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Topic: What makes your ch worse during an attack? (Read 567 times) |
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nancyc
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What makes your ch worse during an attack?
« on: Oct 15th, 2003, 1:21pm » |
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I know alot of folks have no problem with lights but they aggrevate me when i am getting hit. I have dim lights in my bathroom since that is the first place i run to.
Noise bothers me because i like to be alone
I can not stand for anyone to touch me or move around me when I am getting hit.
Crying makes my chs worse.
Having someone ask me what can I do to make it better? I just want them to get the hell away from me and leave me alone.
I think alot of the things that make my chs worse during an attack are because I am so used to isolating during an attack...
 nancyc
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Patrick_A
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Re: What makes your ch worse during an attack?
« Reply #1 on: Oct 15th, 2003, 1:33pm » |
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I can relate to the isolation subject, but only because i've been alone for so long. Noise or having to answer questions probably annoys me the worst. I truly don't think anything actually makes it worse. Like most, i isolate myself and i pace, squeeze, pull my hair, pound my temple....bla, bla, bla.
Patrick
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Karla
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Re: What makes your ch worse during an attack?
« Reply #2 on: Oct 15th, 2003, 1:35pm » |
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First I want to say that I could have written Nancy's post. That aside the only other thing I can think of that makes my ch worse is heat and barometric changes in the weather.
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Karla
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thomas
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Re: What makes your ch worse during an attack?
« Reply #3 on: Oct 15th, 2003, 1:38pm » |
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Any people around - they make too much noise. I find that listening to Fleetwood Mac helps - I don't know why. Light or any noise. I like to have a fan blowing on me when I am having a ch.
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wayner57
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Re: What makes your ch worse during an attack?
« Reply #4 on: Oct 15th, 2003, 1:39pm » |
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when I get an attack, I also like to be alone, so I seek places where no one will see me or bother me.
I also like to feel cool, and I know if I am in a hot enviroment it makes me feel worse.
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stuey
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Re: What makes your ch worse during an attack?
« Reply #5 on: Oct 15th, 2003, 2:11pm » |
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Each thing you said. Light I can't take, noise i cannot hear and do not under any circumstance try touching me. Stuey
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Azrael
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Re: What makes your ch worse during an attack?
« Reply #6 on: Oct 15th, 2003, 2:14pm » |
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Flourescent lighting, sunlight, heat, and stupid people (unfortunately, I can't avoid 3 of the 4 while at werk.)
PFDAN....................................... Drk^Angel
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brain_cramps
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Re: What makes your ch worse during an attack?
« Reply #7 on: Oct 15th, 2003, 2:34pm » |
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While a number of people here say that they enjoy a smoke after a CH, that cranks it right back up for me. (been a long time since i've done that). Just to be on the safe side, I won't have another smoke until the next morning. Pretty tough sometimes.
grant
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Bob_Johnson
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Re: What makes your ch worse during an attack?
« Reply #8 on: Oct 15th, 2003, 2:59pm » |
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Light, sound, movement!!
Fortunately, most of my attacks come in the early evening and so creating darkness in the house is relatively easy.
Best thing I can do: sit in neutral posture; relax all muscles as much as possible; and try to get into a meditative mind place, i.e., drift into a much absence of active thought as possible.
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Bob Johnson
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ShariRae
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Re: What makes your ch worse during an attack?
« Reply #9 on: Oct 15th, 2003, 3:08pm » |
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For me.. the biggest thing that makes it worse is heat..it seems 10x worse when I am sweating from the headache & it is hot.....
Shari
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Surf
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Re: What makes your ch worse during an attack?
« Reply #10 on: Oct 15th, 2003, 3:18pm » |
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I am finding that most of us have simularities of what makes the ch worse. I attempt to avoid all the things that act as triggers, this kind of puts a damper on the quality of life, since if those that are triggers are also envolved in the "making it worse" then thats what I need to avoid.
If you can find me while having an attack I would be pacing,praying,in a quite place, low odors attempting to block the world out. Maybe that is why we build a cage around ourself. Their seems to be alot of unknown reasons that things"make it worse" or act as "triggers" .
I am so glad that we have affiliates that are attempting to do research in the area of cluster headaches, we need to find a cure and work together in order to do this.Speaking of work , we all got alot to do...Surf
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Killroy 2.0
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Re: What makes your ch worse during an attack?
« Reply #11 on: Oct 15th, 2003, 3:31pm » |
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Everything!!!!!!
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Blake
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Re: What makes your ch worse during an attack?
« Reply #12 on: Oct 15th, 2003, 3:36pm » |
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Ice sends me into a full Kip10. Light and noise don't work either. I try to be still so a lot of movement around me isn't good.
Cool temperatures are a plus. Most of you like to be alone. I like Jackie right beside me. Her voice keeps me calm and I like her to touch me but not on the head or neck. I feel stronger when she is with me. There is one guy at work that I don't mind having around but I don't want him to touch me ;D
Blake
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echo
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Re: What makes your ch worse during an attack?
« Reply #13 on: Oct 15th, 2003, 3:46pm » |
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on Oct 15th, 2003, 1:35pm, Karla wrote:| That aside the only other thing I can think of that makes my ch worse is heat and barometric changes in the weather. |
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What Karla said
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Charlie
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Re: What makes your ch worse during an attack?
