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Topic: Anybody get twitches ? (Read 2759 times) |
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Mack
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Anybody get twitches ?
« on: Feb 20th, 2008, 1:13am » |
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Hello All,
It's been awhile since I've logged on...almost five years!! Mostly PF since I quit smoking 4 1/2 years ago. But this cycle is kicking my butt!! Been going 6 weeks now. I think (read: hope)the worst is over as attacks have been fewer and somewhat less intense, probably from medrol taper.
Anyway, this cycle has a new 'feature'. Just before an attack, I get what feels like muscle contractions on the right side of my head and twitches under my right eye(pain side), on the bridge of my nose, and upper lip. I mentioned this to my neuro and will probably get an mri soon.
Just wondering, does anybody else has any kind of similar tics or twitches?
Mack
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outofcommission
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Re: Anybody get twitches ?
« Reply #1 on: Feb 20th, 2008, 1:21am » |
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i have had twitches in my right cheek and my right foot. usually from a peek until the end of the ride. glad to hear you are smoke free. i usually have about 4 to 5 years between cycles too.
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that which does not kill you will only make you crazy, obsessive, and sleep deprived
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thomas
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Re: Anybody get twitches ?
« Reply #2 on: Feb 20th, 2008, 8:53am » |
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Yep, get the old eye twitch quite a bit before, during and after a cycle.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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midwestbeth
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Re: Anybody get twitches ?
« Reply #3 on: Feb 20th, 2008, 9:28am » |
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I have eye twitches all the time. Mostly on right (non-cluster side), the left eye gets twitchy too, just not as bad as the right.
Beth
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George_J
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Re: Anybody get twitches ?
« Reply #4 on: Feb 20th, 2008, 10:08am » |
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Blepherospasm--a nice fat Latinism to sling about.
I find that unlike "tic" or "twitch", "blepherospasm" elicits a simulacrum of tender concern in the listener. It's a nice word to use if you'd like a bit of uncomprehending solicitude and social grooming.
Yeah, I get eye-twitches too, particularly in cycle.
Best,
George
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| « Last Edit: Feb 20th, 2008, 10:25am by George_J » |
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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sogna
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Re: Anybody get twitches ?
« Reply #5 on: Feb 20th, 2008, 12:35pm » |
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Yep, I get the twitches also. I never correlated them with CH though. Should've known better..... 
~Sonia
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Sean_C
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Re: Anybody get twitches ?
« Reply #6 on: Feb 20th, 2008, 7:17pm » |
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I'm a twitcher. I've brought it up at the nuero, he said its nothing to worry about.
Sean...........................
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thebbz
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Re: Anybody get twitches ?
« Reply #7 on: Feb 20th, 2008, 9:46pm » |
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Eye twitcher.
thebb
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It wasn't me I didn't do it
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Ob1kanobee
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Re: Anybody get twitches ?
« Reply #8 on: Feb 21st, 2008, 12:09am » |
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I get eye twitches and arm twitches but NOT when I'm in cycle. Have found no corallation between it an CH
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Mack
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Re: Anybody get twitches ?
« Reply #9 on: Feb 21st, 2008, 2:29am » |
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Thanks everyone.. I thought maybe it could be related to CH. I guess it might be interesting to know what percentage of CH'ers have the same twitches vs. non-CH.
Still would change the fact that its annoying as hell  My wife says I looking like I am trying to give myself a vulcan mind meld when I'm trying to calm the twitches. 
Mack
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| « Last Edit: Feb 21st, 2008, 2:30am by Mack » |
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DragonSlayer
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That pain is only 1/2 as bad as you think it is!!!
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Re: Anybody get twitches ?
« Reply #10 on: Feb 21st, 2008, 2:56am » |
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on Feb 21st, 2008, 2:29am, Mack wrote:Thanks everyone.. I thought maybe it could be related to CH. I guess it might be interesting to know what percentage of CH'ers have the same twitches vs. non-CH.
Still would change the fact that its annoying as hell My wife says I looking like I am trying to give myself a vulcan mind meld when I'm trying to calm the twitches.
Mack |
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LOL  That's a pretty standard position for this clusterhead during and shortly after a hit.
