Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
Sep 29th, 2024, 9:29pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Does anyone else ... »


   Clusterheadaches.com Message Board
   New Message Board Archives
   Oct-Dec 2003
(Moderator: DJ)
   Does anyone else ...
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Does anyone else ...  (Read 268 times)
Unsolved
CH.com Alumnus
New Board Veteran
USA 
***




I'm still alive ?

   
WWW Email

Gender: male
Posts: 185
Does anyone else ...
« on: Oct 20th, 2003, 11:19am »
Quote Quote Modify Modify

have sleep apnea and treat it with a breathing machine ?
IP Logged

I need a fully automatic Imitrex injector
thomas
Guest

Email

Re: Does anyone else ...
« Reply #1 on: Oct 20th, 2003, 11:23am »
Quote Quote Modify Modify Remove Remove

I haven't been checked for sleep apnea yet.  Sorry.
IP Logged
Opus
New Board Hall of Famer
USA 
*****




(Insert witty comment here)

  pjbgravely   pjbgravely
WWW Email

Gender: male
Posts: 2509
Re: Does anyone else ...
« Reply #2 on: Oct 20th, 2003, 11:39am »
Quote Quote Modify Modify

Yes, I do, but don't expect it to make your CH better, I had my first cycle of 10's after being on the Cpap for 3 months.
 
Opus/Paul
IP Logged

Zed-Zed-nine plural-Zed alpha,

There is no place like home.
Mikey
New Board Hall of Famer
USA 
*****




Rock till ya Drop and DON'T mess with the FAM!!!!!

    MGuitarM
WWW Email

Gender: male
Posts: 585
Re: Does anyone else ...
« Reply #3 on: Oct 20th, 2003, 12:03pm »
Quote Quote Modify Modify

Yeah, i use a Cpap too and have to use 2 lpm of O2 hooked up with it, because i'm on O2 all the time but some people use O2 at night with the machine ordered by the Doc because their O2 SAT is too low.
Do you use O2 with your CPAP at night Unsolved? For that matter, does anyone else have too? I have a O2 concentrator that goes up to 5 lpm, and i also use the bottles when i have a CH, or leave the house.
 
Just like Opus said, don't expect it to help the Chs.  As a matter of fact, if you are having Hypoxemia (low O2 SAT) it causes the O2 to not have the effect that it should on the CHs, because you are already deprived of O2 and Hypoxemia actually makes the Chs worse.
 
Unsolved, besides from not getting the sleep that you should because of the CHs, are you extraordinarily sleepy during the day?  If so, have your O2 SAT checked with a take home meter that allows you to record your O2 SAT for 24 Hrs, and then the Doc can see if you need O2 therapy.
 
Hope this helped you some.  Good luck.....
Damn, i hate wearing that fucking mask.. Angry...Don't ya'll??
 
Mikey,
IP Logged

I love to ROCK very HARD!!!

CHRONIC and going crazy!! Want to come too?

Hope for PFDAN, peace and safety to you all!!
Unsolved
CH.com Alumnus
New Board Veteran
USA 
***




I'm still alive ?

   
WWW Email

Gender: male
Posts: 185
Re: Does anyone else ...
« Reply #4 on: Oct 20th, 2003, 3:49pm »
Quote Quote Modify Modify

No, I don't use O2 with my Cpap. Kinna strange though now that you mention it. During the day my levels are fine...when I sleep the levels plummit. Doc says I stop breathing some which drops the levels. The levels are lower when I sleep on my back. Anyhows, I got a Cpap just the other day and i'm supposed to use it every night. It has a digital card in it (like satellite dish recievers) which records lots of info on it. I have to take the card back in 2 weeks.
IP Logged

I need a fully automatic Imitrex injector
Opus
New Board Hall of Famer
USA 
*****




(Insert witty comment here)

  pjbgravely   pjbgravely
WWW Email

Gender: male
Posts: 2509
Re: Does anyone else ...
« Reply #5 on: Oct 20th, 2003, 5:35pm »
Quote Quote Modify Modify

Mikey,
  T here is an alternative to the mask, I use a device that just goes into the nostrils, the mask was destroying my nose as there is nothing but skin over bone there, and that head piece was very painful. I can't remember what this device is called but I can find it if you would like to know.
 
