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Topic: "wow" Im Not Going Insane at all!!!! (Read 367 times) |
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MISSY
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"wow" Im Not Going Insane at all!!!!
« on: Nov 1st, 2003, 6:58pm » |
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  .I am 34 year old from new zealand and have been getting ha from 15 years of age,i just happened to look thru the net and found this site i have spent all morning reading everything that i could.tears have been rolling down my face as this is the answer to my control beast as well,they told me it was stress and diet and all the rest of the rig-ma-roll they tell you,try this drug and come back in a week or two......i changed doctors so often that i couldnt keep up with the pressures of them telling me that to slow down,pain was in my head (sorry about the pun)but from all the info on here im not alone,,,,and theres help for me now,im with a new female doctor who is trailing the drugs cafagot,nadalol,and amitrip,ive spent so many nights up and in so much pain that hubbys had to carry me off to a@e (we Brought our home 1 block from the hospital)it controls your life ,your sanity and family.i cant remember a pain free day,but i can the day after ch (morfine and taftan(spelling?)im new to this site and have just registered .will be spending alot of time here !!!!
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Patrick_A
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #1 on: Nov 1st, 2003, 7:42pm » |
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Hello Missy, Welcome to the House of pain. Lots of great information on the left of this page and lots of great people here to help you if needed!
Patrick
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Prense
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #2 on: Nov 1st, 2003, 8:54pm » |
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Greetings Missy!
Welcome to ClusterVille... 
Couple of questions for you:
Have you been diagnosed with CH yet?
Have you had any tests ran to rule out other conditions? (CT scan, MRI, etc)
Take the quiz on the left (cluster quiz) and see what you come up with.
Either way, welcome and I hope your new doc offers you some real PF times!
Chris
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Miklos
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #3 on: Nov 1st, 2003, 8:57pm » |
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Well, you found a good place to stop and take a look around. There is a great deal of information here along with a tremendous amount of support. Don't forget to check-out the OUCH website; you may find some medication information that will help you and your physician settle on an effective regimen.
Look into the oxygen information. This information may help you more quickly than anything else.
With empathy....
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Don't be offended by my frank analysis. Think of it as personality dialysis.
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drnoe
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #4 on: Nov 1st, 2003, 9:25pm » |
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Hi Missy and welcome!
Hope you get some pfdan soon now that you have a doctor worthy of the name.
I didn't get to Taranaki but aren't there some terrific beaches near there?
peace,
Dan
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MISSY
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #5 on: Nov 2nd, 2003, 2:02am » |
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Yep i have had MRI and a cat scan and the doctors couldnt find anything ,had a stroke two years ago and was left with lefthand sided weakness,they said it was the side affects of imagrill.they dont give me that anymore and have to wear a bracelet,incase i flake out somewhere and they give it to me by mistake, they call mine, migranes,but after reading all the info going back to the doc,shes got me on a waiting list for the nero,
mine start from hot and cold,fluro lights,food and coffee,
not enough sleep,(who gets any with this sort of pain)
and are full on,happens so infrequnetly and unpredictable they come on with the sweats and blurred vision and if i dont catch them then ,its hospital...
k10 and im a mess ....my poor hubby and children...
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MISSY
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #6 on: Nov 2nd, 2003, 2:05am » |
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thank you for all the messages of hope ,it feels so good to know im not the only one
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Ann
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #7 on: Nov 2nd, 2003, 9:41am » |
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Hey Missy!
Welcome..sorry you had to find us.
You should definately look into getting yourself some oxygen. It's one of the best defenses out there and the least harmful!
Stick around....you'll learn lots from hanging around here!
hugs
Ann
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Cooked Brain
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #8 on: Nov 2nd, 2003, 10:44am » |
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and welcome Missy!
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"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
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jonny
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #9 on: Nov 2nd, 2003, 11:04am » |
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on Nov 2nd, 2003, 2:05am, MISSY wrote:| it feels so good to know im not the only one |
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If I had a nickle for everytime ive read that.....LOL
Welcome aboard....theres a few folks from your country that post here.
.......................................jonny
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Charlie
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #10 on: Nov 2nd, 2003, 7:45pm » |
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Welcome aboard and sorry you had reason to find us.
