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Topic: Paroxsyml Hemicrania vs cluster (Read 740 times) |
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birdman
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Paroxsyml Hemicrania vs cluster
« on: Oct 26th, 2007, 11:42am » |
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I probably spelled this incorrectly but is there a way to decide which condition you have. I have had cluster ha's for years but my neuro thinks I may also suffer from PH. Currently, the pain I have is not as severe as CH but is still painful. O2 has not worked at all and the only thing that does help is redbull. Also, have a lot more pain in the back of my head than usual and no sweats. I know they prescribe indomethacin for PH but is that the only way to find out? Any info would be appreciated!
Tim
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Linda_Howell
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Re: Paroxsyml Hemicrania vs cluster
« Reply #2 on: Oct 26th, 2007, 1:40pm » |
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Tim, I've never had PH, but have talked to people who do have it. This is just my own opinion based on that.
If I had the unilateral pain ,many many times per day, some of which lasted only a few mins. I would seriously consider it as being PH and try the Indo. It is VERY effective for PH
Linda
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Charlotte
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Re: Paroxsyml Hemicrania vs cluster
« Reply #3 on: Oct 26th, 2007, 1:44pm » |
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This is one of the headaches my neuro considered, and I am taking Indomethacin, along with verapamil.
It takes at least 50 mg Indomethacin to make a difference, and it only affects the trigiminal portion of hte pain, never the vascular or temple pain.
The verap seems to help all areas, and maxalt melt seems to help the temporal pain, and, in fact, is the only thing so far to help with the temporal pain.
I get hit at least 10 times a day, but right now it is very bearable as opposed to 12 to 18 months ago.
Good luck.
Charlotte
ps I also have a SUNCT type thing which nothing helps, and migraines, which liquid kudzu helps, along with helpint the verapamil work better for the ch.
I also use liquid wormwood, which i am trying to determine if it helps and what it helps, and I also have vicodin for when I need a chemical vacation. (Don't worry, Linda. I have only used 50 in 10 months.)
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| « Last Edit: Oct 26th, 2007, 1:50pm by Charlotte » |
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Linda_Howell
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Re: Paroxsyml Hemicrania vs cluster
« Reply #4 on: Oct 26th, 2007, 3:44pm » |
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Quote:| (Don't worry, Linda. I have only used 50 in 10 months.) |
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LOL Charlotte. 99 out of a 100 experienced clusterheads agree with me in my stance on narcotics for CH. I'm just the loudest. 
Linda
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Charlotte
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Re: Paroxsyml Hemicrania vs cluster
« Reply #5 on: Oct 26th, 2007, 3:52pm » |
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yes, Ma'am.
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HeadhurtinMama
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Re: Paroxsyml Hemicrania vs cluster
« Reply #6 on: Oct 26th, 2007, 4:36pm » |
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I have also done the indo test. My CH looks more like CPH, due to the length and frequency. I have gone a few months before at 15 mins on and 15 mins off. Although I do have some that last for an hour or more. But, on a dose high enough to put a horse in a coma, the indo did nothing for me, other than make me fall asleep in the ladies room at work.  So, they put me on celebrex to try a different nsaid. That didn't work. So, a few neuros later and I have trex, O2, verapamil and carbatrol which have helped dramatically. I digress, yes, the only true clinical test is the indo test.
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birdman
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Re: Paroxsyml Hemicrania vs cluster
« Reply #7 on: Oct 26th, 2007, 8:04pm » |
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Well after an appointment, my neuro does not think it is Ph but CH that I affected by using the RC seeds. As I cannot take verapamil due to arrythmia, I am now on pred taper and starting depakote. I have my doubts on it not being PH but we will see.
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Jobette
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Re: Paroxsyml Hemicrania vs cluster
« Reply #8 on: Oct 27th, 2007, 11:06am » |
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I thought that PH was mostly a woman thing because it is unheard of in the science world for women to have CH
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birdman
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Re: Paroxsyml Hemicrania vs cluster
« Reply #9 on: Oct 27th, 2007, 11:31am » |
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I don't think it is unheard of for men to have PH, just more common in women. Also, there are definetly women who get clusters. It is just more prominent in men.
