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Topic: Acupunture ?? (Read 1665 times) |
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rannpas
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Acupunture ??
« on: Feb 13th, 2008, 12:15am » |
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My Neurologist told me last week that there was nothing else she could do for me and recommended I try some alternative treatments and suggested Acupuncture.
I am totting my Oxygen around, and can only take so much Imitrix, and it seems that they are not helping as much as they used to.
So, does anyone have info or advice on Acupuncture?
It has been a number of years since I was last online with CH message board.
Perry
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E-Double
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Re: Acupunture ??
« Reply #1 on: Feb 13th, 2008, 12:33am » |
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You have not mentioned and preventative medications just abortive treatments.
What has your doctor tried with you?
as far as accupuncture goes; to my knowledge it has been deemed pretty worthless as a treatment here.
Whatever it takes.
good luck and pf wishes
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I can't believe that I have to bang my
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Annette
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Re: Acupunture ??
« Reply #2 on: Feb 13th, 2008, 2:38am » |
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I am a doctor with a post grad diploma in acupuncture. My husband has CH and I can tell you I wouldnt waste my time and his time giving him acupuncture.
You are most welcome to try and good luck if it works.
A couple of people came here briefly claiming great success with acupuncture. However, when I questioned them closely how it worked and invited the practitioners to come to the board to share their success stories, the people never came back.
If you do try, please be kind and let us know how it works.
Take care and painfree wishes to you.
PS: There are tons of meds and even alternative meds that have proven to work better for CH from anticonvulsants to antipsychotics .. , from melatonin to magnesium to even RC seeds or shrooms. Have you tried them all ?
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chewy
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Useless for CH.
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BarbaraD
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Re: Acupunture ??
« Reply #4 on: Feb 13th, 2008, 7:06am » |
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Caused hits in me -- every time...
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rannpas
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Re: Acupunture ??
« Reply #5 on: Feb 13th, 2008, 8:31am » |
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Thanks guys - I had tried it long long ago, but briefly and found it did not help. But I have been trying the meds for so long and it seems that after a while it is almost as if my body becomes used to them and it does little.
Right now I am on Oxygen and Imitrex injections. But not only is the imitrix darn expensive at 100$ for 2 vials, it seems not to be working as effective.
I have been on different blockers, preventatives, and tried a variety of abortive meds. We moved about a year ago and changed pharmacist. So I go a printout of my medication history and there were 4 pages of different meds I have been on and tried over I think the last 6 -10 years. And most where for the CH or Migraines. So far a combination of O2, Imitrix, and the wall.
Along with the CH, I have Horner Syndrom, which I am told is common with CH suffers. But over the last number of years I have been having more difficulty with my whole side when I have a CH. That is one of the reasons I went back to the neuro.
Anyway, I am down to my last o2 canister and need to go get more.
Again, thanks for the info, and I will look around and see what I find here with the Acupuncture - and let you know if I do try and what the results are.
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Ray
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Re: Acupunture ??
« Reply #6 on: Feb 13th, 2008, 8:35am » |
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Hello:
I went about a dozen times for treatments. Although it was relaxing, it didn't do a darned thing for my CH.
Perhaps it is time to find a new Neurologist who is a headache specialist?
I am coming off of a 3 month break where I only had occasional CH, by receiving a DHE infusion, perhaps that is something to speak with the doctor about.
With best wishes,
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
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ronan76
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Re: Acupunture ??
« Reply #7 on: Feb 13th, 2008, 10:07am » |
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Hi,
I am just out of an episode.. and i can tell you that i will most definitely be using acupuncture sessions on a regular basis for the future. IMO and case, stress has contributed to CH .. that is what i truly believe after analysing the events leading to my only two attacks....
I also believe that contrary to some reports in this website that i have the ability to change certain aspects of my life so that the beast will not return.. or at least i have the power to extend the length of time its stays away.