« Reply #14 on: Oct 15th, 2003, 4:00pm » |
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Nothing increases the pain but stuff can make them harder to deal with.
I'm very close to Nancy on this. I want dark, dead silence, a cool place, don't touch me, don't talk or ask me anything. Go away or I will kill you.
Charlie
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Tim_w
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StinRe: What makes your ch worse during an attack?
« Reply #15 on: Oct 15th, 2003, 5:21pm » |
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Stinking perfume will send me to the top real quick! 
TimW Happy pappy
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Prense
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Re: What makes your ch worse during an attack?
« Reply #16 on: Oct 15th, 2003, 5:42pm » |
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Smoking and/or being hot during an attack...
Light doesn't bother me, sound doesn't bother me. People do not even aggrivate an attack although isolation is preferred...
The problem is...often I REALLY crave a cig while getting hit mid range on the Kip. After I light one up, the attack increases, and I realize that I am a dumbass.
Oh well...
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oringkid
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Re: What makes your ch worse during an attack?
« Reply #17 on: Oct 15th, 2003, 5:54pm » |
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Wow, you guys are strange! LOL! Just kidding.
I am textbook CH. Noise, no problem. Light, no problem. Being around others, no problem. Only thing that makes my CH worse, i.e. the pain gets worse is:
1) smoking a cigarette once it is underway (but I do this because I have found that it "hurries" the CH along to its peak and therefore is gone more quickly)
2) smoking "other stuff" same as number one
3) getting onion fumes during high kip shadows (say a kip 4 or 5) But this does not "help it along" like smoking in fact I found it heightens AND prolongs the attack!!
I feel a bit stressed when people ask questions when I am in so much pain that I cannot physically answer them, but, it doesn't make the pain worse.
I really feel that there is a lot more grey here than black and white. Seems to me that many here have a lot more migranous symptoms mixed in with the CH symptoms than many here would like to admit.
In fact, if we were to be EXTREMELY RIGID in our criteria, there would be VERY few here that could claim true CH.
Just something to ruminate on...
Sherry
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jonny
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Re: What makes your ch worse during an attack?
« Reply #18 on: Oct 15th, 2003, 6:09pm » |
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Nothing.
What makes it bearable is bright light and loud metal.
..............................jonny
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tsayswhy
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Re: What makes your ch worse during an attack?
« Reply #19 on: Oct 15th, 2003, 6:14pm » |
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light doen't seem to do anything!
being lone sometime i want to be sometimes i want hubby around!!
QUIET NO NOISE PLEASE
no heat i get so hot when i am having one so i like ice
and after its almost over yes i do..i do---light up a smoke
it hurts more when i cry so i try not too 
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kim
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Re: What makes your ch worse during an attack?
« Reply #20 on: Oct 15th, 2003, 6:59pm » |
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ch attacks are for me like being "temporarily" allergic to everyone and everything. I despise being seen or observed while dancing my hellish jig. Noise and people do aggravate when the bell tolls.
for me "optimum" cluster situation i can be in for a cluster attack is
1. by myself
2. near the bathroom/tub/shower
3. a coffee pot full of hot strong coffee
WORST SCENARIO:
1. Being at work in a corporate environment with happy smiley people and ringing telephones .............  (i really hate those times)......
2. Being with friends in a bar with loud music and everyone is having a ball..........(kill me NOW )
3. Driving in traffic
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Chia
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Re: What makes your ch worse during an attack?
« Reply #21 on: Oct 15th, 2003, 7:04pm » |
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Oh My God Nancy....you described Charlie to a Tee!!!!!! When he gets hit I live in darkness and silence and if I don't go check on him every once in a while he thinks I don't care but then If I ask any questions he hardly knows I am there....*sigh*.....I could only hope that there will be a solution some day.....Chia
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nancyc
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Re: What makes your ch worse during an attack?
« Reply #22 on: Oct 15th, 2003, 7:10pm » |
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Sherry, have a really hard time thinking what i feel is migarines..even though i know they are hell ..not trying to make their pain seem less than mine..After all, we are cousins....but these are the things i deal with when hit with chs...have had them for over 28 years..wish i did not.....are they personal? are they symptomatic? who the hell knows..all i know is leave me the fuck alone when i am getting hit...i want to be alone.....i hate life when i am in pain...i thrive when i am NOT.... 
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| « Last Edit: Oct 15th, 2003, 7:11pm by nancyc » |
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oringkid
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Re: What makes your ch worse during an attack?
« Reply #23 on: Oct 15th, 2003, 7:14pm » |
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oh, Nancy, don't get me wrong, I'm not saying they are migraines at all... just saying that there is more of a lap-over of symptoms than some would like to admit.
IE the Noise, light, etc type thing. We WANT them to be completely different, but there ARE symptoms for many that are similar or the same.
Sherry
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nancyc
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Re: What makes your ch worse during an attack?
« Reply #24 on: Oct 15th, 2003, 7:17pm » |
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Oh, sis..i do know that...very well...i guess i am so damn tired of hearing..well, you have a headache..maybe a migraine...from people that know nothing about chs and could care less about them...i am thin skinned..what can i say? ??? no offense meant..i am not in a good mood tonite. LOL ;Dnancyc
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