Author |
Topic: Vision Problems (Read 1152 times) |
|
Gilliandrea
New Board Newbie
Gender: 
Posts: 7
|
 |
Vision Problems
« on: Apr 13th, 2008, 8:58am » |
 Quote  Modify
|
I have found that I get a lot of blurring during this cycle.
Does anyone else have this as I have only seen it mentioned due to meds? Or maybe I've not searched enough 
If I try to concentrate on anything my vision becomes blurry and tears streaming from my CH side eye (left).
Gill
|
|
 IP Logged |
|
|
|
beachmusic
Guest
|
Hi and welcome Gill,
I am not sure if this is the same thing as what you are referring to but I also have alot of vision problems.
Mine started when the cycle began and certainly are worse during and attack but now that the cycle seems to be winding down I am still very blurry eyed and cannot focus  .
Not sure what if any medications you may be on but I am on Topamax and I believe this a side effect.
Alas I have a delightful doctor who told me he would be unavailable to take my phone calls until my next appt. sooo I will have to remain blurry eyed until then. At that point I will no longer be seeing him.
Hope this is of some help. Good luck to you.
Mary Ann
|
|
IP Logged |
|
|
|
DennisM1045
New Board Hall of Famer
One wave at a time!
  
Gender: 
Posts: 1639
|
|
Re: Vision Problems
« Reply #2 on: Apr 13th, 2008, 9:50am » |
Quote Modify
|
Hi Gill,
If you mean blury due to excessive tearing of the CH eye then yes, I get it too. I'm a right sider and that eye tears constantly - even between the hits.
If you mean a loss of the eye's ability to focus I'd get that checked out by your Neurologist. Visual disturbances are not a typical cluster symptom.
Good luck...
-Dennis-
|
|
IP Logged |
Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
|
|
|
Gilliandrea
New Board Newbie
Gender:
Posts: 7
|
|
Re: Vision Problems
« Reply #3 on: Apr 13th, 2008, 9:53am » |
Quote Modify
|
Thanks for the feedback
I just got the beast back on 9 April and I am still on my build up with verapamil which I hope will take true effect from about 24 April at the latest. In the meantime I am using the Imigran (Imitrex) nasal sprays and injections with the hopes of getting O2 from my consultant on wednesday.
During my HA's I don't even think about looking at anything.
However I find that I have constant shadows throughout the day with 2/3 HA's kip 4/5 and a kip 7 to 10 waking me at 2.30am. And being totally exhausted all the time.
Mary Ann
Your current Dr seems to be a real idiot, hope you find better luck with a new Dr.
Dennis
It is focusing that I meant, as I am seeing the consultant on Wednesday I will definitely bring this up.
But I do find that the tearing in my CH eye is almost constant.
Gill
|
| « Last Edit: Apr 13th, 2008, 9:58am by Gilliandrea » |
IP Logged |
|
|
|
purpleydog
CH.com Alumnus
New Board Hall of Famer
Posts: 2240
|
|
Re: Vision Problems
« Reply #4 on: Apr 13th, 2008, 6:40pm » |
Quote Modify
|
When I'm getting hit, I can't focus on anything. When a high cycle hits me, I can't focus for days, even to the point of not being able to drive.
When I was episodic, and was in cycle, the side I'd get hit on, that eye was blurry. After I turned chronic, I'd get into a "cycle" and have blurry vision on the side I'm getting hit on. My neuro says this is normal. It goes away after the "cycle" is over. My normal hits, I have a bit of blurriness, but it goes away within a few hours of the hit ending.
edit to add: I couldn't get new glasses I needed during my first cycle, due to the not quite being able to focus for months. I saw an opthamologist first, because of the pain in my eye, and he said it was neurological. So did my neuro.
When I'm in a cycle, there's no going to the eye doc for glasses, I can't focus, even with corrective lenses...
|
| « Last Edit: Apr 13th, 2008, 6:44pm by purpleydog » |
IP Logged |
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Vision Problems
« Reply #5 on: Apr 14th, 2008, 7:07am » |
Quote Modify
|
After my surgery (I had some optic nerve damage from that) my left eye is blurred some days and other days it's clear -- never know till I wake up which way it's gonna be... glasses don't help. My right eye is fine most of the time, so I just look at things half blurred.
Sometimes drops help. Since Jonny shared his Visine secret, I've been using them when I'm blurred and they seem to help.
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
midwestbeth
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 834
|
|
Re: Vision Problems
« Reply #6 on: Apr 14th, 2008, 3:36pm » |
Quote Modify
|
I've noticed this too. I'm a lefty (ch) and the vision in my left eye has always been worse than in my right. I was just thinking last night that my vision must be getting worse because even with my glasses, I still have a problem seeing clearly. My Rx for my glasses is only a little over a year old.
Beth
|
|
IP Logged |
Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
~ John Rhodes
|
|
|
CostaRicaKris
New Board Veteran
Currently training for AFC half Marathon
Gender:
Posts: 179
|
|
Re: Vision Problems
« Reply #7 on: Apr 14th, 2008, 8:32pm » |
Quote Modify
|
I thought I was getting old. I bought reading glasses at the drug store.
|
|
IP Logged |
Visit my website: http://www.active.com/donate/amnhealthcare/KristinaMorris to learn more about Girls on the Run, a non-profit prevention program that encourages preteen girls to develop self-respect and healthy lifestyles through running
|
|
|
Gilliandrea
New Board Newbie
Gender:
Posts: 7
|
|
Re: Vision Problems
« Reply #8 on: Apr 16th, 2008, 11:36am » |
Quote Modify
|
Thanks to everyone who gave me the "low down" on their own experience. 
I was at the consultant today and she has said that it is not uncommon for CH sufferers to have blurry vision throughout their cycle. 
I am quite badly short sighted anyway so I can't get a new prescription from the optician until the current cycle ends, and as far as trying to drive, not a chance!!! 
Well at least I have a good looking chauffeur  in my DH.
|
|
IP Logged |
|
|
|
Rosebuddy
New Board Newbie
Gender:
Posts: 18
|
|
Re: Vision ProblemsA
« Reply #9 on: Apr 17th, 2008, 7:54am » |
Quote Modify
|
Well, I feel like a complete dope! Just like most of you, when I started this cycle I was desperate to figure out what triggered it, and my vision was less than perfect. So I went in to see the optometrist, and after a prolonged session got a new prescription. Got the glasses, and couldn't see out of them at all! So I made another appointment, and by then the cycle had ended.  Another exam, new lenses, and now I can see. It just never occurred to me that the CH's were causing the vision problems. Duh. Once again, you fellow sufferers have been the source of a revelation. PF days to all of you!
|
|
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss