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Topic: New Drug ... my neuro is excited (Read 1050 times) |
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BarbaraD
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New Drug ... my neuro is excited
« on: Mar 14th, 2008, 9:30pm » |
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Went to the neuro today and I've not seen him this excited in a while.
He came in the room with a sample for m and told me he was putting me on it. It Namena - a drug used for Altzheimers (and NO that wasn't why he was putting me on it!). He said new studies show it can HELP CH and he wanted to test it on me.
Most of you know I'm on topomax (which I'm still on and he's happy with that).
I forget all the technical jargon on Nemenda, but he told me there's no way it can hurt me and the worst case senerio is that my memory improves (no downside to that one). It's a little different dose than the one for Altzheimers, but it ends up 10mg a day after the first week of 5mg.
He was so excited about it that now I'm excited about it too. So at least my memory will improve and hopefully my headaches also. Right now I'm in a "high" cycle so we should know in a little while if it's working on the headaches any at all. He said he wouldn't "wish" a high cycle on me, but this was the best time to try it out.
So ya'll keep your fingers crossed. This may be a breakthru for us all..... Will keep you posted -- now that I should be able to "remember" to do so.
Hugs BD
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Annette
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Re: New Drug ... my neuro is excited
« Reply #1 on: Mar 14th, 2008, 9:56pm » |
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That sounds very exciting and promising Barb !
I am crossing everything crossable that it will work really well for you and stop all those hits 
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debOUCH
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Re: New Drug ... my neuro is excited
« Reply #2 on: Mar 14th, 2008, 9:58pm » |
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great news barbara! i am seeing neuro for 1st time monday, and armed with a folder WAY HIGH!!! printing your post as i type................tks.....................PF wishes your way!
deb
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thebbz
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Re: New Drug ... my neuro is excited
« Reply #3 on: Mar 14th, 2008, 9:59pm » |
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Good luck with that. And the CRS.
thebb
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Linda_Howell
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Re: New Drug ... my neuro is excited
« Reply #4 on: Mar 14th, 2008, 10:15pm » |
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LOL...I googled it and came up with an island in FIIJI
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DragonSlayer
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Re: New Drug ... my neuro is excited
« Reply #5 on: Mar 15th, 2008, 12:54am » |
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LOL  I gotta change neuros real soon.
MOODY'S NAMENA RESORT, FIJI is an environmentally friendly private island South Pacific getaway and offers scuba diving, snorkeling, fishing or honeymoon vacations with Fijian bure accommodation. The Resort is a secluded paradise with white sand beaches as well as hiking trails through tropical forest.
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Sean_C
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Re: New Drug ... my neuro is excited
« Reply #7 on: Mar 15th, 2008, 5:23am » |
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I hope it works barb, keep us posted on your results.
Cheers 
Sean............................... 
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beachmusic
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Re: New Drug ... my neuro is excited
« Reply #9 on: Mar 15th, 2008, 7:03am » |
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Barbra,
Thats the nicest news I have heard for awhile. I have everything possible crossed here also. And will be taking this info along with me to the doctor this week. Thanks for the information. Mary Ann
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BarbaraD
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Re: New Drug ... my neuro is excited
« Reply #10 on: Mar 15th, 2008, 7:12am » |
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LMAO LInda -- Ok so I just STARTED taking it and I'm OLD -- can't expect results overnight -- FIJI sounds NICE --
Spelled it WRONG -- It's NAMENDA...
But ya know - they were still experimenting with topomax when I started it to and it's worked great for me, so.... here's hoping...
Hugs BD
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Grandma_Sweet_Boy
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Re: New Drug ... my neuro is excited
« Reply #11 on: Mar 15th, 2008, 7:48am » |
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Barb - I sure do hope this works for you and gives you a real break.
As the others have said, please keep us posted.
Hugs
Carol
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BarbaraD
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Re: New Drug ... my neuro is excited
« Reply #12 on: Mar 15th, 2008, 1:42pm » |
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Thanks for the article Ray...
Apparently they've been studying it since 2003 for migraines.
It said they went up to 20mg (same dose as for Alzheimers), but he told me to keep it to 10mg at the max dose (5mg morning and 5mg nite). Start out with 5mg a day and next week we go to the 10mg a day.
But if it even slows down the hits or makes them easier this will be something to add to our arsnel...
Hugs BD
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mc_ashes
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Re: New Drug ... my neuro is excited
« Reply #13 on: Mar 15th, 2008, 2:35pm » |
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Great news Barbara, hope it gives you some relief.
Mark
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Jonny
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Re: New Drug ... my neuro is excited
« Reply #14 on: Mar 15th, 2008, 2:48pm » |
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on Mar 14th, 2008, 9:30pm, BarbaraD wrote:Went to the neuro today and I've not seen him this excited in a while.
He came in the room He was so excited |
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He didnt touch you did he, Mom? 
Ill kill the bastard!
(Sorry, couldnt resist....LMAO )
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
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DennisM1045
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Re: New Drug ... my neuro is excited
« Reply #15 on: Mar 15th, 2008, 4:25pm » |
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Thanks for sharing this Barbara. I hope it's your magic bullet.
Damn it's tough to type with all these things crossed...
-Dennis-
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sandie99
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Re: New Drug ... my neuro is excited
« Reply #16 on: Mar 16th, 2008, 8:06am » |
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Lots of good luck with the new med, Barb! I hope it helps you. 
Sanna
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BarbaraD
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Re: New Drug ... my neuro is excited
« Reply #17 on: Mar 16th, 2008, 8:07am » |
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on Mar 15th, 2008, 2:48pm, Jonny wrote:
He didnt touch you did he, Mom?
Ill kill the bastard!
(Sorry, couldnt resist....LMAO )
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Unfortunately, I've got shoes older than he is....
Hugs BD
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GonnabeatemJudi
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Re: New Drug ... my neuro is excited
« Reply #18 on: Mar 18th, 2008, 7:24am » |
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Awesome news Barb! Keep us posted and btw, that Fiji Island would be a nice place to have a week or year or lifetime, eh?
PF wishes - R&R(RedBull & Relpax)
Judi
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monty
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Re: New Drug ... my neuro is excited
« Reply #19 on: Mar 19th, 2008, 11:27am » |
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http://www.memantine.com/en/
They think it works by blocking NMDA/glutamate receptors - hope it helps.
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markinct
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Re: New Drug ... my neuro is excited
« Reply #20 on: Mar 21st, 2008, 4:29pm » |
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Went to my Doc today..... Won't let me try it... Says my health care wont cover it because it hasnt been FDA approved for off label use yet. But, if it works.......
Verapimil and Top arent working.... took me off those today and is trying cafergot... dont know what hes thinkin
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HeadhurtinMama
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Re: New Drug ... my neuro is excited
« Reply #21 on: Mar 21st, 2008, 9:50pm » |
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I so wish I had seen this post earlier in the week, I just went to the neuro on Wednesday! Will have to investigate this more, as verapamil is making really sick to my tummy every time I take it now.
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gore2424
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Re: New Drug ... my neuro is excited
« Reply #22 on: Mar 22nd, 2008, 12:06am » |
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I am going to print all that I can about this med you all have posted and take it to my nuero's office to let him have something to maybe try in the future for me ( if current meds start to lose effect on my CH) and any other patients he has that might benifit from it thanks to all Terry
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what the hamsalad was that ¿?¿
I said your hair looks nice Ü
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