I was doing this during attacks - messaging several pressure points at the same time with one hand - when I saw it on Star Trek. I couldn't believe it!!! From that time on I connected with the Mr. Spock character. He looked like he understood a CH hit. Wrenching pain, sometimes screaming, followed by near exhaustion when it was over.
Chit maybe these CH's are caused because of the Vulcan blood in my system. 
Maybe there are other vulcans out there LOL!!
See below.
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| « Last Edit: Feb 21st, 2008, 3:16am by DragonSlayer » |
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Mr. Spock tried Vulcan mind meld during one of my K10 hits. You saw how he reacted on TV... then the movie "he's dead Jim"... But he came back....
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superhawk2300
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Re: Anybody get twitches ?
« Reply #11 on: Feb 22nd, 2008, 10:59am » |
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aye - on the eye twitches, just one side though
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Kirk
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Re: Anybody get twitches ?
« Reply #12 on: Feb 25th, 2008, 7:21pm » |
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on Feb 20th, 2008, 1:21am, outofcommission wrote:| I have in my right foot. usually from the begining until the end of the trip. |
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There I fixed it for ya brother. Hammer down 
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Redd
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Re: Anybody get twitches ?
« Reply #13 on: Feb 25th, 2008, 10:37pm » |
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(raises hand)
I'm an eye twitcher too.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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Ungweliante
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Re: Anybody get twitches ?
« Reply #14 on: Mar 30th, 2008, 4:40am » |
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Oh definitely.
Often it seems that during an attack, and sometimes more so when it's more severe, the muscles are contracting all over my body. Kinda like the somatic nervous system thinks that "Rosa is preoccupied with something else! Let's have a party, shall we?"
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LivingBarometer
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Re: Anybody get twitches ?
« Reply #15 on: Mar 30th, 2008, 10:09am » |
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Now that you've mentioned it I've got twitches too(left eye lid).
I can have these twitches anytime also when I'm not In a cluster episode(I'm episodic).
But I do also think it has something to do with stress.
For me CH and stress go hand in hand.
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CostaRicaKris
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Re: Anybody get twitches ?
« Reply #16 on: Mar 30th, 2008, 11:21am » |
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Add my name to the list. Just under the left eye, same side as my CH
Kris
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precipitate
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Re: Anybody get twitches ?
« Reply #17 on: Mar 30th, 2008, 12:35pm » |
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Yup, absolutely. In fact, I was just about to come on here and start a topic about eyelid twitches during an attack and then saw this thread.
Mine specifically is my lower right eyelid on the same side of an attack.
-steven
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Braindead
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Re: Anybody get twitches ?
« Reply #18 on: Mar 30th, 2008, 2:25pm » |
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Twitches, Red HOT ears, buzz in my skull. I call this one thing I get a Star Cluster, feels like a million stars on my scalp all red hot (during the day).
Then theres the Cluster at night. The fore mentioned is all daytime stuff.
Some one said- somewhere I read and it fits perfect.
It's a "Dirty Headache"
Which to me- cuz I am into electronics is like a Dirty Electrical Signal. These things are weird and do lots of weird stuff to different folks.
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Kitty1973
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Re: Anybody get twitches ?
« Reply #19 on: Mar 30th, 2008, 7:58pm » |
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I also get the eye twitches, right eyelid, same side as CH. I also noticed sounds in my head, kinda like little explosions, and then the pain really hits.
Kitty
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Sean_C
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Re: Anybody get twitches ?
« Reply #20 on: Mar 30th, 2008, 8:08pm » |
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on Mar 30th, 2008, 7:58pm, Kitty1973 wrote:I also noticed sounds in my head, kinda like little explosions, and then the pain really hits.
Kitty |
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Kitty how soon before your pain really hits hard??
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Kitty1973
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Re: Anybody get twitches ?
« Reply #21 on: Mar 30th, 2008, 8:10pm » |
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The pain hits about 3 or 4 minutes after.
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Kitty1973
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Re: Anybody get twitches ?
« Reply #23 on: Mar 30th, 2008, 8:19pm » |
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No he didn't Sean. What are they?
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Kitty1973
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Re: Anybody get twitches ?
« Reply #24 on: Mar 30th, 2008, 8:20pm » |
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Sean,
I just checked out the link you gave. I don't think that is it, cause I had a CT scan done that came out normal about 2 weeks ago. No bleeding, no tumors.
Kitty
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