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kcopelin
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good grief
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CH and dental work
« on: Nov 7th, 2007, 7:52pm » |
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So, I have always been a wimp about going to the dentist. But I have totally avoided them since going chronic almost three years ago. Really afraid that I'll get hit while in the chair...laying down is never a good idea for me. Any thoughts on this? Nitrous oxide? I have an appointment on Tuesday.
Would appreciate any input...
thanks
PFDAN y'all
kathy
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black
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hi kathy.
dont be a wimp.go there sit in the chair and then come here and show us ur white teeth  .u ll be fine
(u can always tell him before u start whats ur fear and warn him that u might have to stop for a while if u feel it coming)take an imigran with u or any abortive u think it helps u.but i really believe u will be fine.i dont think ch has anything to do with anxiety or stress causing it.
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Chillrmn1
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hi kathy,
If you're going to need a local anesthetic -
Xylocaine with EPI triggered attacks for me. I had no problems with Citanest (prilocaine) without EPI.
I haven't used Nitrous Oxide but I think I remember others saying it triggered them.
Hope this helps.
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Charlotte
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Re: CH and dental work
« Reply #3 on: Nov 8th, 2007, 8:29am » |
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I found that I have some bad hits after dental appointments. The hits seem more related to the drive than the dental visit, as I come across the Altamont Pass, in between Tracy and Livermore, and the trigger seems directly related to the barrometric pressure during the drive.
I hope your appointment went well, Kathy. You are a cute munchkin and you want those choppers working.
love, Charlotte
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kcopelin
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good grief
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Re: CH and dental work
« Reply #4 on: Nov 8th, 2007, 5:37pm » |
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Got a survey from the dentist today-to be filled out and brought into the visit. This is fun-not. I am less concerned with the novacaine as I am with laying down-its such a trigger for me. Thanks so much for your answers....
One of the questions is "Do you like your smile?" Yes, except the droppiness caused by Horners syndrome. I like my sense of humor better.
If nothing else, the dentist will be educated about CH. Am taking a pamplet, courtesy of Linda, and my cluster masx and O2 set-up in. Even though its not working for me-it does get people's attention.
PFDAN y'all,
kathy
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thebbz
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Ow,Ow,Ow
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Re: CH and dental work
« Reply #5 on: Nov 8th, 2007, 8:38pm » |
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Monster IV with lots of nitrous..Wwwwhhheeheeeeeheeeheee.
Good luck Kathy. They do have 02 in-house.
thebb
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BarbaraD
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Re: CH and dental work
« Reply #6 on: Nov 9th, 2007, 7:01am » |
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One of the side effects of the gas is "headaches" -- I've always avoided it. Needles are safer....
But I do "warn" the nice dentist that I have CH and if I tell him that we are having an attack that he'd best get me some O2 and get the hell out of my way for a little while.
Hugs BD
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What don't kill ya, Makes ya stonger!
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chewy
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Quote:But I do "warn" the nice dentist that I have CH and if I tell him that we are having an attack that he'd best get me some O2 and get the hell out of my way for a little while.
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There you have it. Managing your life around CH.
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sandie99
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Re: CH and dental work
« Reply #8 on: Nov 9th, 2007, 10:28am » |
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Kathy,
I'm supposed to see my dentist this fall, but I keep on delaying it, because I'm not that fond of dentists ever since the beast returned after one dentist appointment... 
I mean, who would want to pay to get back in cycle?! not me... if I can avoid it.
Sanna
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| « Last Edit: Nov 9th, 2007, 10:29am by sandie99 » |
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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kcopelin
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good grief
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Re: CH and dental work
« Reply #9 on: Nov 15th, 2007, 12:09am » |
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Sanna, you need to take Linda H. along for support. I am happy to report that:
1. I showed up for the appointment because Linda and her Caliente showed up at my home.
2. Linda had the foresight to bring a cold pack (a bazillion thanks and hugs, my friend)
3. Only got hit a little-cold pack & pacing helped.
4. Intrestingly enough, the dental hygienist also has "bad" headaches.  Linda fortunately did not need stiches for her tongue.
5. The dentist seemed to know quite a bit about clusters (will take a couple of brochures next time) and he does have O2 that comes right of the wall (if that don't beat all)
6. My teeth are all nice and clean.
PFDAN y'all,
kathy
Oh, and my next appointment isn't until 2008
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| « Last Edit: Nov 15th, 2007, 12:09am by kcopelin » |
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Charlotte
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Re: CH and dental work
« Reply #10 on: Nov 15th, 2007, 12:16am » |
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yay. you made it through. and thanks, Linda.
Charlotte
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sandie99
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Re: CH and dental work
« Reply #11 on: Nov 15th, 2007, 3:14am » |
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Kathy, good for you!  That was so great of Linda, wow.
My last dentist was a tiny man who has this silent voice -I can't tell what he's saying half of the time. It's annoying when he asks something, but nicely narcotic when it's time to pull wisdom teeth out. 
He actually knows about my ch and back at my med days he even wrote all of them to my file just in case.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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black
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i am happy for u Kathy.thats a smile.another win against the demon.u made him look like a puppy.
pf wishes
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E-Double
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Re: CH and dental work
« Reply #13 on: Nov 15th, 2007, 8:15am » |
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on Nov 8th, 2007, 6:02am, Chillrmn1 wrote:hi kathy,
If you're going to need a local anesthetic -
Xylocaine with EPI triggered attacks for me. I had no problems with Citanest (prilocaine) without EPI.
I haven't used Nitrous Oxide but I think I remember others saying it triggered them.
Hope this helps. |
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heed the warning 
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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stgeorge1
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Re: CH and dental work
« Reply #14 on: Nov 21st, 2007, 3:02am » |
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This sort of freaked me out. I just started up with monster CH's after 3 years in remission. I have ITP and after taking LOTs of prednizone and unable to have dental work due to the excessive bleeding related to ITP, my teeth are litterally falling out. Now I need extensive work but and have an eval next week but after reading this i'm going to make sure that the dentist knows I'm having CH's.
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Linda_Howell
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Re: CH and dental work
« Reply #15 on: Nov 21st, 2007, 3:28pm » |
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Quote:| Sanna, you need to take Linda H. along for support. |
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Sanna, I'm afraid you're out of luck on this one. Flying to Finland is out of the question. 
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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scamrtst
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Re: CH and dental work
« Reply #16 on: Dec 5th, 2007, 4:08pm » |
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Hi Cathy,
Yesterday, I acually had 2 fillings replaced on the Cluster Side of my mouth. 11AM is normally a CH time for me but I found that being on novacaine really diminished the severity and instead of a five it was only a shadow.
Sean
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scamrtst
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Re: CH and dental work
« Reply #17 on: Dec 5th, 2007, 4:10pm » |
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Hi Cathy,
Yesterday, I acually had 2 fillings replaced on the Cluster Side of my mouth. 11AM is normally a CH time for me but I found that being on novacaine really diminished the severity and instead of a five it was only a shadow.
Sean
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: CH and dental work
« Reply #18 on: Dec 6th, 2007, 4:33am » |
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on Nov 21st, 2007, 3:28pm, Linda_Howell wrote:
Sanna, I'm afraid you're out of luck on this one. Flying to Finland is out of the question. |
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No worries, I'll understand that, Linda.
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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