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Topic: Hello! (Read 251 times) |
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NitroHunter
New Board Newbie
I'm goin' off the rails...
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Posts: 7
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Greetings,
I have had CHs since I was about 13 yrs old. I'm 29 now so they have become a part of my life. I am ep so I am gratefull that I only have to endure them once or twice a year for a few months each time. My cycle started a few weeks ago but I actually went to the doctor for the first time for them. (My wife insisted after I begged her to bash me in the head with a bat and knock me out one night) I'm thankful that my doctor did seem to have an understanding of CHs so she perscribed Imitrex and verapamil. For the first time I have been able to manage this damn curse. The Imitrex is sending the beast to sleep in about 10 minutes and the verapamil seems to be working after two weeks of 1-2 kip 5-10s every day. I've been pf for 4 days now without having to "shootup" the trex. I'm so thankful that this combo is working. (At least for now). Thanks for this site and all the great info here.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
    
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Posts: 14968
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Re: Hello!
« Reply #1 on: Nov 7th, 2003, 9:09pm » |
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Welcome aboard.
After we run out of expletives to delete, we find places like this and more to add to our collection. 
Anyway, it's a pretty big crowd and the one thing we have in common is that we don't have the near impossible task of making others understand that this has nothing to do with what others think of as headache.
If you look around and read some of the posts and other information, you'll find all sorts of good ideas about dealing with this horror. You might want to give this technique a try. It needs a rewrite but it worked for me:
http://www.netsync.net/users/charlies/
Good luck and let us know how you're doing.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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stevegeebe
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
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Posts: 1342
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Re: Hello!
« Reply #2 on: Nov 7th, 2003, 9:56pm » |
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Stay on top.
Keep you boot on its throat.
Welcome Nitro.
Steve G
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TxBasslady
CH.com Alumnus
New Board Hall of Famer
Bass fishin' is a h00t It's the catchin' that sux
Gender: 
Posts: 3201
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Re: Hello!
« Reply #3 on: Nov 7th, 2003, 11:48pm » |
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Welcome to the board, Nitro.
You will find great information, and lotsa good friends here.
Good to know you have found the right combination of meds to fight the beast. 
Hope you keep posting, and let us know how you are doing. 
Sending you lots of pf vibes from Texas...........
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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Lori
New Board Hall of Famer
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Posts: 526
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Re: Hello!
« Reply #4 on: Nov 8th, 2003, 12:19am » |
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Sorry you need to be here. There is a ton of info though on CH so read, read, read. Check out the oxygen info on the left and go to OUCH for more on CH and maybe you can join up while you're there. Hoping you have a short cycle. Glad you found this site!!
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Blessings and PFDAN,
Lori
Psalm 23:4 ~ Even though I walk through the valley of the shadow of death, I will fear no evil, for you are with me; your rod and your staff, they comfort me.
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Melissa
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Welcome to the cluster family Nitro! These people here understand your condition better than anyone else in the world, including physicians So glad the verap is working for you, lets hope it stays that way!
mel
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drnoe
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Hi Nitro
Great news to wake to!
Pain Free.
Says it ALL.
Welcome to the one in a thousand club.
Dan
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Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
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Posts: 1607
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Re: Hello!
« Reply #7 on: Nov 8th, 2003, 11:41am » |
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on Nov 7th, 2003, 8:55pm, Nitro wrote:| My cycle started a few weeks ago but I actually went to the doctor for the first time for them. (My wife insisted after I begged her to bash me in the head with a bat and knock me out one night) I'm thankful that my doctor did seem to have an understanding of CHs so she perscribed Imitrex and verapamil. |
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Damn, you are lucky!
If you find the hits returning, get O2 prescribed exactly as the "oxygen info" link to the left calls for. It will reduce your trex usage (hopefully). Additionally, check out the "imitrex tip" link on the left...there may be some useful info for you there.
Finally, change your handle (j/k)! Nitro is a trigger... 
Welcome aboard!
Chris
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Where does the white go in a snowman when the snow melts?
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Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
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Posts: 411
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Re: Hello!
« Reply #8 on: Nov 8th, 2003, 1:09pm » |
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 Nitro and welcome!
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
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Posts: 5164
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Re: Hello!
« Reply #9 on: Nov 8th, 2003, 1:12pm » |
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Welcome to Clusterville. REad READ READ!! There's years of info here on CH.
Try the O2. It sure works on a lot of us (sometimes).
You've found the place to be even if we are sorry to see another name on here.
Hugs BD
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What don't kill ya, Makes ya stonger!
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Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
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Posts: 6721
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Re: Hello!
