Author |
Topic: sometimes I feel like I don't belong here (Read 1346 times) |
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender: 
Posts: 1932
|
 |
sometimes I feel like I don't belong here
« on: Nov 20th, 2007, 9:57am » |
 Quote  Modify
|
because of my wierd diagnosis, but I was assured by people who mean a lot to me that I can be of assistance to other people who have ch and/or sunct, ph, etc., and that I have a home here.
Some people have said I am an idiot and should dump my neuro because I do not have O2. However, this neuro is thoughtful and does research and has helped get several types of headaches under control, including my ch w/320 mg verapamil daily, and continues to help me sort out the wierd stuff, short 2 to 20 minute hits.
The latest contributing factor to my wierdness is the occipital nerve. It can cause short electrical type headaches in the back of head, side of head and behind the eye orgit, that seem like mini ch hits. They can switch sides, and I was getting them on both sides, in addition to the normal ch on the right.
I love my neuro for finding this.
It is true that O2 is the best option for ch, that I have heard of so far. The reason that I have not insisted my neuro give me a script is that he has already helped me with the ch and I use maxalt melt for the breakthrough hits, and have only had one level 9 hit in two months.
So, anyway, I want to say thank you to DJ, Helen, Gator, Nani, Jonny, DonnaD, Annette, departed Unsolved, Guiseppi, Kathy, Steph, MJ, Ghost, Mik, Kirk, Chris, Carol, SophiaK, Driving Blind, Lizzie, Jenn, KJ, Ray, Laurie, Margo, Margie, Jacki, Alchemy, BMonee, Tess, Barry_Sword, Drew, Tony, Chuck, and everyone who has made me feel like I have a home here and am of value. If I didn't mention your name, it is just short term memory loss, lol, and I love you.
Thank you.
Charlotte
|
|
 IP Logged |
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender: 
Posts: 6515
|
|
Re: sometimes I feel like I don't belong here
« Reply #1 on: Nov 20th, 2007, 10:02am » |
Quote Modify
|
Uh, Charlotte, this isn't like a Magnum Opus, is it? You are sticking around, right?
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
Guiseppi
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2703
|
|
Re: sometimes I feel like I don't belong here
« Reply #2 on: Nov 20th, 2007, 10:06am » |
Quote Modify
|
She WILL stick around or she will be hunted down like a rabid dog!!!!  You provide far too much support to consider an exit stage left. Guiseppi's 2 cents.....
Guiseppi
|
|
IP Logged |
Why are all sensors, seeking intelligent life, pointed AWAY from earth?
|
|
|
kcopelin
CH.com Alumnus
New Board Hall of Famer
good grief
Gender:
Posts: 536
|
|
Re: sometimes I feel like I don't belong here
« Reply #3 on: Nov 20th, 2007, 11:00am » |
Quote Modify
|
Charlotte,
you are very treasured here, my friend.  I am so happy that you have a doc who will listen to you and appears to have taken some courses in diagnosis. Personally, I'd rather you have zero headaches, but I'm glad to hear that you guys are chipping away at it.
As for O2-took me a major battle to get it Rx'ed- worked great, especially with the cluster masx, and now it no longer helps me. sure am gonna keep the script. Sometimes things that didn't work, or stopped working, will be effective later. That's why its so easy to feel like a chemical test site. 
PFDAN,
kathy
|
|
IP Logged |
Words count, chose carefully.
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: sometimes I feel like I don't belong here
« Reply #4 on: Nov 20th, 2007, 11:08am » |
Quote Modify
|
"Sometimes I feel like I don't belong here"
...and then you come to your senses, right?
Miss Charlotte, you are one very special lady, and I can't think of ANY reason why you don't belong here.
Thank YOU for being here, and helping so many with your kind words and encouragement.
Love you LOTS, nani 
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
Dape
CH.com Alumnus
New Board Old Timer
WHY BOTHER !!!!!!!!!!!!!!! !!