Also no O2, just a cold humidifier is on my Cpap. It only gives me 50% relief from my symptoms but I am  a lot better than before I got it.
 
Opus/Paul
IP Logged

Zed-Zed-nine plural-Zed alpha,

There is no place like home.
echo
CH.com Alumnus
New Board Hall of Famer
USA 
*****



Chronic and still alive --- I Win!

   


Gender: male
Posts: 4214
Re: Does anyone else ...
« Reply #6 on: Oct 21st, 2003, 4:21pm »
Quote Quote Modify Modify

Yes,  I have it (or had it) in a bad way.  Stopped breathing 60 to 80 times an hour, at times up to 2 mins at a time.  Had the CPAP with a humidifier but w/o O2.  Pressure was set at 13 psi (15 is max).  Had problems with any one mask if used for several nights.  Ended up cycling between 4 different masks to keep my nose and head from getting sore.  The need to use these 4 masks made corrective surgery possible.  I've had the surgery and no longer need the CPAP, and I no longer have Apnea, hell I no longer have alot of stuff in the nose and throat area.
IP Logged

"If you love something, let it go. If it doesn't come back, hunt it down and kill it".

Proud Dad of a US Marine, and a former Marine turned Police Officer.





Mikey
New Board Hall of Famer
USA 
*****




Rock till ya Drop and DON'T mess with the FAM!!!!!

    MGuitarM
WWW Email

Gender: male
Posts: 585
Re: Does anyone else ...
« Reply #7 on: Oct 21st, 2003, 7:40pm »
Quote Quote Modify Modify

Thanks Opus, i'll ask the Doc about the type of thing that you are describing, and maybe i'll use mine more often than i do.
 
Mikey,  Grin
IP Logged

I love to ROCK very HARD!!!

CHRONIC and going crazy!! Want to come too?

Hope for PFDAN, peace and safety to you all!!
Mikey
New Board Hall of Famer
USA 
*****




Rock till ya Drop and DON'T mess with the FAM!!!!!

    MGuitarM
WWW Email

Gender: male
Posts: 585
Re: Does anyone else ...
« Reply #8 on: Oct 21st, 2003, 7:43pm »
Quote Quote Modify Modify

Good Unsolved, maybe then they can get an idea of your O2 sat all night long, and make a decision on whether or not you would need O2 therapy with your CPAP.
 
Mikey,  Grin
IP Logged

I love to ROCK very HARD!!!

CHRONIC and going crazy!! Want to come too?

Hope for PFDAN, peace and safety to you all!!
Mikey
New Board Hall of Famer
USA 
*****




Rock till ya Drop and DON'T mess with the FAM!!!!!

    MGuitarM
WWW Email

Gender: male
Posts: 585
Re: Does anyone else ...
« Reply #9 on: Oct 21st, 2003, 7:54pm »
Quote Quote Modify Modify

Echo, that's really good that you don't need yours anymore, that would be so wounderful for me, but i don't have any obstructions, mine comes from my brain signals.  Yes i do stop breathing serveral times an hour(don't remember how many), and that just adds to my Hypoxemia, and sometimes i'm almost impossible to wake up from someone trying to wake me up.  Been to the ER several times for that reason.  When your body is so low on O2, you almost will go comatose.
 
Hope for free breathing and PFDAN to everyone!!!!!!!!!
 
Mikey,
IP Logged

I love to ROCK very HARD!!!

CHRONIC and going crazy!! Want to come too?

Hope for PFDAN, peace and safety to you all!!
Opus
New Board Hall of Famer
USA 
*****




(Insert witty comment here)

  pjbgravely   pjbgravely
WWW Email

Gender: male
Posts: 2509
Re: Does anyone else ...
« Reply #10 on: Oct 22nd, 2003, 1:40pm »
Quote Quote Modify Modify

Mikey,
   The type of "mask" I use is called " ADAM CPAP circuit". It is not really a mask but more like a canula and the hose goes on top of your head. I can use it even if I have a sore nose from a cold.  It will have to be fitted. Most drs only prescribe the mask. I got mine by going to my GP and he called for a refit, with no specified type.
 
Opus/Paul
IP Logged

Zed-Zed-nine plural-Zed alpha,

There is no place like home.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss