Author |
Topic: A question for all of you... (Read 250 times) |
|
tfg229
New Board Newbie
I love YaBB 1G - SP1!
Gender: 
Posts: 3
|
 |
A question for all of you...
« on: Oct 31st, 2003, 11:08am » |
 Quote  Modify
|
Hello everyone:
I posted about two months ago being newly diagnosed with CH. My doc had put my on predisone nad verapamile and after about 2-3 weeks i found my headaches almost gone. I've been getting little ones that are completely bareable and only last between 10-15 minutes.
The doc had me do the MRI/CT thing and they found a small benign (thank God!) tumor on the right side of my head (which is the side my CH's occur) It's called a cholesterol granuloma of the petrous apex.
Basically what happens is the bones over in your ear are soft (unlike your leg or arm bone) and they have air pockets. When the pockets start to hemmorage it creates this mass of cholesterol particles (cholesterol granuloma). It's not actually in the brain, so I don't have to have surgery (thank God once again!) - but if it does grow I may have to go in to have them remove it.
The doc thought the hemmoraging could've been what set off my initial headaches, but they're not sure as I could just be a classic cluster sufferer.
So I was fine for a while and just recently in the past two/three days - my headaches have started again. They're not as severe as when they started but are growing worse (i've gotten 5 in the past two days escalating in pain). Have one now and it's not too bad, just uncomfortable...i'm at work and it just sucks.
My doc told me I should call and go in for another MRI if I start getting the headaches again - cause that could mean the tumor is growing. I don't want to call yet (as it's only been 2-3 days) cause the MRI's and CT's are expensive and although my health insurance is great...well I guess I wanna give it a few days...
my question: I was just wondering have any of you had anything like this come up on a CT or MRI? perhaps it could be common denominator in some of us?
|
|
 IP Logged |
|
|
|
thomas
Guest
|
|
Re: A question for all of you...
« Reply #1 on: Oct 31st, 2003, 11:13am » |
Quote Modify
 Remove
|
Normal ct and mri for me.
|
|
IP Logged |
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender: 
Posts: 411
|
|
Re: A question for all of you...
« Reply #2 on: Oct 31st, 2003, 11:14am » |
Quote Modify
|
MRI, CT, ECG all clean
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
Unsolved
CH.com Alumnus
New Board Veteran
I'm still alive ?
Gender:
Posts: 185
|
|
Re: A question for all of you...
« Reply #3 on: Oct 31st, 2003, 11:17am » |
Quote Modify
|
all 'normal' here
Unsolved
|
|
IP Logged |
I need a fully automatic Imitrex injector
|
|
|
OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
|
|
Re: A question for all of you...
« Reply #4 on: Oct 31st, 2003, 11:20am » |
Quote Modify
|
Normal MRI & MRA. I'd go back for another MRI if I were you. Early detection is always best. Take care & let us know how you make out !
|
|
IP Logged |
One cannot step twice in the same river, for fresh waters are forever flowing around us.
|
|
|
Tiannia
New Board Hall of Famer
Life does not apologies......
 
Gender:
Posts: 3241
|
|
Re: A question for all of you...
« Reply #5 on: Oct 31st, 2003, 11:34am » |
Quote Modify
|
Mine where all clear. I also just started mine in July, I have a 12 day break int he middle of Cot and now they are back.
I think that you should go talk tot he doc and have the MRI. I know that it might be expensive but it is better to know then to worry.
Tia
|
|
IP Logged |
The curious paradox is that when I accept myself just as I am, then I can change. - Carl Rogers
|
|
|
Killroy 2.0
CH.com Alumnus
New Board Hall of Famer
Kilroy 2.0 is Here! Kilroy 2.0 is Everywhere!
Posts: 1426
|
|
Re: A question for all of you...
« Reply #6 on: Oct 31st, 2003, 11:38am » |
Quote Modify
|
MRI, CT, ECG all fine
I had about 1 of each every year for almost 10 years.
always the same - nothing!
