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Mac
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New member intro
« on: Oct 27th, 2003, 7:32pm »
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Hi everybody. I joined a while ago but this is my first post. I first started getting these headaches about 3 and a half years ago but it wasn't until February of this year Roll Eyes that they figured out what was going on. Clusters was mentioned a couple of times but my symptoms were confusing me. I thought I was having sinus attacks and as it turned out I had three different infections of my sinuses all at the same time.One was the worst you could get(forget the name). After a multitude of specialists the last one explained the symptoms and the relationship to my sinuses. I was on so much sudafed and then drixoral near the end I was doing a package of TWENTY Drixoral a day Shocked just to fend off the attacks.It was brutal,not to mention expensive. It was a good thing I have low blood pressure or I could have been in real trouble.With this kind of pain though you do anything - am i right? I figure I had close to a thousand attacks before I was diagnosed. Anyways I still get attacks almost daily but now I havebowImitrex and so far it still works.I'm an artist and a musician and believe me the last place you want the beast to show up is on stage will your rockin' and the lights are going and you have to sing... hammer Anyways that's my story and I'm stickin' to it.
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Re: New member intro
« Reply #1 on: Oct 27th, 2003, 7:38pm »
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Damn, I always hate to do this, because it means another sufferer is cursed with this problem, but WELCOME ABOARD!
 
I hate it that you have to be here, but if you are a clusterhead, you are in the right place!
 
Now, grab an oar, and start rowing.  We have a VICIOUS task mistress (Cootie) and she will be on your case if you don't pull your weight!  heehee ...
 
Chuck
 
 
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BarbaraD
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Re: New member intro
« Reply #2 on: Oct 27th, 2003, 7:39pm »
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Carl D can relate to you.
 
Sorry you were diagnosed with this awful stuff, but glad you found us here. This is the best medicine you'll get. Any questions, problems, or just plain old support is here for the asking (and sometimes it's thrown in without the asking).  
 
From what you just said, you're Chronic (3 years without a break?). There's a thred down below about that. And a world of info about meds and other treatments.  
 
Pull up a chair and READ READ READ. Take the info to your doc and educate him/her. That's how we deal with this demon. I'm chronic and have been here since before dirt, so any way I can help just give me a yell.  
 
Hugs BD
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Re: New member intro
« Reply #3 on: Oct 27th, 2003, 9:31pm »
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Hey Mac,
 
Grab an oar and paddle your ass off!  And if you don't Pam will grab an oar and paddle your ass for ya!!!!
 
Welcome aboard, sorry your here but we are glad that you are!
 
Seeya,
 
Jimbo
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Re: New member intro
« Reply #4 on: Oct 28th, 2003, 12:08am »
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Hey Mac, Welcome to the House of Pain. Lots of info on ur left, and lots of friends to help ya on the way.
Now grab an oar and you can have my seat on the left next to the window. I wont be needing it anytime soon as i am going up to the top deck.
 
PFDAN, Patrick
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Re: New member intro
« Reply #5 on: Oct 28th, 2003, 12:13am »
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Oar faster cuz Cootie is comein ta git ya!! Hi Mac....don't worry I won't hurt ya....depends on my mood ! (snicker snicker) Welcome and hope ya can stick around and have sum fun while learning !! Ahhhhhh anuther musician.......cool.......you should consider the CH convention in July and enter the Clusterhead Band aqoustics late nite jam sessions. Pam that's givein ya an oar
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Re: New member intro
« Reply #6 on: Oct 28th, 2003, 12:34am »
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Clusterhead band  jammin
 
Welcome Mac  
sorry you have to be here but glad you found your way to us Wink
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Mac
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Re: New member intro
« Reply #7 on: Oct 28th, 2003, 1:24am »
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Thanks everybody. I wish we'd met under different circumstances but it's comforting to know that there are others that know what I go through. Not that I'm glad you go through what I go through...you know what I mean. Wink
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Re: New member intro
« Reply #8 on: Oct 28th, 2003, 1:48am »
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Welcome aboard Mac.  Sucks you have to be here but you won't find better company any where else.  Stick around and don't forget to join in on the CH Quilt.
 
Cheers,
Juvy
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Re: New member intro
« Reply #9 on: Oct 28th, 2003, 2:41am »
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Hey, Mac, like your mouse....... Cheesynancyc
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Re: New member intro
« Reply #10 on: Oct 28th, 2003, 7:07am »
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Mac
Welcome To the family!!!!!
now grab an oar and get busy!
PFDAN  TimW Happy Pappy Grin
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Re: New member intro
« Reply #11 on: Oct 28th, 2003, 7:30am »
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Hey Mac, welcome to our world.  Now do as they say and grab that oar.  You dont want to mess with the Coots.  Wink
 
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HRe: New member intro
« Reply #12 on: Oct 28th, 2003, 7:41am »
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Hello and WELCOME MAC!!!
 
