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Topic: Im new......Hello (Read 1031 times) |
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Ouch
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Im new......Hello
« on: Nov 19th, 2003, 12:04am » |
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I just wanted to say hi. I have read alot of these post and I think this will be home.. I have had clusters for about 6 yrs. The Dr. called me a cronic. I have never met anyone with clusters, and its hard to explain to people what they are and what we go through.. I guess Im finally found a place where people understand...
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Hold on tight.......this is one hellava ride
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TxBasslady
CH.com Alumnus
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Bass fishin' is a h00t It's the catchin' that sux
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Re: Im new......Hello
« Reply #1 on: Nov 19th, 2003, 12:13am » |
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Hi.......and welcome to the board.
You will find several CH sufferers here from your part of the U.S.
You didn't mention what type of meds you take for CH.
Lots of good info located in the links to the left.
The support here is the best in the world. Usually someone here round the clock.
Keep posting and let us know more about you and let us know how you are doing. 
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
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I adopted a Vietnam POW/MIA from El Paso, Texas! 
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cootie
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sumday I'm gonna be sumbody........ ..
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Re: Im new......Hello
« Reply #2 on: Nov 19th, 2003, 12:16am » |
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Hi Ouch.......nice to meet you !! Hmmmm why does that name ring a bell ?  Pam that wears ouchless pantyhose 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Ouch
New Board Newbie
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Re: Im new......Hello
« Reply #3 on: Nov 19th, 2003, 12:25am » |
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Well like I said im new (2nd post) Ive had ch for a while. But just got a computer last week. Im (now) on verap. 240 twice a day, methylprednisolone, and imitrex,and di...something plex... 500mg. once a day. Dr. said lith was next. But he also advised me he wouldn't let anyone at my job find out about the lith. So im trying 2 hold off. And hold on. This is really the first time ive talked to someone with my condition. And ive got over 6 yrs of stories to tell.
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Edna
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Re: Im new......Hello
« Reply #4 on: Nov 19th, 2003, 12:37am » |
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well start telling us your stories!! We're here to listen.
Glad you found us and glad you took the time to tell us all hello.
Welcome and look forward to hearing more from you,
ps wishes,
EDNA
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Callico
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Proud Dad of a US Marine!
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Re: Im new......Hello
« Reply #5 on: Nov 19th, 2003, 12:50am » |
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Welcome aboard. Glad you found us. Pull up a piece of floor and start reading. There is a lot of info available to you, plus all of the support you can use if you will just ask.
I'm also chronic. I'm on 240mg of verap twice a day, plus I'm on 300mg of Lithium twice a day. Between the two they have mine fairly well under control. I wouldn't worry to much about people finding out about the Lithium. It is used now days for a lot more than just mental problems.
Jerry
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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Mr. Happy
CH.com Alumnus
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If I can do it, it ain't art.
   
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Re: Im new......Hello
« Reply #6 on: Nov 19th, 2003, 2:02am » |
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on Nov 19th, 2003, 12:25am, Ouch wrote:| And ive got over 6 yrs of stories to tell. |
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Wowsers. There's nothing like a good story....and I'm willing to pay DOUBLE. Spill your guts, mate. And make sure to tell us about your great successes with O2, 2.
Glad you found a parking place.
Tell them tales,
RJ
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May those who don't want any
Have memories of never getting any.
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BarbaraD
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Hugs to ya
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Re: Im new......Hello
« Reply #7 on: Nov 19th, 2003, 4:35am » |
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Welcome to Clusterville Ouch. There's a bunch of us in your same shoes. so tell your stories... we're here to listen and laugh or cry with you.
Read everything you can on what's worked for others and go to your doc armed. Lith ain't that bad. We all take something (or most of us do). I take topamax (an antiseizure drug), so whatever works - do it. I've been chronic for too long too...
Welcome and glad you found us.
Hugs BD
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What don't kill ya, Makes ya stonger!
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Im new......Hello
« Reply #8 on: Nov 19th, 2003, 4:39am » |
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Hi Ouch!
Welcome aboard!
When one has ch, this is the place to be. Always someone is here
Best wishes & PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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hootchdom
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I love YaBB 1G - SP1!
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Re: Im new......Hello
« Reply #9 on: Nov 19th, 2003, 4:49am » |
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Welcome Ouch,
All I can say is when your at your lowest of lows or your highest of highs you've found the right place to be. Even thou you might not know the people they know what you have or are going thourgh. Just reading the forum at times has been a godsend for me. And every once in while just posting a rambling vent. But that is what this site is here for. So use it to your advantage.
Welcome,
Hootchdom
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don
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Quote:| Im (now) on verap. 240 twice a day, methylprednisolone, and imitrex,and di...something plex... 500mg. once a day. Dr. said lith was next. |
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Sounds like you have a knowledgable Doc there.
Seeing more and more of that. Still not enough but more.
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ClusterChuck
CH.com Alumnus
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The BEAST rises again, and again, and again, and .
