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Topic: ECH Cycle (POLL) (Read 244 times) |
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LasVegas
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Episodic CH since 11 yrs old, now 39.
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ECH Cycle (POLL)
« on: Oct 23rd, 2003, 4:56pm » |
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How many full days/nights painfree (Not 1 CH and of course no need for abortives) do you give yourself before you begin weaning off of preventaive meds such as Verapamil?
I was thinking about 2 weeks PF and then start weaning, but would appreciate you participating in this poll to get a consensus.
Gregg in Las Vegas
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Wishing all a Pain Free 2008!
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River_Rat
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NUFF SAID!!!
 
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Re: ECH Cycle (POLL)
« Reply #1 on: Oct 23rd, 2003, 6:56pm » |
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That's what I did, 2 weeks, after no ch's or shadows, It worked for me!!
Now------------>
Good luck to ya bro
LEE
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jonny
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None
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LasVegas
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Episodic CH since 11 yrs old, now 39.
Gender:
Posts: 206
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Re: ECH Cycle (POLL)
« Reply #3 on: Oct 24th, 2003, 9:34pm » |
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Anybody else around here Episodic with an answer or all just Chronic? Wouldn't post this thread for a poll if it wouldn't be of help for all to identify better health and mind. Please reply with your personal timeframe. Thanks in advance.
Gregg in Las Vegas
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oringkid
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I'm episodic, but don't do meds... sorry
Sherry
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andy
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Re: ECH Cycle (POLL)
« Reply #5 on: Oct 24th, 2003, 9:45pm » |
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on Oct 24th, 2003, 9:35pm, oringkid wrote:I'm episodic, but don't do meds... sorry
Sherry |
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Same here, just 02 and imitrex for aborting the bad ones
.........andy
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Ann
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Annage
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Re: ECH Cycle (POLL)
« Reply #6 on: Oct 24th, 2003, 9:48pm » |
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I'm episodic and I always continue taking the same amount of preventatives. The longest I went PF was 96 days. Now I have to start weening off my verapamil because of complications. My cardiologist will let me continue taking only 120 mgs a day. My headaches are about to start up again...(I don't really believe that  ) hehe CH?? what the hell is that?
hope that helps
hugs
Ann
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Unsolved
CH.com Alumnus
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I'm still alive ?
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Re: ECH Cycle (POLL)
« Reply #7 on: Oct 24th, 2003, 11:02pm » |
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Greg ... Is your cycle over ? Just wondering...Goodluck 
PS..Sorry...can't help with your question...I'm one of the CHRONIC ones here 
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LasVegas
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Episodic CH since 11 yrs old, now 39.
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Posts: 206
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Re: ECH Cycle (POLL)
« Reply #8 on: Oct 24th, 2003, 11:47pm » |
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Not too sure, but haven't had a CH in 6 days/nights and only 3 in the past 2 weeks. But with 60 mg daily of Prednisone who knows. Seems to have been a wonder drug for me at this dosage. What makes me nervous though is I just started tapering off the Prednisone yesterday down to 40 mg daily and will taper more and off over the next week. So i"m really hoping the Verap has kicked in after 4 weeks and/or the cycle is just plain broke.
Gregg in Las Vegas
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Wishing all a Pain Free 2008!
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jonny
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Hey greg,
Hows it going bro, you still doing ok?
The folks wanna know.
.......................jonny
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LasVegas
New Board Veteran
Episodic CH since 11 yrs old, now 39.
Gender:
Posts: 206
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Re: ECH Cycle (POLL)
« Reply #10 on: Oct 26th, 2003, 11:47am » |
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Jonny,
Thanks for asking bro. No I f---en jinxed myself by writing that previous answer. That night (Friday night woke up with one about an hour after fell asleep, not too severe, o2 aborted in 5 minutes) was incredibly angry more than in pain that it happened. And nothing yesterday or last night. Now, 8:45am Sunday and i'm cool. We'll see. Still tapering off the Pred and going to give it till next weekend before tapering the Verap IF no more CH's.
Prepared for the worst and praying for the best!
Gregg in Las Vegas
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jonny
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on Oct 26th, 2003, 11:47am, LasVegas wrote: Prepared for the worst and praying for the best!
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Thats all we have dude...good luck to ya!!
............................jonny
Oh ya....No such thing as jinx with CH...what will happen will happen no matter what you type
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| « Last Edit: Oct 26th, 2003, 11:52am by jonny » |
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nancyc
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Re: ECH Cycle (POLL)
« Reply #12 on: Oct 26th, 2003, 11:57am » |
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When I was episodic, I was not on anything so I cant help you, bro...hope all is well with you...keep us posted...  nancyc
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brain_cramps
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Re: ECH Cycle (POLL)
« Reply #13 on: Oct 26th, 2003, 12:40pm » |
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another episodic that's med-free... haven't done any preventatives since mid-80s
grant
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