« Reply #10 on: Nov 8th, 2003, 1:39pm » |
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Nitro,
You seem to have a fairly knowledgable Dr. there. Good for you my friend. Not everyone here has had that experience.
Ask her to prescribe oxygen for you also as a back-up to the Imitrex and Verapamil.
Have you joined OUCH ?????
LindaH
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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jonny
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Welcome aboard dude, see Cootie for an oar.....everybody rows....I mean everybody
...................................jonny
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NitroHunter
New Board Newbie
I'm goin' off the rails...
Gender:
Posts: 7
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Re: Hello!
« Reply #12 on: Nov 8th, 2003, 1:56pm » |
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Thanks everyone for the warm welcome. My doctor said she would perscribe the o2 if the verap and trex didn't work. Thank goodness I haven't needed it yet. It's good to know she will give it to me if I need it though.
Now I have a question, or more of a need of opinion. My doctor gives me a script for 12 trex stat doses at a time, and has called my insurance to pay for more than a few a month. My wife picked up my script last night and they gave her 12 BOXES! Which is 24 injections. They only charged me my $20.00 co-pay. On the receipt is says 12 doses, so I guess somebody messed up and gave her too many. So do I do the honest thing and give them back, or do I keep them and consider it my lucky day. I'm not so concerned about saving the money because my doctor said she would call the insurance any time I needed them. My wife says to keep them, but I don't know if I would feel right about it. Thats a $1400.00 misstake on the pharmacys part! I'm still not sure what to do.
Thanks again for the warm welcome!
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jonny
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Im pretty sure they come two to a box, which means you got the right amount.
Did you know you can turn 24 shots into 72?
..............................jonny
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| « Last Edit: Nov 8th, 2003, 2:11pm by jonny » |
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ZAIRA
New Board Hall of Famer
Brave to Stand !!!
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Posts: 1577
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Re: Hello!
« Reply #14 on: Nov 8th, 2003, 2:08pm » |
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Hello Nitro.... happy if you have found this site.
This place is the best thing about CH, all the knowledge, support, love around here! You are not alone!
Welcome home!
Wishing you PFDAN... Zaira
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Love yourself, Love others, Love often, Forever!
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NitroHunter
New Board Newbie
I'm goin' off the rails...
Gender:
Posts: 7
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Re: Hello!
« Reply #15 on: Nov 8th, 2003, 2:26pm » |
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jonny
They do come two to a box, but the previous script I filled they gave me six boxes=12 doses. The script says 12 doses so I think they messed up. I did read the trex tip, but as long as my insurance keeps payin I'll just use them with the pen. If my insurance decides to bail out, I will use the tip.
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jonny
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Well, that shit is worth more than gold to lots of folks here and is probably to you now.....KEEP IT!!!
Insurance companies have been bending us over for how long?...time to bend them....
Thats my opinion.
...............................jonny
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Prense
CH.com Alumnus
New Board Hall of Famer
Kerry is an idiot!
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Posts: 1607
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Re: Hello!
« Reply #17 on: Nov 8th, 2003, 3:05pm » |
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Everytime I get my trex script filled/refilled, the pharmacy wants to do it differently. Just let them know that the "last time" you were there they gave you the number in boxes...not injections. For the future, just have the doc write the script for # of boxes just to save the questions later on. I always get my script filled in boxes...not injection count.
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Where does the white go in a snowman when the snow melts?
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Jimmy_B
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For most Cluster Sufferers...Trex is Gold...so to hell with the Cold-hearted Corporate Bastards....Keep em. If you don't use them all...save them.
BTW,
Welcome.
Jim
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forgetfulnot
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Quote:| My wife says to keep them, but I don't know if I would feel right about it. Thats a $1400.00 misstake on the pharmacys part! |
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If it was the insurance co's mistake I would keep em, but it sounds like a pharmacy mistake and when they take inventory or go to pull the next order someones head will probably roll. Imetrex inj. is the most confusing drug for pharmacies I have ever seen.
One thing to think of also is they (the pharmacy) cannot
take back or exchange prescription drugs, Federal Law.
Keep em,
Lee
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NitroHunter
New Board Newbie
I'm goin' off the rails...
Gender:
Posts: 7
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Re: Hello!
« Reply #20 on: Nov 8th, 2003, 6:07pm » |
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Thanks for all the advice. Imitrex is better than gold to me. I think I'm gonna keep em unless the pharmacy calls asking about it. I wouldn't feel right lying about it.
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Callico
New Board Hall of Famer
Proud Dad of a US Marine!
Gender:
Posts: 1395
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Re: Hello!
« Reply #21 on: Nov 9th, 2003, 12:23am » |
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Welcome aboard. Glad you found us. Glad also that you have a doc that know something about us!!!
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
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