Gender:
Posts: 494
|
|
Re: sometimes I feel like I don't belong here
« Reply #5 on: Nov 20th, 2007, 11:12am » |
Quote Modify
|
Char,
I could only guess at the amount of hours we have spent in chat in the 2 years that i have been here, but i do know that if it hadn't been you in chat i wouldn't have even gone in and got to know a lot of wonderful people.
Just chatting with you always make me feel better whether we are discussing your latest painting or just chatting about nothing it makes no difference and i hope that i get the pleasure of meeting you one day.
Dape
|
|
IP Logged |
D.I.L.L.I.G.A.F ???
Well i used to 
|
|
|
sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
Gender:
Posts: 10429
|
|
Re: sometimes I feel like I don't belong here
« Reply #6 on: Nov 20th, 2007, 11:17am » |
Quote Modify
|
Charlotte... 
PF days to you,
Sanna
|
|
IP Logged |
CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
|
|
|
aloneuk
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 776
|
|
Re: sometimes I feel like I don't belong here
« Reply #7 on: Nov 20th, 2007, 11:46am » |
Quote Modify
|
char
Your a big part of this family, and we all love you !
smile sweetie
|
|
IP Logged |
If you dance with the devil the devil don't change,
the devil changes you !
|
|
|
tessistired
New Board Veteran
I love YaBB 1G - SP1!
 
Gender:
Posts: 117
|
|
Re: sometimes I feel like I don't belong here
« Reply #8 on: Nov 20th, 2007, 11:53am » |
Quote Modify
|
All I can say is DITTO to everyone else cause they said it perfect!
And does your neuro make house calls?......you know I am in search of a new one! I will pay mileage!!! 
|
|
IP Logged |
|
|
|
Bob_Johnson
New Board Hall of Famer
Gender:
Posts: 1796
|
|
Re: sometimes I feel like I don't belong here
« Reply #9 on: Nov 20th, 2007, 12:12pm » |
Quote Modify
|
With a doc like yours !!??? We should all be so blessed....
But to the meds: there is no one best med! The best one is the one which works for US and, we know from our experience and the medical literature, nothing is 100% BEST or even 100% EFFECTIVE for any single person.
And (the old curse) since effective ones sometimes stop working, we are always in the position of having to start another search, should this unhappy outcome arrive.
My main point: survival involves an artful blend of appreciation for what we do have plus flexibility in being open to something new.
|
|
IP Logged |
Bob Johnson
|
|
|
Grandma_Sweet_Boy
CH.com Alumnus
New Board Hall of Famer
What Goes Around Comes Around!
Gender:
Posts: 3267
|
|
Re: sometimes I feel like I don't belong here
« Reply #10 on: Nov 20th, 2007, 5:20pm » |
Quote Modify
|
Quote:"Sometimes I feel like I don't belong here"
|
|
And then you wake up and realize that it was just a dream sequence (like who shot JR! )
But of course you belong here - wherever on earth would you find people like this bunch! 
Hugs
Carol
|
|
IP Logged |
|
|
|
seasonalboomer
CH.com Alumnus
New Board Hall of Famer
If I think hard enough maybe it'll go away.....
Gender:
Posts: 2248
|
|
Re: sometimes I feel like I don't belong here
« Reply #11 on: Nov 20th, 2007, 5:36pm » |
Quote Modify
|
me neither, but everytime I signal for the driver to let me off, he just keeps driving past my stop......
so sit back and enjoy the ride.
scott
|
|
IP Logged |
-----------------------------------------------------
seasonal boomer
-----------------------------------------------------
|
|
|
phil_h
New Board Old Timer
one day at a time , one headache at a time.....
