LOL)
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Racer1_NC
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Re: has anyone ever had a comparable pain?
« Reply #14 on: Nov 23rd, 2003, 12:19pm » |
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I agree 100%. If there was some treatment that could forever rid me of CH, the pain would be easier..... Meds, no matter how well they work, just keep it from happening. I know one will sneak in sooner or later.
I hate the thought of CH being there, lurking, just waiting for a chance to appear.
Bill
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Ree
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Re: has anyone ever had a comparable pain?
« Reply #15 on: Nov 23rd, 2003, 5:18pm » |
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ok i get the message..........ya gonna stress me out and give me a migraine... We believe ya... been witness to this torture and *I KNOW*......... I AM SO SORRY ANY OF YOU HAVE TO DEAL WITH THIS!!!! ever!!!!.........LOVE REE
I'm gonna cry now ..........
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JDH
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Re: has anyone ever had a comparable pain?
« Reply #16 on: Nov 23rd, 2003, 5:31pm » |
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Nope, never had anything close to ch pain.
There's just nothing to compare it to.
Jim
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ClusterChuck
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Re: has anyone ever had a comparable pain?
« Reply #17 on: Nov 23rd, 2003, 7:18pm » |
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The thing that really blows my mind, is remembering my last KIP10 ... At the emergency room I asked the doctor, "How can THAT much pain, for THAT long, not cause permant damage?"
A KIP 7 or higher, goes to my teeth. Feels like a very bad tooth ache. But NO tooth ache, that I have ever had, has the pain in the eye, ear, and head to go with it.
Broken ribs hurt like hell when you laugh, or have to cough, but no where near a CH ...
I have not had anything to rival CH pain ...
Chuck
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Carl_D
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Re: has anyone ever had a comparable pain?
« Reply #18 on: Nov 23rd, 2003, 8:03pm » |
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About 3 weeks ago I awoke in the middle of the night with the sensation running throughout the right side of my body that I had been dipped in boiling oil! Everything I hit with my arm or legs burned like hell...jumped into the shower and ran cold water over me. The whole ordeal lasted about 3 hours, and scared the hell out of me.
Been burned, stabbed, beaten, abcess tooth, tmj. However, nothing comes close to the serenity of a CH.
Peace,
Carl D
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jadedgazer
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Re: has anyone ever had a comparable pain?
« Reply #19 on: Nov 23rd, 2003, 8:28pm » |
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I agree, great post Kim.
I never meant to say that the tooth thing came remotely close to a 10'er...not even! The tooth thing was rough though lol. But that is something I never have to endure again. Tooth ordeal was around a 7 though.
The worst part about CH for me is the anxiety of the wait for the next round. Because it will come again, maybe in an hour, maybe in two, maybe tomorrow...day after day it always returns. Don't know how hard it will hit and how many times, but it is gonna hit every day...guaranteed.
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Prense
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Re: has anyone ever had a comparable pain?
« Reply #20 on: Nov 23rd, 2003, 8:35pm » |
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on Nov 23rd, 2003, 5:46am, Lapsi_Harmaahapsi wrote:| I guess most of us have had some other pain that equals CH in its "intensity" (I hate going to the dentist) |
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Dentists...what vile creatures! 2 root canals, and numerous fillings... Shots in the roof of my mouth  ... shots in between my front teeth and my lip  They all pretty much sucked, but a CH attack easily makes dentist visits a distant memory. Worst dentist experience approached a 7...only for a few seconds though.
Chris
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stevegeebe
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Re: has anyone ever had a comparable pain?
« Reply #21 on: Nov 23rd, 2003, 9:00pm » |
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Never ever heard of someone who was in extreem pain attempt to relieve that pain by self inflicting additional pain.
I know I've tried it. My wife knows it a really bad one when she hears that thumping sound comming through the shower alcove wall.
In my experience...no.
Steve G
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Renee
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Re: has anyone ever had a comparable pain?
« Reply #22 on: Nov 23rd, 2003, 9:04pm » |
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Only one thing have I ever had that compared to the CH pain. Having a lumbar drain remove 15cc of cerebral spinal fluid every hour caused what is called a CSF headache and I've had demerol knock the edge off of CH but even the highest dose of morphine did not keep me from praying to leave this world at the time of the severity of the CSF h/a.
Never let anyone tell you a "day surgery" is nothing to sweat. My "day surgery" on sinuses resulted in 17 days in ICU after the instrument was run up thru nasal cavity thru ethmoid bone, tearing dura covering of brain and into my brain. I had CSF pouring out my nose. This h/a lasted 3 months solid.
Other than that, no broken bone, crushed hand or hemorroidectomy never came close to a CH.
pf finally for 24 hours but the shadows are returning
renee
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Cerberus
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Re: has anyone ever had a comparable pain?
« Reply #23 on: Nov 23rd, 2003, 9:12pm » |
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well, I'd have to imagine being Drawn and Quartered or Keel/Hulled has to be pretty damn painfull, but I've never had it happen to me or to anyone I know so.....
NO..............there is nothing worse than a Cluster.
Ramon
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kim
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Re: has anyone ever had a comparable pain?
« Reply #24 on: Nov 23rd, 2003, 9:57pm » |
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YEAH  well....one time the dentist RIPPED my molarout with bear hands...........an..........an.......nuddr time wild injus drug my ass cross the great deeVyde -WHILE THE DENTIST was still wrkin on me........an............an........THEN MONSTERS came on in an ..........and..............PULLED MY HAIR..........all whilst the injuns were a drugn me and all whilst the dentist was a RIPPIN........it was mitey awful..................
clusters is werser. 
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| « Last Edit: Nov 23rd, 2003, 10:05pm by kim » |
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