I used to go to a Doctor/physio/osteopath/chinese medicine - (yes he was very qualified..) Using a combination of manipulation and acupuncture he fixed my back for me.. I had 2 prolapsed discs and thought i would need surgery, i must have visited 5 different chiropath(ethics) - but they didn't fix it...
anyway he is a highly respected doctor in ireland... he raved about acupuncture..saying that there was so little we knew about it.. but its powers of healing were incredible.. and i believe him... everything that has come from it has been good..
I dont know for sure if it will help keep CH away but i do think it will help.. whether its extending the periods between attacks or keeping it away completely..
acupuncure helps the body and heal itself.. and therefore am confident it can only be good... I will certainly be giving it a go !
My 2 cents..
Kent Brockman
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monty
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Re: Acupunture ??
« Reply #9 on: Feb 13th, 2008, 3:03pm » |
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The largest, best controlled study of acupuncture on migraine did find it helps, although 'sham' and real acupuncture are both equally good. Probably something related to poking holes in the skin and a general effect on the body, not so much related to meridians.
This study (http://www.ncbi.nlm.nih.gov/pubmed/18209515) found that when it worked for migraine, there was a reduction in sympathetic nerve activity. Since there are so many reports that acupuncture doesn't clearly help with clusters, you might want to look at other ways of reducing sympathetic nerve activity (taurine, meditation, etc).
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The outer boundary of what we currently believe is feasible is far short of what we actually must do.
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Stinger
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Re: Acupunture ??
« Reply #10 on: Feb 13th, 2008, 3:14pm » |
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I tried accupuncture in Korea in 1998 and I thought it did help my clusters, however, looking back on it, I was very near the end of my cycle anyway. Go figure.
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Guiseppi
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Re: Acupunture ??
« Reply #11 on: Feb 13th, 2008, 4:59pm » |
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It's one of the most frustrating aspects of this condition for me. You're never positive if it was the medication change, the life style change, or the beast was just ready to morph again! Certainly keeps a person guessing!
Guiseppi
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thebbz
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Re: Acupunture ??
« Reply #12 on: Feb 13th, 2008, 10:32pm » |
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Here's some alternatives that may help and not just bleed your wallet.
clusterbusters.com
My 2 cents..
Kent Brockman
Is that the same Kent Brockman as seen on the Simpsons?
oh well
thebb
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Kirk
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Re: Acupunture ??
« Reply #13 on: Feb 14th, 2008, 12:40am » |
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Acupuncture is a complete waste of time. Atleast where it concerns CH. IMHO
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wink
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Re: Acupunture ??
« Reply #14 on: Feb 16th, 2008, 2:56am » |
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Acupuncture had no effect on my clusters.
While we're on the topic of alternative medicines, what's the board's collective wisdom on chiropracture? I met my wife's cousin's fiancee's brother recently and he practices chiropracy. He insisted that I see a chiropracture, and I heard him out since a) I don't know how to weasel out of conversations like that, and b) he is almost a kinda relative. Anyways...I haven't followed up on anything, but I figured I'd ask you guys: is chiropracture and good for clusters?
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Rolomatic
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Re: Acupunture ??
« Reply #15 on: Feb 16th, 2008, 3:29am » |
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I just took a shot of DHE so I have had my poke for the night with a 1” needle in my thigh. Dam my leg hurts!
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O2 is the only thing that can beat down the Beast when it visits me!
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Kirk
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Re: Acupunture ??
« Reply #16 on: Feb 16th, 2008, 9:34pm » |
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Chiropractic never did a thing for my CH  YMMV
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AussieBrian
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Re: Acupunture ??
« Reply #17 on: Feb 16th, 2008, 10:57pm » |
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My auntie found that she could no longer afford to both smoke and gamble so got accupunture to get rid of the dreaded tobacco.
Within a week she was back puffing like a chimbley but it was months before any of us twigged that she'd been nowhere near a horse race nor a lottery since. Not even Bingo.
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Annette
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Re: Acupunture ??
« Reply #18 on: Feb 16th, 2008, 11:18pm » |
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on Feb 16th, 2008, 10:57pm, AussieBrian wrote:
Within a week she was back puffing like a chimbley but it was months before any of us twigged that she'd been nowhere near a horse race nor a lottery since. Not even Bingo. |
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Indeed, I will bet that all the money she normally spent on gambling went into acupuncture instead.
But then look at it this way, if you pay good money for something that may or may not work, isnt that taking a gamble by nature ? 
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AussieBrian
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Re: Acupunture ??
« Reply #19 on: Feb 16th, 2008, 11:42pm » |
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on Feb 16th, 2008, 11:18pm, Annette wrote:| ...isnt that taking a gamble by nature ? |
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And it's not true that at us Aussies would bet on two flies on a wall.
Bet on one of 'em, though.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Annette
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Re: Acupunture ??
« Reply #20 on: Feb 17th, 2008, 12:28am » |
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on Feb 16th, 2008, 11:42pm, AussieBrian wrote:
And it's not true that at us Aussies would bet on two flies on a wall.
Bet on one of 'em, though. |
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Oh yes, you have to bet on the bigger one ! 
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AussieBrian
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Re: Acupunture ??
« Reply #21 on: Feb 17th, 2008, 2:00am » |
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on Feb 17th, 2008, 12:28am, Annette wrote:| Oh yes, you have to bet on the bigger one ! |
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I admit that my current abode, the Shelter for Homeless, Itinerant Tipplers (S.H.I.T.) is lacking a few of the basic amenities but I was still able to receive an important message from my book-maker who, as we speak, is on holiday on the Cote' de Azure.
He's giving evens on the smaller fly because it has a bruised wing and will go faster to get to the accupuncturist sooner.
I still say that any hope is better than no hope at all and, while it does no harm, no-one gets hurt. Fair dinkum, I'd put red-back spiders under my tongue if I thought it was part of the cure.
Now, there's an idea.
All alternatives must always be considered and if accupunture works for just one (witness Ronan76) then it's another shot in the locker. Another weapon in the armoury.
The strangest part of the whole thing is that I'm defending accupuncture against a qualified accupuncturist.
Gotta talk to my book-maker about this.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Annette
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Re: Acupunture ??
« Reply #22 on: Feb 17th, 2008, 5:25am » |
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Gosh Brian, you just gave me a brainstorm.
Maybe I should change my practice on acupuncture. Instead of telling patients not to waste their time and money on something that wont work, I will encourage them and give them some hope.
It seems there are plenty of people out there who like to gamble, even if the hope ... I mean ... the odds are really low.
Then maybe I will be able to holiday in Cote D'Azure before long.
Should go away and think about this seriously.
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Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
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seasonalboomer
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Re: Acupunture ??
« Reply #23 on: Feb 17th, 2008, 7:15am » |
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on Feb 17th, 2008, 2:00am, AussieBrian wrote:
All alternatives must always be considered and if accupunture works for just one (witness Ronan76) then it's another shot in the locker. Another weapon in the armoury.
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I read that post twice and I don't think he actually says it worked for him, but instead that he thinks it is helping him with his stress issues, which he HOPES will help him when his next cycle comes around.
Scott
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AussieBrian
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Re: Acupunture ??
« Reply #24 on: Feb 17th, 2008, 8:24am » |
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on Feb 17th, 2008, 7:15am, seasonalboomer wrote:
I read that post twice and I don't think he actually says it worked for him, but instead that he thinks it is helping him with his stress issues, which he HOPES will help him when his next cycle comes around.
Scott
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Fair comment, Scott, and I stand corrected.
I also stand on me digs that anything helps us can't be all bad. If that includes accupuncture, stress management or strangling cats at midnight, I'm all in favour while it works and does no harm.
I really think the stress factor can be worse than the curse.
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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