Gena
|
|
IP Logged |
Do the walls speak to you? Do you follow the Geek Messiah? DO YOU COMPLY?!
|
|
|
Karla
CH.com Alumnus
New Board Hall of Famer
One of Many and Never Alone - Join OUCH
Gender:
Posts: 3090
|
|
Re: A question for all of you...
« Reply #7 on: Oct 31st, 2003, 11:50am » |
Quote Modify
|
My Mri was normal. Please go see the dr and get another MRI done. Sooner is better than latter. Let us know how you turn out.
|
|
IP Logged |
Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
|
|
|
Big Dan
CH.com Alumnus
New Board Hall of Famer
SMASH BRAIN!
Gender:
Posts: 1513
|
|
Re: A question for all of you...
« Reply #8 on: Oct 31st, 2003, 2:03pm » |
Quote Modify
|
2 CT's, 3 MRI's, God knows how many x-rays...
... all clear.....
-Big Dan
|
|
IP Logged |
Not going anywhere for a while?...
... Grab a Snickers, Fatass.
|
|
|
maggie_may
New Board Veteran
Gender:
Posts: 196
|
|
Re: A question for all of you...
« Reply #9 on: Oct 31st, 2003, 2:08pm » |
Quote Modify
|
All tests clear for me too. And like everyone else said, I'd suggest you go back and have another MRI - better safe than sorry.
Let us know how it works out for you,
maggie
|
|
IP Logged |
Strength does not come from physical capacity. It comes from an indomitable will. - Mahatma Gandhi
The human spirit is stronger than anything that happens to it. - C.C. Scott
|
|
|
goaway
New Board Veteran
"Things take longer than they do."
Gender:
Posts: 230
|
|
Re: A question for all of you...
« Reply #10 on: Oct 31st, 2003, 4:01pm » |
Quote Modify
|
on Oct 31st, 2003, 11:08am, tfg229 wrote:
My doc told me I should call and go in for another MRI if I start getting the headaches again - cause that could mean the tumor is growing. I don't want to call yet (as it's only been 2-3 days) cause the MRI's and CT's are expensive and although my health insurance is great...well I guess I wanna give it a few days... |
|
So call already!!!!! Don't take any chances. We want to know that all is well!
I hope that everything turns out OK.
|
|
IP Logged |
"If you get robbed by worry,.....it was an 'inside' job."
"...runnin' with the shadow...runnin' with the shadow..."
"We don't rent pigs."
|
|
|
Tara Ann
CH.com Alumnus
New Board Hall of Famer
It's always darkest before the dawn.
Gender:
Posts: 2459
|
|
Re: A question for all of you...
« Reply #11 on: Oct 31st, 2003, 4:22pm » |
Quote Modify
|
You really should call your doc...your health is more important when it comes to stuff like that!
I've had numourous CT scans that were fine and 2 mri's that were fine.
|
|
IP Logged |
http://www.myspace.com/taraann77
 
|
|
|
Tim_w
New Board Hall of Famer
Finer than frogs hair!
Gender:
Posts: 522
|
|
Re: A question for all of you...
« Reply #12 on: Oct 31st, 2003, 5:02pm » |
Quote Modify
|
NORMAL what the hell is normal ( I'm Not Normal) 
And I dont think many here are . LOL
Normal is a state of mind and there is not much of my mind left! 
Timw Happy pappy
When they did my MRI they said there was nothing there! I could have told them that! 
|
|
IP Logged |
We will all go to HEAVEN we have been to HELL! -(Personal Quote) YES There is life out There (Thank you to my new suporters)
They say this will only make me stronger but I did not ask to be SUPERMAN
|
|
|
jonny
Guest
|
|
Re: A question for all of you...
« Reply #13 on: Oct 31st, 2003, 5:24pm » |
Quote Modify
Remove
|
Clean on all scans
............................jonny
|
|
IP Logged |
|
|
|
Opus
New Board Hall of Famer
(Insert witty comment here)
Gender:
Posts: 2509
|
|
Re: A question for all of you...
« Reply #14 on: Oct 31st, 2003, 5:40pm » |
Quote Modify
|
Clear, and I had my hopes up.
Opus/Paul
|
|
IP Logged |
Zed-Zed-nine plural-Zed alpha,
There is no place like home.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss