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Topic: Txcowgirl (new member) need vibes! (Read 330 times) |
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TxBasslady
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Txcowgirl (new member) need vibes!
« on: Nov 21st, 2003, 12:33pm » |
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Renee joined the board 3 days ago.
She has been posting in the Medications & Treatments area.
She really needs some prayers and vibes!!!!!!!!!!
Today is a really bad day for her.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
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I adopted a Vietnam POW/MIA from El Paso, Texas! 
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thomas
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Re: Txcowgirl (new member) need vibes!
« Reply #1 on: Nov 21st, 2003, 12:35pm » |
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We're all pulling for you, hang in there. I hope you get through this soon. 
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ClusterChuck
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Re: Txcowgirl (new member) need vibes!
« Reply #2 on: Nov 21st, 2003, 12:37pm » |
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Thanks, Jean for bring this to our attention.
Renee, welcome aboard, and so sorry you are having such a hard time. Hang in there, it WILL get better. In the mean time, vent, cry, scream, or what ever helps. We are all here for you.
Prayers and vibes heading your way.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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TxBasslady
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Re: Txcowgirl (new member) need vibes!
« Reply #3 on: Nov 21st, 2003, 12:43pm » |
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Oh Thomas and Chuck.........you guys are the greatest!!!!!
Read Renee's story.......on the Med and Treatment area.
I don't want her to give up!!!!!! 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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Big Dan
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Re: Txcowgirl (new member) need vibes!
« Reply #4 on: Nov 21st, 2003, 3:37pm » |
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Sorry your hurting Renee.... here's some so you can bust that bastard in the chops....
PFDAN's to ya, Sis...
-Big Dan
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ZAIRA
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SO SORRY
« Reply #5 on: Nov 21st, 2003, 4:15pm » |
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We are sending our energy, Renee ... and if you are too bad and you can’t bear the pain, turn your head and in the darkness you’ll see other people like you... fighting...
BE STRONG...
My best wishes, Zaira
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Love yourself, Love others, Love often, Forever!
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Jackie
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Re: Txcowgirl (new member) need vibes!
« Reply #6 on: Nov 21st, 2003, 4:19pm » |
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Hi Renee....
My hubby, Blake, is a clusterhead. I've read your post on the other board and my heart goes out to you....sounds like you've had a tough go of it, Sweetie.
Don't despair...there is hope and you will have pain free days. Getting the correct diagnosis is a must...also a good doctor who is willing to listen and work with you.
Have you taken the 'cluster quiz' (button on the left)...if not I'd suggest you do so when you feel up to it.
Remember now...there are better days ahead...we'll help you get there. This board is full of people who are more than willing to help with advice, hugs when ya need them and big vibes.....they are a super bunch!!!!
Keep in touch...we need to know how you are doing.
Hugs,
Jacks 
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BobG
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Re: Txcowgirl (new member) need vibes!
« Reply #7 on: Nov 21st, 2003, 4:38pm » |
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Txcowgirl huh? Hope it's one of the "a little on the trashy side" cowgirls. But, a Lady cowgirl is good too. Welcome to the board. Hope you find the answers you're looking for.
And while we're talking about TX. Is it my imagination or not that there has been a lot of Texans, Carolinians and Canadians signing onto the site lately?
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Renee
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Re: Txcowgirl (new member) need vibes!
« Reply #8 on: Nov 21st, 2003, 4:46pm » |
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thanks to all for your thoughts, prayers, etc.
today sucks!
I took 20mg pred and 20mg toradol and got no help at all...nothing...zelch. nothing but prednisone rage and the desire to throw something out the window.
on top of that...i tried to make appt at north texas headache clinic that specializes in CH and migraines and they can't see me until February.
I can't sit still my freakin' head hurts so bad and I can't stop crying now.
Thank God someone else does know the hell i'm living with.
txcowgirl (aka renee)
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Tiannia
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Re: Txcowgirl (new member) need vibes!
« Reply #9 on: Nov 21st, 2003, 5:44pm » |
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on Nov 21st, 2003, 4:46pm, txcowgirl wrote:I can't stop crying now.
Thank God someone else does know the hell i'm living with.
txcowgirl (aka renee) |
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Renee -
We are here for you. And yes these people are the greatest thing that I could have every found. I thought I was ging insane. Come here - hit the chat room. yell, scream, hollar or whatever you need to do to get through.
Huge Vibes and a shoulder to cry on are headed your way.
Tiannia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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stevegeebe
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Re: Txcowgirl (new member) need vibes!
« Reply #10 on: Nov 21st, 2003, 6:45pm » |
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Renee,
Tell them Febuary is not soon enough. CH rare and they need see you while in cycle. Push those bastards.
Push. You need get mad.
Have you tried o2?
Steve G
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Renee
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Re: Txcowgirl (new member) need vibes!
« Reply #11 on: Nov 21st, 2003, 9:20pm » |
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no, i haven't tried o2. after 7 years of misdiagnosis including hysterectomy for supposed menstrual migraines, sinus surgery for supposed thickening of mucosa on sinus cavity walls, which got bothed and the s.o.b. ran the instrument up thru my ethmoid bone and tore the dura lining my brain thus resulting in another surgery and 17 days in icu instead of the supposed day surgery, herniated discs in neck thus epidural steroid injections that helped at first (due to steroids in system i'm sure) but it wasn't until last monday that dr. even considered CH and come to find out this droopy eye, swollen sinus passage, droopy face muscles, tearing of eye, knot in neck (all on left side always) that come along with my headaches fall right in line with CH.
I told the nurse at the HA clinic that I was in a constant cycle and believed to be a chronic CH'er and she could hear the pain and urgency in my voice but apologized and put me on their waiting list as she stated the dr. spends 2 hours with new patients and w/holidays they just don't have any openings until february. here is crossing my fingers they get a cancellation FAST!
still no relief after 20mg pred and 20mg toradol today. I finally took 5mg valium to take edginess off of pred side effect and cried until i slept. woke up and h/a still here and left eye 1/2 closed.
this CH seems to always worsen for the weekends..or is that just my imagination?
thanks for the support..keep it coming as i'm very frustrated, painful and sick of this!!!
txcowgirl (aka renee)
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Charlie
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Re: Txcowgirl (new member) need vibes!
« Reply #12 on: Nov 21st, 2003, 9:45pm » |
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OUCH.
You've had a hell of a time but you've found us and I hope we're making some sense. Pain is something we know about. You're among people who understand exactly what you're up against. You'll find a lot good stuff here and good people.
Glad to have you and stick around. We here to listen and help all we can.
Charlie
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cootie
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Re: Txcowgirl (new member) need vibes!
« Reply #13 on: Nov 21st, 2003, 9:49pm » |
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Bob P are you looking for Texas cow "boys".....hey do you have a secret room ? Um where was I.....sorry...ina silly (STRANGE) mood......oh yeah.......Hi Renee......nice to meet you here and hang tough cuz were all buckin for ya ta get PF soon !!!! Pam with puns intended 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Renee
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Re: Txcowgirl (new member) need vibes!
« Reply #14 on: Nov 21st, 2003, 9:50pm » |
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how do I set-up for i.m.? 
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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Mark C
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Onward through the fog.
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Re: Txcowgirl (new member) need vibes!
« Reply #15 on: Nov 21st, 2003, 10:02pm » |
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Welcome Renee'....click on a person name you want to IM and you will be presented with the screen to send an "IM" or "PM"
Try it....and I hope you get a break soon...this stuff sucks. Sounds like you belong, that sucks too...but I am glad you found us...grab an oar and start rowing.
PFDAN's
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Giovanni
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Re: Txcowgirl (new member) need vibes!
« Reply #16 on: Nov 22nd, 2003, 8:18am » |
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Hi Renee,
Hope these bad times will end for you really soon. All of the clusterheads and supporters here are thinking of you.
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goaway
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Re: Txcowgirl (new member) need vibes!
« Reply #17 on: Nov 22nd, 2003, 8:41am » |
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Renee!!!
Welcome friend! Hope that you are much better reeeeal soon!
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sandie99
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Re: Txcowgirl (new member) need vibes!
« Reply #18 on: Nov 22nd, 2003, 8:43am » |
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Lots of good vibes on the way!!!
I'm having one of those bad days, too.... 
Best wishes & PFdays,
sandie99
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"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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Renee
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Re: Txcowgirl (new member) need vibes!
« Reply #19 on: Nov 22nd, 2003, 11:44am » |
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Sandie,
So sorry your day is not good.
I took 20mg pred and 20 mg toradol yesterday, got no sleep last night as the pred keeps me awake so i'm sleepy but h/a is better. still hurts and still droopy eye and knot in neck but i'm not at the point of jumping out a window now.
thanks for your support and i hope you get pf soon also.
renee (aka txcowgirl)
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23 years of battling the beast, 9 years chronic......uneducated docs/nurses make me irate.
The fungus among us is for real!
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KingOfPain
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Re: Txcowgirl (new member) need vibes!
« Reply #20 on: Nov 22nd, 2003, 12:31pm » |
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Txcowgirl,
Here's hoping for Pain Free times soon.
Welcome.
Stick around. These folks changed
my life when I found this site.
Hope you get what you need.
Just ask.
Please continue posting.
KingOfPain
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Arrived August, 1999.
We swallow greedily any lie that flatters us, but we sip only little by little at a truth we find bitter.
- Denis Diderot
Real friendship is shown in times of trouble; prosperity is full of friends. - Euripides
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