What kind of music do you play??  
 
Nice to meet you!
 
tina   Kiss
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Re: New member intro
« Reply #13 on: Oct 28th, 2003, 8:19am »
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Welcome aboard! Smiley
 
When you have the curse called ch, this place is the blessing that comes along with it! Smiley
 
Funny, but ch brought my old love for rock music back alive! When I was dealing with the pain, I related to rock...
 
 
Best wishes & PFdays,
sandie99
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Re: New member intro
« Reply #14 on: Oct 28th, 2003, 8:52am »
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Mac,
   Sorry you had to find us but welcome aboard.
 
 
 
Opus/Paul
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Re: New member intro
« Reply #15 on: Oct 28th, 2003, 9:22am »
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hug Welcome
 
Sorry you had to find us, but glad you did.
 
Gena
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Re: New member intro
« Reply #16 on: Oct 28th, 2003, 9:59am »
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Hullo, Mac!
 
Welcome aboard! As other have wrote before, sorry you have to be here, but glad you found a home. The inmates here are crazy (well, with the exception of ME of course), but a fine bunch of crazies. They've helped me through a lot.
 
I, too, am an artist and can relate. Sit down and read, Read, READ. There is tons of great info scattered about.
 
Good luck to you and remember:
 
When you're lying awake with a dismal headache,  
and repose is taboo'd by anxiety,  
I conceive you may use any language you choose  
to indulge in, without impropriety  
-- W. S. Gilbert  
 
Hirvimaki
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Re: New member intro
« Reply #17 on: Oct 28th, 2003, 10:02am »
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Hi Mac,
Welcome to the madness, sorry you have a reason to look for us though.  I see you're from Edmonton (I'm in Calgary) - looks like you're going to get DUMPED on today!   sgrin  Yes, we're going to get some too but not as much as you!
Anyways, Edm/Cgy rivalry aside Wink, are you under the care of a cluster knowledgeable neuro?  There is a list of these doctors over at the OUCH website(www.clusterheadaches.org) in the first menu above the map.  
If you ever come down to Calgary, our Foothills Hospital has a great headache clinic and my husband is a patient of Dr. Werner Becker and Dr. Eloft there.  They were very accommodating to us (after a little supporter "greasiness" Wink) when he was last in cycle.
Again, Mac - welcome and please feel free to email me directly if you need more "local" cluster help.
Too bad about your baseball/football/hockey teams.  
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Re: New member intro
« Reply #18 on: Oct 28th, 2003, 10:10am »
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Hi Mac, sorry you have to be here  Cry, but welcome  Roll Eyes.  There are some pretty amazing people here as well as a gold mine of information.  Read, read, read, educate yourself.  One of the best things you can do.  Nice to meet ya.
 
Kim
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Re: New member intro
« Reply #19 on: Oct 28th, 2003, 10:46am »
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Hey Mac!
 
Welcome and sorry you had to find us.  Sit back and enjoy the ride....it's a crazy world around here sometimes...but it's always entertaining!
 
hugs
Ann
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Re: New member intro
« Reply #20 on: Oct 28th, 2003, 5:22pm »
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hi there mac and welcome!
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Re: New member intro
« Reply #21 on: Oct 28th, 2003, 5:40pm »
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HELLO MAC. I just want to welcome you, and let you know that you have found a great place, to park yourself and learn about this THING. My story is almost the same. I am also new to the site, just a little over a month ago, I found my way here. Charlie M
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Re: New member intro
« Reply #22 on: Oct 28th, 2003, 5:52pm »
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Welcome to the boat Mac and Charlie M and I'm so sorry to hear of more ppl suffering from this hell
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Re: New member intro
« Reply #23 on: Oct 29th, 2003, 2:14am »
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Thankyou everybody for the nice warm welcome Cheesy.I'll try to visit the site daily to learn as much as I can about our common problem. To Woobie, I play a variety of Rock and Roll. From the Beatles and Van Morrison to the Tragically Hip,Green Day and the Foo Fighters. I play in a duo here in Edmonton and we play pubs and bars and private functions. We play 35- 40 weekends a year. The rest of the time I work as a freelance Illustrator/cartoonist. One of my regular art gigs is drawing cartoons for The Edmonton Journal, the big daily up here.
  To Margi I would like to thank you for your offers of helping find a good doctor/clinic and sincere sympathy for our sports teams. It HAS been a burden carrying all those championships around for all these years Grin. ABC(anybody but Calgary!)bwaaaahahahaha...
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