I guess you've looked around and have found that we have some good ideas about dealing with this horror.
Glad to have you though but you're too late. This place has driven most of us around the bend. Insanity helps here.
Something look at:
http://www.netsync.net/users/charlies/
Charlie
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Woobie
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #11 on: Nov 2nd, 2003, 7:47pm » |
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Hi Missy! Welcome!!
Tina
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stevegeebe
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #12 on: Nov 2nd, 2003, 8:00pm » |
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Get your Doctor straight. Bring info with you
And you...you read.
Good luck Missy.
Stay.
Steve G
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TxBasslady
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #13 on: Nov 3rd, 2003, 12:01am » |
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Hi Missy, welcome to the board. There are lots of great folks here and valuable information on the links.
Stay with us and let us know how you are doing.
Lotz of pf vibes coming to you from Texas. 
Jean
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paul_b
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #14 on: Nov 3rd, 2003, 12:58am » |
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Welcome MISSY. Consider yourself surrounded by guardian angels. We come in all shapes and sizes but with one common goal---to support each other and further the cause for finding a cure.
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Tara Ann
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #15 on: Nov 3rd, 2003, 4:34am » |
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on Nov 1st, 2003, 6:58pm, MISSY wrote:| i just happened to look thru the net and found this site i have spent all morning reading everything that i could.tears have been rolling down my face |
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I did the same thing the first time I read this message board. Glad you found us but sorry you are in so much pain. I hope the nuero helps you and gets you the right med combo, I'm still struggling with no right meds and waiting for my appt myself....this place has been a sanity saver for me so stick around lotsa support and info to be had here.
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http://www.myspace.com/taraann77
 
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sandie99
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #16 on: Nov 3rd, 2003, 7:19am » |
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Hi Missy!
Sorry for your headaches, but since you have them, this is the best place to be! A true blessing. Welcome abord!
Best wishes & PFdays,
sandie99
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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maggie_may
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #17 on: Nov 3rd, 2003, 8:44am » |
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Hi Missy
and welcome!
maggie
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Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
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5-string
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #18 on: Nov 3rd, 2003, 8:57am » |
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Hi Missy,
I'm sorry your head hurts, but glad you found this sight.
Clusterheadaches are no mystery here.
....Mark..
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jflynn
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #19 on: Nov 3rd, 2003, 12:25pm » |
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on Nov 1st, 2003, 6:58pm, MISSY wrote:| ...found this site...tears have been rolling down my face...they told me it was stress and diet and all the rest of the rig-ma-roll they tell you,try this drug and come back in a week or two...i changed doctors so often... |
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My experience was identical.
Look into melatonin as a preventative. Works very wellfor some, not at all for others. Cheap and safe for most, available without prescription. Why treat what might be prevented in the first place?
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aprilbee
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #20 on: Nov 3rd, 2003, 1:47pm » |
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Welcome Missy, heres hoping Pain Free Days and Nights for you SOON!!!
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Tiannia
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #21 on: Nov 3rd, 2003, 3:27pm » |
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Hiya Missy - yes this place is a god send and these people have great insight and ideas that could help. Stuck around and say hi.
Tiannia
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The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
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ZAIRA
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Hiya, happRe: "wow" Im Not Going Insane
« Reply #22 on: Nov 3rd, 2003, 5:26pm » |
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Hi Missy and nice to meet you !
Happy if you found us, this place is the best thing about CH  , all the support, knowledge, love around here!
Welcome home!
Hugs, Zaira
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Love yourself, Love others, Love often, Forever!
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MISSY
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Re: "wow" Im Not Going Insane at all!!!!
« Reply #23 on: Nov 8th, 2003, 4:53pm » |
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Had A bugger of a week,this week been to a and e twice, second time they hit me with a new drug here for chronic headaches called tramadol ,it worked,it slowes me down and gives me a nites sleep,a bit rough when waking but hay some of that horrible pain has gone can manage on this,they have given me tramadol to take home and add to the cupboard.my poor hubby has to give up his work and run my business for me.i feel so much for my family when this monster takes over.thank you everybody for the support and messages i still get tears to my eyes when i read more and more on this site,i ran out of ink in my printer printing copys off for the doctor,,,,lol,,,lets see if this will put her in the right track
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