Gender:
Posts: 447
|
|
Re: sometimes I feel like I don't belong here
« Reply #12 on: Nov 20th, 2007, 6:07pm » |
Quote Modify
|
Charlotte , You are always a great addition and support to all on this board . You know it . You're family and belong here . You artists are sometimes a little too sensitive . That's part of your charm and beauty . You have been kind and encouraging to me and so many others . Stay put , you have an important roll in the family . Phil h
|
|
IP Logged |
Angels are among us ........beasts beware !!!!!!
|
|
|
cynjeep89
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1228
|
|
Re: sometimes I feel like I don't belong here
« Reply #13 on: Nov 20th, 2007, 8:05pm » |
Quote Modify
|
Charlotte,
You know how much many, many people here love you, me included.
You had better hang around or we will hunt you down.
Now if the threat of a bunch of CHs running around looking for you isn't enough to scare you into sticking around, I don't know what will.
Love ya, sweetie
|
|
IP Logged |
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1932
|
|
Re: sometimes I feel like I don't belong here
« Reply #14 on: Nov 20th, 2007, 8:14pm » |
Quote Modify
|
Thank you.
Charlotte
|
|
IP Logged |
|
|
|
barry_sword
CH.com Alumnus
New Board Hall of Famer
Mountain Biking Keeps Me Sane
Gender:
Posts: 1988
|
|
Re: sometimes I feel like I don't belong here
« Reply #15 on: Nov 20th, 2007, 8:27pm » |
Quote Modify
|
Charlotte, you mean more to us than you know. I read your posts and replies and respect you very much.
Barry
|
|
IP Logged |
QUIT SMOKING SEPT. 03 2005,
http://barrysword.blogspot.com
|
|
|
ski2k
New Board Old Timer
Gender:
Posts: 458
|
|
Re: sometimes I feel like I don't belong here
« Reply #16 on: Nov 20th, 2007, 10:19pm » |
Quote Modify
|
You better not be going anywhere!! I just started getting to know you! Of course you belong!
Thanks for being here!
Adam
|
|
IP Logged |
Here's where I got my RC (Rivea Corymbosa)seeds: I am Shaman
https://www.iamshaman.net/affiliatewiz/aw.aspx?A=1022&Task=Click
|
|
|
Garys_Girl
New Board Veteran
Kill the Beast!
Gender:
Posts: 240
|
|
Re: sometimes I feel like I don't belong here
« Reply #17 on: Nov 21st, 2007, 1:03am » |
Quote Modify
|
Charlotte - I don't know what happened to make you feel that way, but you've been so helpful to so many. Certainly to me and Gary.
Every time I post any questions, I get inundated with 02 PMs and often posts. Sometimes, the people for whom it works forget (or don't know) that in studies and on the survey here, it's only effective for 70-some percent (72?) of people who use it. Some have tried using it - even correctly, and it doesn't help. So some may have made you feel like an idiot - but the beast is SO individual, and some see so black and white - but there are so many shades of grey!
What matters is that YOU are happy with your Neuro!
Laurie
|
| « Last Edit: Nov 21st, 2007, 1:10am by Garys_Girl » |
IP Logged |
____________________________________
Laurie
"It's comin' like a freight train - can't you hear it?" - Gary
|
|
|
Annette
CH.com Alumnus
New Board Hall of Famer
Veni Vidi Velcro
Gender:
Posts: 1874
|
|
Re: sometimes I feel like I don't belong here
« Reply #18 on: Nov 21st, 2007, 3:17am » |
Quote Modify
|
My goodness Charlotte, if you dont feel like you belong here then I am going to have a heart attack because I certainly feel I belong much less than you do ! Heck, I dont even have a headache to boast, I am just a supporter.
You have no idea how much you mean to me. All those PMs, all the time we spent in chat, all the wise motherly advices you have given me .... Your gentleness, your genuine concern, your love, your care ... Whenever I talk to you I feel like I am talking to a mother, you have always made me feel so much better.
You have soothed my pain with your loving, caring words and you have calmed my soul with your beautiful paintings.
You better not abandon me here because I dont want to become orphaned.