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Re: Im new......Hello
« Reply #11 on: Nov 19th, 2003, 7:45am » |
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Welcome aboard, OUCH! So sorry you have to be here, but glad you found us.
I agree with Don, you seem to have a very intelligent doctor! You are SO lucky!
So now tell us more about your experience. How many hits a day do you get? How long do they last? Describe how they hit you, and how they feel. We are a bunch of nosey inquisitive individuals!
Now, grab an oar, (Cootie is in charge of those) and take your seat (Jonny will show you your seat) and help rowing! It takes all of us to get this boat to our destination, Cureville!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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TomM
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Re: Im new......Hello
« Reply #12 on: Nov 19th, 2003, 8:16am » |
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Welcome to da family!
TomM
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"Everyone should believe in something. I believe I'll go fishing."
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thomas
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Welcome aboard.
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Paigelle
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I am sorry you have to suffer also. But if you have to suffer, this is a great bunch to suffer with. It just helps knowing everyone is here and someone is always here.
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Mark C
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Onward through the fog.
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Re: Im new......Hello
« Reply #15 on: Nov 19th, 2003, 9:26am » |
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Have you seen this page? It is a good one. Welcome aboard!
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mikeyd
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Re: Im new......Hello
« Reply #16 on: Nov 19th, 2003, 10:07am » |
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Hiyas Ouch,
Welcome to the meeting of the bigheads...hehehe  Really good info here and what a great bunch of people. Misery loves company....in other words....glad to see you...lol
I sure hope you feel at home here, I do...the reading makes me feel better to know that there are others out there that know what I go through with these danged things. Just know that you are loved and supported whenever you need someone to understand.
PFD ahead and once again...welcome to the CH family!
Mikeyd
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Waging war with the beast is tiresome & painful but never boring ;-D
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Miklos
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Re: Im new......Hello
« Reply #17 on: Nov 19th, 2003, 10:18am » |
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I went 19 years without meeting anyone else. This place is pretty cool and helpful. It's occasionally weird, but still cool.
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Don't be offended by my frank analysis. Think of it as personality dialysis.
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totka
New Board Old Timer
Atsuko
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Re: Im new......Hello
« Reply #18 on: Nov 19th, 2003, 2:18pm » |
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Welcome Ouch
Quote:| Im finally found a place where people understand... |
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it's a happy feeling
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I have two enemies, cluster headache and English grammar.
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Ouch
New Board Newbie
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Re: Im new......Hello
« Reply #19 on: Nov 19th, 2003, 3:34pm » |
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WOW! The response is overwelming. Cluster Chuck you asked about the attacks. Well from what I can tell its just like most peoples on this board. I went a very long time before I went to a neuro. My family Dr. put me on antidepress. medication. I tried to explain that wasnt the problem. So I went to another family Dr. He put me on another antidepress. Untill finally I fell asleep in his office one day and woke up with an attack. You know.......temple throbing, pouring sweat, right eye swollen, gasping for air. They staff rushed in......took me to the back, I looked at the Dr. crying....I told him "see im not depressed I need some help" With a office full of people, he dropped what he was doing called a neurgst and got the ball finally rolling. My Dr. now has helped me greatly. But not cured me. I have been dealing with the fact that this is probably something I will be dealing with for the rest of my life. SUX. It has had a great effect with my day to day life. And at one time my emotional state. My wife is very supportive , but at the same time I try not to let it show, just so it won't upset her. I have a 2yr old that dosn't understand and doesnt want to see her dad hurt. My friends can't comprehend the pain, so I don't show it with them. Untill the time comes and it hits you..
please excuse my spelling!
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| « Last Edit: Nov 19th, 2003, 3:35pm by Ouch » |
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Little Deb
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Re: Im new......Hello
« Reply #20 on: Nov 19th, 2003, 3:55pm » |
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Welcome dude!
Glad to see you are in NC.
I am in Raleigh and we are planning a get together at my house Jan. 31st. Put it on your calendar and hope you and your family can make it. I just met my first clusterheads after 25 years of CH a couple weekends ago and it was great.
I will add you to my list.
Little Deb
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Adopt a shelter pet!
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ZAIRA
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Re: Im new......Hello
« Reply #21 on: Nov 19th, 2003, 4:10pm » |
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Oh....Nice to meet you!!! To know that you are there to fight the same battle as me/us, has changed my/our life. This doesn’t cancel the pain but reassures the spirit.
Welcome home!! You are in the right place!!
PFDAN, Zaira 
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Love yourself, Love others, Love often, Forever!
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Ouch
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Re: Im new......Hello
« Reply #22 on: Nov 19th, 2003, 4:30pm » |
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Little DEB Have you been a sufferer that long? What exactly goes on at your house? Im in Richmond Co. Ever heard?
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| « Last Edit: Nov 19th, 2003, 4:31pm by Ouch » |
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cathy
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Not all those that wander are lost......
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Re: Im new......Hello
« Reply #23 on: Nov 19th, 2003, 4:42pm » |
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Hi Ouch....Welcome to the board...!!
Cathy
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thomas
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