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Jobette
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Re: Paroxsyml Hemicrania vs cluster
« Reply #10 on: Oct 27th, 2007, 11:37am » |
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Believe me when I say that I know that women get clusters. But before I was diagnosed with CH he said I had PH because I was a woman  and CH was a man thing.
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birdman
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Re: Paroxsyml Hemicrania vs cluster
« Reply #11 on: Oct 27th, 2007, 8:19pm » |
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Got ya! No offense intended.
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cat1955
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Re: Paroxsyml Hemicrania vs cluster
« Reply #12 on: Oct 28th, 2007, 1:27pm » |
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I think that some more research needs to be done on the female to male ratio of CH sufferers. I notice a lot of women on here and believe it has to higher than 1/6. Anyone have any more current statistics?
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SteveY
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Re: Paroxsyml Hemicrania vs cluster
« Reply #13 on: Nov 1st, 2007, 11:09am » |
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Male Preponderance of Cluster Headache is Progressively Decreasing Over the Years
Headache: The Journal of Head and Face Pain
That extract above has it at 3.5 to 1.
I was in London last week at Queen Square, they are talking probably nearer 2 to 1
It will probably finish up 1 to 1 but of course men whine about pain more than women don't they? 
Steve
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Bob_Johnson
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Sex ratio in CH
« Reply #14 on: Nov 1st, 2007, 2:23pm » |
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Cephalalgia. 2002 Mar;22(2):94-100.
Age at onset and sex ratio in cluster headache: observations over three decades.
Ekbom K, Svensson DA, Träff H, Waldenlind E.
Department of Neurology at the Karolinska Institute, Huddinge University Hospital, Huddinge, Sweden.
Five hundred and fifty-four patients with episodic cluster headache (ECH) and chronic cluster headache (CCH) were examined between 1963 and 1997. Mean age at onset was significantly higher in women with CCH compared with women with ECH and in men with ECH or CCH. In women with CCH age at onset was evenly distributed from 10 to 69 years, whereas in men with CCH and in both sexes with ECH, there was a peak when they were in their 20s. In women with ECH a second peak of onset occurred in their 50s. Although not statistically significant, primary CCH started later in women (mean 50.8 years) than secondary CCH (mean 35.5 years). There was a significant variation in the male : female ratio with respect to age at onset, being largest between 30 and 49 years of age (ECH 7.2 : 1; CCH 11.0 : 1) and lowest after 50 (ECH 2.3 : 1; CCH 0.6 : 1).
DURING THE OBSERVATION PERIOD OF MORE THAN 30 YEARS THERE WAS A TREND TOWARDS A DECREASING MALE PREPONDERANCE; THE MALE : FEMALE RATIO WAS SIGNIFICANTLY HIGHER AMONG PATIENTS WITH ONSET BEFORE RATHER THAN AFTER 1970. THE PROPORTION OF EPISODIC VS. CHRONIC CH DID NOT CHANGE DURING THE STUDY PERIOD. THE NATURE OF THE SEX- AND AGE-RELATED PATTERN OF CLUSTER HEADACHE ONSET REMAINS TO BE ELUCIDATED BUT MECHANISMS ASSOCIATED WITH SEX HORMONE REGULATION, PERHAPS OF HYPOTHALAMIC ORIGIN, MAY BE INVOLVED, AS WELL AS ENVIRONMENTAL FACTORS RELATED TO LIFESTYLE.
PMID: 11972575 [PubMed]
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LeLimey
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Re: Paroxsyml Hemicrania vs cluster
« Reply #15 on: Nov 2nd, 2007, 9:19am » |
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on Nov 1st, 2007, 11:09am, SteveY wrote:Male Preponderance of Cluster Headache is Progressively Decreasing Over the Years
Headache: The Journal of Head and Face Pain
That extract above has it at 3.5 to 1.
I was in London last week at Queen Square, they are talking probably nearer 2 to 1
It will probably finish up 1 to 1 but of course men whine about pain more than women don't they?
Steve |
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nani
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Re: Paroxsyml Hemicrania vs cluster
« Reply #16 on: Nov 2nd, 2007, 9:43am » |
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on Oct 26th, 2007, 8:04pm, birdman wrote:| my neuro does not think it is Ph but CH that I affected by using the RC seeds. |
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My attacks are generally much shorter than they used to be since I started using kudzu, and then busting.
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