HUGS
PS: Who dared call you an idiot? Let me at them and I will give them a piece of my mind !
|
| « Last Edit: Nov 21st, 2007, 3:28am by Annette » |
IP Logged |
Mediocrity knows nothing higher than itself; but talent instantly recognizes genius.
Arthur Conan Doyle
|
|
|
LeLimey
CH.com Alumnus
New Board Hall of Famer
OUCH-US - Less "ME" and more "WE"
Gender:
Posts: 11720
|
|
Re: sometimes I feel like I don't belong here
« Reply #19 on: Nov 21st, 2007, 8:33am » |
Quote Modify
|
I don't think there are many of us who haven't wished we didn't belong here Sweetness - I wish you didn't either BUT - I'm very glad you are here.
You do so much to brighten days and help show how pleasant life can be. Your paintings give me a simple pleasure thats no less important than anything else.
You've made me smile more times than I could begin to count and you've made me feel like a friend - and that I have a really good friend too.
I'm truly looking forward to meeting you one day. I have no doubt that will happen.
You have borne your difficulty to diagnose with a dignity and stoicism many of us would do well to emulate, you bring grace and beauty and a lot of smiles.
You are one of the threads of the tapestry of CH.com and every single thread is needed to make our fabric. Don't you even THINK of fraying from our cloth y'hear?!
lots of love
Helen xxx
|
|
IP Logged |
The arsehole I'm divorcing needs to get a life and stop stalking mine
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1932
|
|
Re: sometimes I feel like I don't belong here
« Reply #20 on: Nov 21st, 2007, 3:18pm » |
Quote Modify
|
No, I am not leaving. I live here.
It seems like whenever my pain tolerance changes (better or worse), my emotions go a little out of wack and I do get overly emotional, and I just felt a need to explain.
Charlotte
|
|
IP Logged |
|
|
|
Ray
CH.com Alumnus
New Board Hall of Famer
Ray and Shade
Gender:
Posts: 1118
|
|
Re: sometimes I feel like I don't belong here
« Reply #21 on: Nov 21st, 2007, 4:13pm » |
Quote Modify
|
I think this sums it up:
Charlotte, we love you!
Ray
|
|
IP Logged |
You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
|
|
|
Garys_Girl
New Board Veteran
Kill the Beast!
Gender:
Posts: 240
|
|
Re: sometimes I feel like I don't belong here
« Reply #22 on: Nov 21st, 2007, 9:35pm » |
Quote Modify
|
on Nov 21st, 2007, 3:18pm, Charlotte wrote:No, I am not leaving. I live here.
It seems like whenever my pain tolerance changes (better or worse), my emotions go a little out of wack and I do get overly emotional, and I just felt a need to explain.
Charlotte |
|
As a supporter, I am SO familiar with these emotional swings - Gary experiences the same thing.
I'm sending more hugs!
Laurie
|
|
IP Logged |
____________________________________
Laurie
"It's comin' like a freight train - can't you hear it?" - Gary
|
|
|
KJ
CH.com Alumnus
New Board Old Timer
Gender:
Posts: 288
|
|
Re: sometimes I feel like I don't belong here
« Reply #23 on: Nov 22nd, 2007, 12:29am » |
Quote Modify
|
I don't think I could live without the grey ghost here. My best chat pal, and a great friend. Feed your head (name the artist ) your own way.
Just never leave us.
KJ
|
|
IP Logged |
|
|
|
Brew
CH.com Alumnus
New Board Hall of Famer
Low Four!
Gender:
Posts: 6515
|
|
Re: sometimes I feel like I don't belong here
« Reply #24 on: Nov 22nd, 2007, 11:09am » |
Quote Modify
|
on Nov 22nd, 2007, 12:29am, KJ wrote:| Feed your head (name the artist ) your own way. |
|
Jefferson Airplane.
|
|
IP Logged |
Always remember that you're unique, just like everyone else.
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss